Mals Pals

Hi, I am participating in the Best Buddies Challenge, a 100-mile bike ride from Boston to Hyannisport, to support Mal's Pals Foundation, an organization dedicated to raising awareness of Rubinstein Taybi Syndrome. This rare genetic condition affects many lives, and by supporting Mals Pals, we can help shine a light on this important cause. Your contribution can make a significant difference in the lives of families impacted by this syndrome.

Your support helps Mals Pals make a difference by contributing towards efforts like:

Every donation, big or small, helps us continue this vital work. Together, we can build a brighter future for individuals and families living with Rubinstein Taybi Syndrome. Thank you for your support!

This will be my third year riding the 100-mile Best Buddies Challenge, and once again, I’m proud to be representing Mal’s Pals—a cause that means the world to me.

Mal’s Pals is a charity dedicated to supporting families affected by RTS (Rubinstein-Taybi Syndrome). This mission is especially important to me because of my daughter Lily’s close friendship with Mal, who has RTS. Seeing their bond, and Mal’s strength, has inspired me to ride year after year.

Every mile I ride is for Mal and for the many families who rely on the support, resources, and sense of community that Mal’s Pals provides.

If you can, please consider donating—every dollar helps make a difference. Thank you for supporting me on this journey and helping us bring more awareness and support to RTS families.

My name is Jessika and I’m thrilled to be supporting Mal’s Pals Foundation, a wonderful organization dedicated to helping children with rare diseases. As someone who values compassion and community, I’m passionate about raising awareness and funds for these incredible kids and their families. Mal’s Pals provides vital resources, support, and hope to those facing unique challenges, and I’m honored to contribute to their mission. Together, we can make a meaningful difference in the lives of these children. Thank you for considering joining me in supporting this cause!

Hi friends and family,

I’m excited to share that I’ll be running the 129th Boston Marathon, but this year, my race has an even more meaningful purpose. I’m fundraising for Mals Pals, an organization that supports and raises awareness for Rubinstein Taybi Syndrome (RTS).

Why this matters to me: Mal, a classmate and close friend of my daughter Ella, has Rubinstein Taybi Syndrome, a rare genetic disorder that affects multiple aspects of development, including physical, cognitive, and social development. Through Mals Pals, Mal’s family has been raising awareness about RTS and supporting other families affected by this condition, ensuring no one faces this journey alone.

By running this iconic race, I hope to honor Mal’s strength and the incredible work Mals Pals is doing. But I can’t do it alone — I need your help!

How you can help: Please consider donating to this cause to help raise awareness for RTS and support Mals Pals in their mission to help families like Mal’s. Every dollar makes a difference, and your support means the world to us.

Why it matters: Donations to Mals Pals go directly toward raising awareness, supporting research, and providing resources to families navigating RTS. Your generosity will make a tangible impact, and together we can help spread the word and make a difference.

Goal: I’m aiming to raise $3,500 by race day, April 21! Whether you can donate $5 or $500, every little bit helps, and I am truly grateful for your support.

Thank you for being part of this journey with me. I’ll be running every mile with Mal and Mals Pals in mind, and knowing you’ve got my back means everything.

Follow my journey! For updates on my marathon training and fundraising progress, follow me on Facebook (Sarah Hawthorne Remington), Instagram (@Momofgirlz8), or check back here for updates.

Hi! My name is Kristina, and I'm running the 129th Boston Marathon this April with Mal's Pals, to support and raise awareness for Rubinstein Taybi Syndrome. Thanks in advance for your contribution to this cause which means so much to the community!

More information about Mal's Pals Foundation can be found here: https://malspalsfoundation.org/.

Mal’s Pals Foundation was created in 2017 after a little Boston girl was diagnosed with a rare genetic disorder called Rubinstein Taybi Syndrome, or RTS. Her parents and their friends decided to enter in a bike race to raise awareness for rare diseases like Mallory’s. The rest is history...

Since 2017, Mal’s Pals Foundation has grown from a team of 5 riders in the Best Buddies Challenge to a support network involving hundreds of people, local businesses, partners, and supporters.

Mal’s Pals Foundation strives to not only raise awareness about rare disease, but to encourage inclusion. Mal’s Pals Foundation believes that it is in a most inclusive world, that we all become better people. It is not only beneficial to those with unique abilities, but it is of priceless value for anyone to learn and grow in an environment that is both inclusive and accommodating of all people.

I'm lucky enough to be the father of this beautiful girl, Mallory Bickerton. Mal was diagnosed with a rare genetic disorder called Rubinstein Taybi Syndrome at birth, and it became apparent very quickly that there were a lack of resources and support for families of children with rare diseases. And so, Mal's Pals began. The foundation aims to:

Spread awareness and foster a supportive community for families of children with all kinds of rare diseases

Provide 'Direct to Family' funding and aid for accessible tools and adaptive equipment (Rifton Tricycles, gait trainers, and AAC devices)

Help sponsor the yearly RTS Conference, bringing together families of RTS from all over the country

Encourage inclusion for all of those with unique abilities, and advocate for special needs programming

Mal's Pals truly makes a massive impact on this community of special individuals, and I'm so proud to be riding my 6th Best Buddies ride for it!

Thank you for your support.

