Cystic Fibrosis Trust

Hi, I’m Adam a 19yo who suffers with cystic fibrosis. This is something that I’ve had from birth and has affected me throughout with constant medication, hospital admissions, and maintenance. Thankfully, I am at point where I am able to live a somewhat normal day-to-day alongside my cf treatment and want to use this as an opportunity to raise money for a great cause. The cf trust are an amazing charity who fund research into looking for cures for cf and ensuring people like me get the treatment they deserve. I understand running a marathon is no easy feat ,especially for somebody who hasn’t ran one before, but I am dedicated to achieving the best results that I can!

To celebrate Cystic Fibrosis Awareness Week, there’s no better way than to kickstart my fundraising for the Belfast City Marathon. As someone who was diagnosed with this condition at only a few weeks old, CF has been my life and all I’ve ever known.

What is cystic fibrosis?

It is a rare inherited genetic condition that causes breathing and digestive problems. It is a progressive condition which means it gets worse over time. It can also lead to other medical conditions such as diabetes , liver disease & osteoporosis.

Luckily enough I am relatively well with my condition and manage it well living a very normal life with few complications. My mum keeping me well and on top of medication, treatment and hospital visits from a young age has been a massive contribution to this. Also through medical advancements over the years with the release of Orkambi & Kaftrio in 2020, it’s not a cure and it’s not suitable for everyone, but it’s progress and one step closer to a cure. People with CF can appear fine on the outside, and so many people don’t realise what they go through on a daily basis and what it takes to stay well.

In March 2025 I decided to start running as a hobby alongside my regular weight training. In April 2025 I competed my first 5k run at Belfast zoo (the hills… I know!!!). The “runners high” as everyone talks about, got to me and after completing a few more runs I thought it was a GREAT idea () to sign up for the Belfast City Marathon in May 2026. 26.2 miles is bad enough, nevermind with a lung condition. It is going to be tough, however I know it will be so worth it to go against the odds & complete something that should be “impossible” for someone with my condition.

I will be running this marathon in memory of those with cystic fibrosis who are no longer here , to raise money to one day find a cure & also for little me who thought she was “weird” for having to take tablets to be able to eat, getting up earlier for school to take nebulisers and leaving school due to being unwell / hospital appointments. I’m doing it for future me who can always look back and say “I done it”, knowing I’m part of the 1% club, and completing this with a chronic lung condition.

any donations, shares etc would be greatly appreciated. Thank you. Devon

Napier men’s football will be running a 10k every single day of February to spread awareness for Cystic fibrosis. This cause is especially close to our hearts as our 2’s assistant gaffer and former player, Lewis Muego, lives with cystic fibrosis. Lewis is incredibly active and regularly takes part in endurance events such as marathons and Ironman competitions. Unfortunately, due to a current injury and upcoming back surgery, he may be unable to compete in the London Marathon this April.

As a result, we have come together as a club to take on Fab Feb, raising money and awareness for the Cystic Fibrosis Trust in support of Lewis and everyone affected by cystic fibrosis.By running a 10k everyday we are looking to spread awareness for physical, mental and emotional health. Staying active everyday is a key factor to getting on with your week and being productive. If it’s doing physical exercise with yourself, going a walk with friends, playing a sport part of a team or even getting out the house to meet new people. It all adds up to creating a perfect balance throughout the week to make your week as productive as it can be.

Want to join me in making a difference? Edinburgh Napier Men’s football are raising money to benefit Cystic Fibrosis Trust, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about Cystic Fibrosis Trust: The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle.

Hi everyone,

I’m taking on a skydive to raise money for the Cystic Fibrosis Trust, and I’d be so grateful for any support.

I need to raise a minimum of £500 to take part, and every donation will go towards helping people and families affected by cystic fibrosis.

This cause is incredibly close to my heart because my little sister, Brooke, who is now 17, has cystic fibrosis. Seeing first-hand the daily challenges she faces has inspired me to do something meaningful to support this amazing charity.

