Huntington's Disease Association

Hi, my name is Millie and I am doing a skydive in Sydney raising funds to support people and families affected by Huntington’s disease (HD) and to help move science forward.

From a young age, I watched my mum slowly fade away from Huntington’s disease. As a teenager, I was forced to confront a terrifying question — what does my own future look like? For a long time, with the science available then, the outlook felt hopeless. But that’s not the case anymore. Research is advancing, treatments are improving, and for the first time, there is real hope.

This cause is deeply personal to me. No family should have to face HD without support, answers, or hope. Every donation helps fund research, improve care, and provide vital support services for families like mine — and for others who are still fighting this disease every day.

Your donation, no matter the size, makes a real difference. It helps ensure that people affected by Huntington’s disease are not alone and that the future looks brighter than the one I once feared. Thank you for supporting this cause and for being part of the fight against HD.

Mike’s Half Marathon for Huntington’s Disease Research.

This year I will be taking on a challenge that means more to me than words can express. On Sunday 10th May, I’ll be running a half marathon in Bracknell, in hope to raise money for a cause that sits very close to my heart — Huntington’s disease association - https://www.hda.org.uk/ - https://www.youtube.com/watch?v=bhExSMZt1zs

Huntington’s disease is a rare, inherited condition caused by a faulty gene. Over time, it damages nerve cells in the brain, affecting movement, memory, behavior and emotions. It slowly takes away independence — the ability to walk, speak, eat, and eventually even recognise loved ones. Many describe it as a heartbreaking blend of Parkinson’s, Alzheimer’s, and Motor Neurone Disease all in one.

The impact of Huntington's disease reaches far beyond the person diagnosed. It affects entire families — emotionally, mentally, and physically. It brings uncertainty, fear, and a kind of grief that begins long before symptoms appear. Because the condition is genetic, every child of an affected parent has a 50% chance of inheriting it. Families live with that weight every single day.

This is why I’m running.

Someone I love dearly is living with Huntington’s, and watching their journey has changed & triggered something within me. Their courage, their resilience, and the way they face each day with strength has inspired me to do something — anything — that might help make a difference. This run is my way of honoring them, standing beside them, and supporting the research that could one day bring hope to families like mine.

By raising money for Huntington’s disease research, I’m hoping to support the scientists and organisations working tirelessly toward better treatments, better support, and ultimately, a cure.

If you’re able to donate — even the smallest amount — it would mean the world to me. All funds that are raised leading to the marathon date, i will personally donate an additional 10% of the total donations made.

However, if donating isn’t possible, you can come down on the day to cheer me on to show your support or simply sharing this page can help raise awareness and reach others who may be able to support the cause.

From the bottom of my heart. Thank you so much for supporting & believing in my half marathon fundraiser for Huntington’s disease research. Your kindness means more than I can express. Whether you’ve donated, shared the page, or simply taken the time to read my story, you’ve played a part in helping, your support brings hope, comfort, and encouragement not just to me, but to everyone touched by this disease.

We’re taking on this challenge for a cause that really matters to us.

Mike, Maisie and Sam are running 5K in Marlow on 28th June, and we’ve chosen to do it in support of people affected by Huntington’s disease. It’s a condition that doesn’t just affect individuals, but whole families, and sadly there is currently no cure.

Every mile we run is for those living with Huntington’s, for their loved ones, and for the organisations working tirelessly to provide support, care, and fund vital research. This may be a big challenge for us personally, but it’s nothing compared to what so many people face every day.

If you’re local, please come down to Marlow on 28th June to cheer us on — your support will mean so much to us on the day. Whether you’re able to donate, share this page, or support us in person, it truly means the world to us

Thank you so much for your support.

Hi as all my family and friends know me and the condition that affects my family, I have stupidly been persuaded to run a full marathon on the 24th of May this year in Edinburgh to raise as much funds as I can to make a difference to people's life , not just for my family, but all family's who are affected by this condition .

Want to join me in making a difference? I’m raising money to benefit Huntington's Disease Association, and any donation will help make an impact in my family , as you all know i have lost my Dad, Big Brother & Big Sister to this cruel disease. Also my younger brother and two nieces and nephew who are trying their best to fight for their life's at the moment .

Thanks in advance for your contribution to this cause that means so much to me.

More information about Huntington's Disease Association: The Huntington's Disease Association is a national charity supporting people affected by Huntington's disease (HD) across Scotland England and Wales. HD is hereditary; affects the central nervous system and is currently incurable. Caused by a faulty gene passed through families; each child of a parent with HD has a 50% chance of inheriting it. Through our national support network, publications, local branches, professional training and social research funding we help people affected by HD live a better life. please donate what you can.

