Help Chase and his family.

$135,334 of $200,000 goal

Raised by 938 people in 33 months

Dearest family and friends.

Our baby boy Chase died Sunday April 30th, 2017. He was 10 years old. Our hearts are completely shattered and now we must stand strong to begin a very different life, one that we could never have imagined. This gofundme account will remain open for donations. All additional and remaining funds will be committed to helping find a cure and to help bring Chase’s dreams to life.

Below is the story we first shared.

What is Happening to our son Chase:
At this time you are aware that our beautiful 9 year old boy Chase is facing the very scary possibility that he has gliomatosis cerebri.  This form of brain cancer has no known cure. 

This all began when we discovered that Chase's right eye suddenly wasn't working quite right so we took him to an ophthalmologist on 2/4/16, the day after his 9th birthday. After the exam a first set of MRI scans were immediately taken and reviewed. Currently Chase has undergone a second brain MRI, spinal MRI, blood tests and a lumbar puncture to retrieve spinal fluid. All tests for any other condition (Lyme, MS, etc) have come back negative and the scans further support gliomatosis cerebri (GC). He's been a complete angel through ALL of it and we are getting strength from him. This Friday (March 4th) he is scheduled for a brain biopsy at Sloan Kettering in NYC. This procedure will provide the final diagnosis and determine a course of action.

GC is very rare and only 100 cases appear annually so there is not a lot of research on how to treat it effectively. It is largely inoperable, not very respondent to chemo and radiation, and at this time "universally" fatal.  The average patient lives 1-2 years from diagnosis. We are terrified, stunned, heartbroken, and struggling to handle this crushing prognosis for Chase, who is a ray of sunshine and makes people around him happy on a daily basis. 

We are blessed with a strong and supportive family, a group of friends we would never trade, and a small town that rallies to support families in need. In less than a month we have been more than overwhelmed by the thoughts, prayers, , food, visits, hugs, and open ended giving from those who love Chase. We are truly in awe and grateful.

Our Family Request:
We ask only that you be very careful not to discuss this with your children. Please let us explain. His understanding of what is happening to him is that the best doctors are trying to find the bad part of his brain that is affecting his eye. As his parents our burden is to shield him from unnecessary fear and worry. Children are innocent and share information with one another. It would be EXTREMELY upsetting to find out that a class mate confronted Chase with details unknown to him or his brother Ryder.

How you can Help:
Through this fight our family needs to be together with Chase as much as possible, not far away behind a desk pushing paper. There undoubtedly will also be unforeseen medical expenses. Your contributions can and will help.

You can:                                   
·   Give directly to Chase's Fund and
·    You can buy a really COOL shirt, or mug, Design by Chase!  Bring part of Chase into your life and give his creativity as a gift to those you love.  More cool designs will come. (All 100% Chase Balay Design Originals!).



Our son Chase has always had an indescribable need to create. Weird, strange, funny and loving images fill our home. His creations are absolutely never boring or dull. Every day is filled with unexpected and wonderful surprises. The beautiful and imaginative world of Chase Balay makes living better.

Pray for our baby. From our hearts - Thank you.
Chase's Mommy & Papa. (Julie & Erik)

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How can I thank you all?
I want to tell you more about Chase, so please make sure to visit: www.caringbridge.org to stay current. Once you sign in just enter his name "Chase Balay".
I will do my best to update.
Bear hugs for you all.
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Dear friends and family.
This is just a quick reminder that any updates about Chase and our family are available through: www.caringbridge.org
Once you sign in, simply enter his name "Chase Balay".

Yesterday we visited and spoke with doctors about available treatments that are best suited for our angel. Please visit caringbridge.org for full detailed updates. Julie and I are looking at every option very carefully.
Everyone's continued love, prayers and support gives us the strength we need. Our deepest gratitude to all who have and continue to be there for us through this horrible time.
My sunshine.
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From my dearest Julie.
"I speak for myself and Erik when I say that we are completely in awe of the generosity of our family, friends, and complete strangers. We pray for a miracle and thank you for making these donations so that we can spend more time with our wonderful son. There are really not enough words to express our gratitude."
-Julie

From Erik:
Yesterday was incredibly difficult. To find the words and clarity in which to share what is happening with all of you took its toll. Then only moments later to hear a phone that would not stop chirping as one after another wonderful person sent support. This went on for hours. Never could I imagine such a response. Never did I think we had so many friends. Our baby will be in the hospital this Friday and he is so brave! Your love and generosity is amazing. Thank you thank you. Please share Chase's story. Please get a shirt or mug that he designed. It will make you smile. It will make him smile.
-Erik
Nothing better.
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Read a Previous Update
A CaringBridge campaign
Julie Lichty Balay
33 months ago
3
3

I speak for myself and Erik when I say that we are completely in awe of the generosity of our family, friends, and complete strangers. We pray for a miracle and thank you for making these donations so that we can spend more time with our wonderful son. There are really not enough words to express our gratitude.

+ Read More
Ashley Ann Lawrence
33 months ago

Please help me get my fight and story out! God bless you and your family.. My prayers are with you!

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MaryAnn D'Amore
25 months ago

Sorry spell check said Chad we all know it's Chase

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MaryAnn D'Amore
25 months ago

I was at englewood hospital the day you n your family were. I texted friends to pray as I will continue to do. Prayers always helps. God bless Chad & entire Balay family

+ Read More
Denise Diaz
33 months ago

Jesucristo Te sane niño lindo.

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$135,334 of $200,000 goal

Raised by 938 people in 33 months
Created February 29, 2016
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NG
$100
Natalya Gerzhgorina
10 months ago

Dear Erik and Julie, I recently came across this website from which I've learned about the tragedy. Even though months have passed, I'd still like to send you my deepest condolences and I want you to know that you are in my thoughts and prayers. Wishing you comfort and peace.

BB
$100
Bridget Burns
18 months ago

We are praying for you and your family Rich!

MM
$30
Michelle McDowell
18 months ago

Your family is in my thoughts and prayers. Michelle

$18
Anonymous
18 months ago
$36
Anonymous
18 months ago
LL
$100
Lena Lee
18 months ago

Our deepest condolences for your loss, may you find strength in this difficult time

$250
Anonymous
18 months ago
Julie Lichty Balay
33 months ago
3
3

I speak for myself and Erik when I say that we are completely in awe of the generosity of our family, friends, and complete strangers. We pray for a miracle and thank you for making these donations so that we can spend more time with our wonderful son. There are really not enough words to express our gratitude.

+ Read More
Ashley Ann Lawrence
33 months ago

Please help me get my fight and story out! God bless you and your family.. My prayers are with you!

+ Read More
MaryAnn D'Amore
25 months ago

Sorry spell check said Chad we all know it's Chase

+ Read More
MaryAnn D'Amore
25 months ago

I was at englewood hospital the day you n your family were. I texted friends to pray as I will continue to do. Prayers always helps. God bless Chad & entire Balay family

+ Read More
Denise Diaz
33 months ago

Jesucristo Te sane niño lindo.

+ Read More
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