Ryan

I am participating in the Best Buddies Challenge, a 100-mile bike ride from Boston to Hyannisport, to support Mal's Pals Foundation.

Mal’s Pals Foundation was founded in 2017 after a little Boston girl was diagnosed with a rare genetic disorder called, Rubinstein Taybi Syndrome, or RTS. Her parents and their friends decided to enter a bike race to raise awareness for rare diseases like Mallory’s. The rest is history. Since 2017, Mal’s Pals Foundation has grown from a team of 5 riders in the Best Buddies Challenge, to a support network involving hundreds of people, local businesses, partners and supporters.

Mal’s Pals Foundation strives to not only raise awareness about rare disease, but to encourage inclusion. Mal’s Pals Foundation believes that it is in a most inclusive world, that we all become better people. It is not only beneficial to those with unique abilities, but it is of priceless value for anyone to learn and grow in an environment that is both inclusive and accommodating of all people.

I am pleased to announce my participation in the 2024 Best Buddies Challenge (100 miles) to help raise funds for a worthy cause, “Mal’s Pals.”

Mal’s Pals Foundation was founded in 2017. After their little Boston girl was diagnosed with a rare genetic disorder called Rubinstein Taybi Syndrome (RTS), her parents and friends decided to enter a bike race to raise awareness for rare diseases like Mallory’s. The rest is history.

Since 2017, Mal’s Pals Foundation has grown from a team of five riders in the Best Buddies Challenge to a support network involving hundreds of people, local businesses, partners, and supporters. Mal’s Pals Foundation strives to raise awareness about rare diseases and encourage inclusion.

Mal’s Pals Foundation believes we all become better people in an inclusive world. Learning and growing in an environment that is both inclusive and accommodating of all people is beneficial not only to those with unique abilities but also of priceless value to anyone.

I am trying to raise $5,000 for this fantastic foundation so I can use your help. I will genuinely appreciate your support!

Best regards,

Matt

Here we are in 2024, nearly 10 years after Mallory was born and diagnosed with Rubinstein Taybi Syndrome which is a rare genetic disorder that effects 1 in 350,000 children born world wide. Mal's Pals Foundation was started to network with and support families whose lives are changed by rare disease diagnoses. As a 501c3 nonprofit, the money raised for MPF goes in part, to like minded non profit organizations like Best Buddies, Adaptive Sports New England, Boys and Girls Club Adaptive Programming, Raising Harts, and more. We donate direct to family funding for life saving medical equipment, adaptive equipment, trainings, and "luxury" items that typically aren't covered by insurance like Augmentative Communication Devices, walkers, and trikes. We have been privileged to provide free kids events more recently, bringing awareness and inclusion for people with rare diseases into our communities.

If you do not have the honor of knowing Ryan, he is my husband, a father (to four! including Miss Mal), a hard working small business owner, and Boston Firefighter. To celebrate our daughter's 10th year, Ryan will run the Boston Marathon for Mal's Pals Foundation and complete his typical 100 miles for Best Buddies. Pounding the pavement for 126.2 miles so that families like ours, can be recognized, helped and given more opportunities when navigating life with disabilities.

Ryan has been putting in a lot of physical work over the last few years; strengthening himself mentally and physically so that he is the best version of himself for his family. For the last 8 years (even through the pandemic) Ryan has biked well over 1,000 miles for the Best Buddies Challenge on Team Mallory, and that is not including all the training. As a last minute addition to the original team in 2015, (Shout out to the Dorsey family!) Ryan pedaled from Boston to Hyannis because our friends gave us an opportunity to bring our idea to life, and so became Mal's Pals Foundation. Since then he has been a leader for our Best Buddies team, for our non profit and a role model to other fathers who have a loved one with special needs.

Ryan is a dedicated Dad; he's not just a regular Dad, he's a cool Dad, super Dad, and a very proud special needs Dad. He works so hard for us and donates so much of his time and money to everyone else. Please help him fundraise for both of his goals this year.

Interested in joining our team? There is still time to join us this June for the Best Buddies Challenge, email [email redacted] for more information! Unfortunately, our marathon team is full but we are working on securing more bibs for next year!

More information about Mals Pals: Awareness of Rubinstein Taybi Syndrome

Excited to be participating in this years Best Buddies 100 mile bike ride from Boston to the Cape. I am riding and raising money for Team Mal’s Pals.

Mal’s Pals Foundation was founded in 2017. After a little Boston girl was diagnosed with a rare genetic disorder called, Rubinstein Taybi Syndrome, or RTS.

Mal’s Pals Foundation strives to not only raise awareness about rare disease, but to encourage inclusion. Mal’s Pals Foundation believes, that it is in a most inclusive world, that we all become better people. It is not only beneficial to those with unique abilities, but it is of priceless value for anyone to learn and grow in an environment that is both inclusive and accomodating of all people.

This charity has helped so many families financially, emotionally, socially and medically. They have shed light on rare diseases and inclusion for so many and I am honored to be able to ride for their team.

please consider donating to the mission!!

Thanks, Kevin

Join me in riding 100 miles for Mal's Pals! Your support will make a real difference to many in need. Let's pedal for a brighter future together!

Want to join me in making a difference? I'm raising money to benefit Mals Pals, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about Mals Pals: Awareness of Rubinstein Taybi Syndrome