Anna-Karin Brazee is fundraising
Scriba's friends supporting the PolG Foundation
Support the PolG Foundation – In Memory of Emilia
When the Scriba family's friends first started this fundraiser in December 2024, Emilia was in the hospital fighting for her life. Today, she is no longer with us, and a family that used to be five, is now a family of three.
Emilia and her sibblings have been affected by PolG, a rare genetic disease that robs the body’s cells of energy and slowly shuts down the organs. While most teenagers are busy with school, friends, and dreams for the future, Emilia was fighting for her life at the hospital.
There is no cure for PolG - yet. But promising research is underway, and with enough support, a breakthrough could be within reach.
If you have teenagers, know teenagers, or simply recognize how much energy and life young people hold, please consider supporting the PolG Foundation. Spread the good energy!
Your donation can help give other families hope, and help ensure that this devastating disease can one day be stopped. Every contribution makes a difference! Follow the link to meet Emilia and Amelie and other children with PolG: https://polgfoundation.org/
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