PS: I will do my best to complete this marathon , if anyone has any advice or help to get through it give me a shout.

Thanks in advance

Our names are Archie and Ellie. this event is held in loving memory of our grandad Alan. his kindness and laughter inspired us every day.As two of his grandchildren we want to honour him by bringing people together and raising money

for Huntingtons disease. With a little Christmas sparkle.Enjoy the event !

Want to join us in making a difference? We're raising money to benefit Huntington's Disease Association, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to us.

More information about Huntington's Disease Association: The Huntington's Disease Association is a national charity supporting people affected by Huntington's disease (HD) across England and Wales. HD is hereditary; affects the central nervous system and is currently incurable. Caused by a faulty gene passed through families; each child of a parent with HD has a 50% chance of inheriting it. Through our national support network, publications, local branches, professional training and social research funding we help people affected by HD live a better life.

ATTENTION‼️‼️

Here at Secrets we are doing our Lemon Float Challenge for a charity close to our staffs hearts Huntingtons Disease Association

We thought long and hard into choosing a charity that is close to us here at secrets and golden glow and one of our members of staff and their beautiful 10 year old daughter Poppy have chosen Huntington Disease for us

So please come down to secrets and have a go at floating a £1 coin on the lemon at our bar and contribute to this amazing charity

Please share and donate

Huntington’s Disease has changed my family forever. My grandad had it, and so did his sister – it was the first time anyone in our family had even heard of it. It made my grandma’s marriage incredibly hard, because no one knew what this illness was or how to handle it. I grew up seeing a man who was supposed to be my grandad just sat in a chair. I never got to know him the way I should’ve. Huntington’s is something that will likely pass down through my family, and that’s a scary reality. I’m only 13,and I’ve decided to walk 2 miles every day till November 5th as my best memory of him was how he loved bonfire toffee lollies.This is all to raise money for the Huntington’s Foundation. My grandad loved exercise, and if he was still here, I know he’d be walking with me. My goal is to raise £1,000 – all of it will go to the charity. Me and my cousin Ellie (who’s 24) are also planning an event later this year to raise even more. This is personal. It’s not just a fundraiser – it’s for my grandad, for my family, and for a future with hope.

I am running the Manchester half Marathon in october 2025 in memory of my Grandad George, in April 2024 i lost my best friend to this horrible disease and want to play my part in helping other familys to not go through what my Granddad did. Huntingtons is a horrible illness and takes the life away from your loved ones. Anyone who knows me knows how much this man meant to myself and all who knew him. He was one in a million and the king of our family... the King of the Road.

Do you want to join me in making a difference? I'm raising money in aid of Huntington's Disease Association and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

More information about Huntington's Disease Association: The Huntington's Disease Association is a national charity supporting people affected by Huntington's disease (HD) across England and Wales. HD is hereditary; affects the central nervous system and is currently incurable,Caused by a faulty gene passed through families; each child of a parent with HD has a 50% chance of inheriting it. Through our national support network, publications, local branches, professional training and social research funding we help people affected by HD live a better life.

I'm running the Chester triple (10k, half marathon and marathon) to raise money in aid of Huntington's Disease Association.

The Huntington's Disease Association is a national charity supporting people affected by Huntington's disease (HD) across England and Wales. HD is hereditary; affects the central nervous system and is currently incurable. Caused by a faulty gene passed through families; each child of a parent with HD has a 50% chance of inheriting it.

I’ve had first hand experience with the HDA and the work they do and support they offer to all affected by Huntington’s is amazing

Any contribution is much appreciated and thanks to everyone who contributes

Hello one and all. Once again (and for the last time as I am getting creaky in my old age) I am running a punishing 26.2 miles to raise some money and hopefully make a difference to other people’s lives. This time round I am raising money to benefit Huntington's Disease Association. Both me and my equally mad colleague Tom are running the Chester marathon 2025 after seeing the experience of some of our patients and close friends sadly suffering and passing from Huntingtons Disease. If you can spare anything to help research into this very cruel disease then please send what you can to this go fund me. Thanks in advance for anything you can give, you are already officially awesome for taking the time to read this

More information about Huntington's Disease Association: The Huntington's Disease Association is a national charity supporting people affected by Huntington's disease (HD) across England and Wales. HD is hereditary; affects the central nervous system and is currently incurable. Caused by a faulty gene passed through families; each child of a parent with HD has a 50% chance of inheriting it. Through our national support network, publications, local branches, professional training and social research funding we help people affected by HD live a better life.