As a former Legge Calve Perthes Kid, I want to honor the kids that are enduring their own journey with LCPD which affects roughly 1-20,000 to 1-100,000 children. As a previous ultra endurance cyclist and current mountain athlete, I take prayer flags to the summits of ice climbs, rock climbs, or mountain summits in their honor. Portions of the flag are sent the child directly along with a letter. Photos and stories of the climb are posted so everyone can follow along and join in the adventure! This is a completely free service. As the sole operator of this entire project from doing the climb, writing the letters, buying the flags, creating the content, along with purchasing and maintaining the website. Donations are so impactful and it keeps this dream alive. I am nearing 50 Perthes children that have been honored and received flags which are located all across the globe. I’m very grateful for any donation of any amount to help cover operating cost. I am returning to school in January to start the journey of becoming a clinical therapist with the focus of working with those that have endured child abuse, experienced child trauma, and children.
Since this disease is so incredibly rare often Perthes children will never meet another Perthes child. While growing up, I met one other person in high school that just so happened to my wrestling partner. He didn’t mention it and neither did I until one day before graduation while we were sitting next to each other on the bus. Community can often bring wholeness through understanding and togetherness. It’s a primary goal of this personal project to provide hope and community to current and past LCPD children. Suffering from a rare disease and not knowing there are others makes the suffering much worse. When we can endure together not just as individuals but as a community it can greatly reduce the suffering needed to endure this difficult journey that these children are on.
For my personal story and more information about my cause please go to www.2endureperthes.org
Alan J Coon