Cystic fibrosis is a life-limiting genetic condition that affects the lungs and digestive system. The Cystic Fibrosis Trust funds vital research, provides care and support, and works to improve the lives of those living with CF across the UK.

To push myself completely out of my comfort zone (and my fear of heights!), I’ll be jumping out of a plane — but it’s nothing compared to what people like Brooke face every single day.

⸻

Why your support matters

Your donation will help:

• Fund life-changing research

• Support families living with cystic fibrosis

• Improve treatments and long-term outcomes

No donation is too small, and sharing this page means just as much.

Thank you so much for reading, donating, and supporting me in taking this leap

My name is Callum rook and I will be running the London marathon in 12 months time wish me luck ! I was born with a relatively rare condition called cystic fibrosis . Cystic fibrosis (CF) is a genetic condition that primarily affects the lungs and digestive system. It’s caused by a faulty gene that affects the movement of salt and water in and out of cells, leading to the buildup of thick, sticky mucus in the body.

Here’s a breakdown of how it affects the body:

• Lungs: The thick mucus clogs the airways, making it difficult to breathe and leading to frequent lung infections. Over time, this can cause lasting damage to lung tissue.

• Digestive System: CF can block the pancreas, stopping digestive enzymes from reaching the intestines. This makes it harder to absorb nutrients from food, leading to poor growth and weight gain.

• Other Effects: It can also affect the liver, sinuses, and reproductive system. People with CF often need a combination of daily medications, physiotherapy, and regular hospital visits.

CF is a lifelong condition, but treatments have come a long way. Many people with CF are now living longer, fuller lives thanks to advances in care and research.

Do you want to join me in making a difference? I'm raising money in aid of Cystic Fibrosis Trust and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

More information about Cystic Fibrosis Trust: The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle.

Want to join me in making a difference? I’m raising money to benefit Cystic Fibrosis Trust, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

In memory of a very special young lady Sophie Wheeler.

Want to join me in making a difference? Husqvarna are raising money to benefit Cystic Fibrosis Trust, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about Cystic Fibrosis Trust: The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle.

Hello, I’m doing the Leeds marathon on Sunday 10th May in aid of helping raise funds for medical treatment and medical practise on future treatments for people that suffer with Cystic Fibrosis. Cystic Fibrosis is a big part of my life as my niece Ella has the condition and as a family her condition can hold her back in certain aspects of her life, and we are trying to do everything in order to advance medical treatment for people like Ella so they can lead as much of a normal life as they can.

Thank you in advance for your contribution to this cause that means so much to me.

Want to join me in making a difference? I’m raising money to benefit Cystic Fibrosis Trust, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about Cystic Fibrosis Trust: The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle.

Hello, i am running the Great North Run on 7th Septemeber, with my my eldest brother (Darren) for Cystic Fibrosis trust. 2 of my 3 brothers have Cystic Fibrosis (or CF) and have relied on a lot of medical help over the years to improve their quality of life. They have also benefitted from all the research and progress made as a result.

This year will be our FIFTH TIME doing the Boxing Day Dip, and would love nothing more than if you could support us by donating to Cystic Fibrosis Trust.

We have been continuing to do this for two reasons:

Firstly, our amazing uncle Pete used to do the Dip, but passed away a few years ago. So, in his memory, we decided to raise money for a cause that was close to his heart. Pete fundraised for the CF trust numerous times so we would like to make him proud by wearing the same yellow top and continuing to raise money in his name.

Secondly, our gorgeous niece was diagnosed with CF. We know how important the work of the trust is going to be for her as she grows up, so by raising some money we can help fund the research that is going to be life changing for her.

More information about Cystic Fibrosis Trust: The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle.

Want to join me in making a difference? I’m raising money to benefit Cystic Fibrosis Trust, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about Cystic Fibrosis Trust: The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle.