Bub requiring gastroschisis surgery

$3,160 of $5,500 goal

Raised by 39 people in 23 months
Kristella Spartan Marios  Ballarat, VIC
At my 12 week ultrasound it was confirmed that our baby girl has gastroschisis, gastroschisis is an abdominal wall defect, meaning that the intestine and bowel are outside of her body. As she has grown, more of her stomach content has came out. I am now 32  weeks pregnant and due to the findings of her being undersized she needs to be monitored more regularly, which will mean up to 2 trips to Melbourne hospitals, to have scans done and see specialists..traveling from Ballarat,relying on others because I don't have reliable transportation to take, parking fees and all costs that come with It, including missing alot of work, due to needed appointments makes things difficult . I have a 8 year old son and am still working, but due to the requirements and busy rush working in hospitality it is becoming to be very tiring and financially is beginning to put pressure on our everyday life, because I have lost my parenting payment and am now on new start which is a dramatic drop,  I try to gather more hours to make up for , but am left fatigued and stressed out. Our baby will be in hospital for a minimum of 4 weeks which will cost alot in trips over the next ten weeks not to mention the emotional exhaustion, accommodation, we hope to have some help with, as we live so far away and she will be transferred to the Royal children's hospital where she needs to be monitored and treated by special doctors, she will be born at 36 weeks if not earlier and I would like at least some stress before hand taken away from the situation so I can focus on our baby and I can have time off work to rest before our long journey with her outside of the womb begins, instead of feeling that if I stop working now I will put
too much pressure on us financially, please Keep our baby in your prayers, I hold onto alot of hope xx

We are 1000$ away from being able to buy a reliable family car we have been aiming for, if anyone could help, it would be greatly appreciated xx
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Update 13
Posted by Kristella Spartan Marios
21 months ago
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So today I had my 36 week scan in Melbourne, it has been a very big day, from 12-8pm. Avas growth has stopped, the cord flow is very high and her stomach has also came out of the abdominal wall defect. I had scans done today, monitoring and will be admitted tomorrow morning, if nothing improves by Thursday she needs to be delivered. Please have my baby girl in your prayers, Im finding it very difficult after hearing all of this today. Xx
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Update 12
Posted by Kristella Spartan Marios
22 months ago
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Had such a long day today, 34 week ultrasound, go to clinic then seen the surgeon. Quite overwhelming. Bub was 3 pound 3 ounces on her ultrasound 2 weeks ago, and is only 3 pound 3 ounces now. So her growth has slowed right down and she is back off the chart again. Keep our baby girl in your prayers please to get her back on that chart and fight through it all, thankyou
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Update 11
Posted by Kristella Spartan Marios
22 months ago
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Baby girl with her hand covering her face, look at those little fingers
Xx
Hands over her face, beautiful girl x
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Update 10
Posted by Kristella Spartan Marios
22 months ago
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I would like to say a big thankyou for all of your kind words and generous donations, I am overwhelmed and so grateful for all of the support and help my family is receiving. Every dollar counts and every dollar I thank you for. If anyone may know of someone looking for a car, we have a vy commodore for sale, all money will go towards this campaign. 204000 kms, Ballarat victoria location. $4,000
This is the car we can sell to recieve these funds. enquires 0487382232 s
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Read a Previous Update
Nicole Christine
23 months ago
1
1

I just want to say everything will be ok!!!.. I am 36 years old and was born with gastroschisis.. you will be fine and so will she.. I have three beautiful children.. zero complications while pregnant.. and outside of being in the NICU for a few weeks after I was born, along with a couple of surgeries and no belly button all is well ( ok.. really ugly scar.. but again it was 36 years ago..surgical technologies are so much better now.. I bet she will even be able to have a real belly button..) Try to stay positive and not let all the "what if's" make you crazy!

+ Read More
Char Downs
23 months ago
1
1

Hey guys! Just a quick note: Keep fighting and stay positive. My daughter's story in on youtube called Hannah's Gastroschisis Story Part 2. It's old, but relevant. She's 6 years old now and doing amazingly. Every year she gets better and better. We were told that she had a range of issues and offered termination a few times. Check out the video if you can :) From one gastroschisis family to another; You are in our thoughts.

+ Read More
Kari Barwick
23 months ago
1
1

My grandson was born with gastrochisis. He was in the NICU for 46 days. He is 7 years old now and you would never know he was born with a problem, except by looking at where is belly button would've been.

+ Read More
Derek Mardis
23 months ago
1
1

My Daughter had this 13 years ago, the is on the dance team at her junior high.. no problems, have faith in God, and everything will be fine. You will spend about a month in NICU.. waiting for baby to recover.. be patient.. after it is over it will be a little scar.. and he can do anything he wants later in life..

+ Read More
Christy Taylor
23 months ago
1
1

My first-born daughter was born in 1987 with gastroschisis, 5 weeks early (once her lungs were developed) via C-Section and stayed in NICU for 5 weeks. This is survivable. There will be things you'll always need to watch for, but with great medical care, you're baby will survive and thrive. Prayers to your family.

+ Read More
Katie Ruru
23 months ago
1
1

Hello there I was born with this 30 years ago if you have questions or just want to chat please contact me, I have lived a great life thanks to the doctors who saved me when I was born this was unknown to many people x

+ Read More
Michelle Booth
23 months ago
1
1

Hello I gave birth to a baby girl 3 months ago! Inbox me for info if you like. Royal children's hospital are amazing!

+ Read More
Sonia Knights
23 months ago
1
1

Hi darling I gave birth to my gastroschisis girl only 5 short weeks ago, there is VAPS they will reimburse you for your travel and accommodation is free. Iv inboxed you if you want to talk to someone, wishing you the best of luck xo

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Kim Robey
22 months ago

Hi, I just wanted to wish you guys all the best. I know it's hard but try and stay positive and strong. My son was born with gastroschisis 5 years ago, and after 2 operations and 8 weeks in NICU he finally made it home and is doing perfectly fine today. Can you ask to speak with a social worker from the hospital? We had a lovely one in Sydney who helped us out with finding accommodation close to the hospital (as we also had our 2yr old daughter at the time) There is a scheme called IPTAAS which you might also be eligible for to help out with travel costs. Sending prayers your way xx

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Lisa Green Delaney
22 months ago

My daughter was born with this 25 years ago. Please feel free to reach out to me if you have any questions. This is very hard to deal with but please know you are not alone. Lisa

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Maria Stamatakos
22 months ago

Keep up with the good work darling, our prayers are always with you, great to see the donations coming in! Lots of love cousin maria and Auntie Militsaxxx

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Maria Stamatakos
23 months ago

All the best for tomorrow darling. We love you and have you in our prayers, love cousin Maria and Auntie Militsaxxx❤️❤️❤️❤️

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Ebony Toth Littlewood
23 months ago

My daughter who is 5 months now has larger omphalocele which is liver and intestines on the out side these babies are the strongest babies and they truely are fighters ... and I was told to terminate at 20 weeks ... my little girl won't be getting surgery until she's 4 so she'll have a everything on the outside till then and she stayed in rch for 2 months and now where back and forth due to infection hope everything goes well with ur Bub n stay strong xx

+ Read More

$3,160 of $5,500 goal

Raised by 39 people in 23 months
Created February 7, 2017
Kristella Spartan Marios
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$5
Sophia Minott
22 months ago

Hope everything goes well really proud of you all and respect this hard decision you have been faced with. I am a mother of a disabled child and I'm glad that I kept him. I have been blessed in many ways having him and so will you be. May God Bless You all stay strong.

$5
Anonymous
22 months ago
ST
$10
Sara Taupin
22 months ago
EJ
$20
Elizabeth Jean
22 months ago
AL
$30
Ashleigh Linssen
22 months ago
LT
$40
Leah Thompson
22 months ago
$50
Anonymous
22 months ago
$45
Anonymous
22 months ago
GD
$25
Georgiana Denton
22 months ago
$30
Anonymous
22 months ago
Nicole Christine
23 months ago
1
1

I just want to say everything will be ok!!!.. I am 36 years old and was born with gastroschisis.. you will be fine and so will she.. I have three beautiful children.. zero complications while pregnant.. and outside of being in the NICU for a few weeks after I was born, along with a couple of surgeries and no belly button all is well ( ok.. really ugly scar.. but again it was 36 years ago..surgical technologies are so much better now.. I bet she will even be able to have a real belly button..) Try to stay positive and not let all the "what if's" make you crazy!

+ Read More
Char Downs
23 months ago
1
1

Hey guys! Just a quick note: Keep fighting and stay positive. My daughter's story in on youtube called Hannah's Gastroschisis Story Part 2. It's old, but relevant. She's 6 years old now and doing amazingly. Every year she gets better and better. We were told that she had a range of issues and offered termination a few times. Check out the video if you can :) From one gastroschisis family to another; You are in our thoughts.

+ Read More
Kari Barwick
23 months ago
1
1

My grandson was born with gastrochisis. He was in the NICU for 46 days. He is 7 years old now and you would never know he was born with a problem, except by looking at where is belly button would've been.

+ Read More
Derek Mardis
23 months ago
1
1

My Daughter had this 13 years ago, the is on the dance team at her junior high.. no problems, have faith in God, and everything will be fine. You will spend about a month in NICU.. waiting for baby to recover.. be patient.. after it is over it will be a little scar.. and he can do anything he wants later in life..

+ Read More
Christy Taylor
23 months ago
1
1

My first-born daughter was born in 1987 with gastroschisis, 5 weeks early (once her lungs were developed) via C-Section and stayed in NICU for 5 weeks. This is survivable. There will be things you'll always need to watch for, but with great medical care, you're baby will survive and thrive. Prayers to your family.

+ Read More
Katie Ruru
23 months ago
1
1

Hello there I was born with this 30 years ago if you have questions or just want to chat please contact me, I have lived a great life thanks to the doctors who saved me when I was born this was unknown to many people x

+ Read More
Michelle Booth
23 months ago
1
1

Hello I gave birth to a baby girl 3 months ago! Inbox me for info if you like. Royal children's hospital are amazing!

+ Read More
Sonia Knights
23 months ago
1
1

Hi darling I gave birth to my gastroschisis girl only 5 short weeks ago, there is VAPS they will reimburse you for your travel and accommodation is free. Iv inboxed you if you want to talk to someone, wishing you the best of luck xo

+ Read More
Kim Robey
22 months ago

Hi, I just wanted to wish you guys all the best. I know it's hard but try and stay positive and strong. My son was born with gastroschisis 5 years ago, and after 2 operations and 8 weeks in NICU he finally made it home and is doing perfectly fine today. Can you ask to speak with a social worker from the hospital? We had a lovely one in Sydney who helped us out with finding accommodation close to the hospital (as we also had our 2yr old daughter at the time) There is a scheme called IPTAAS which you might also be eligible for to help out with travel costs. Sending prayers your way xx

+ Read More
Lisa Green Delaney
22 months ago

My daughter was born with this 25 years ago. Please feel free to reach out to me if you have any questions. This is very hard to deal with but please know you are not alone. Lisa

+ Read More
Maria Stamatakos
22 months ago

Keep up with the good work darling, our prayers are always with you, great to see the donations coming in! Lots of love cousin maria and Auntie Militsaxxx

+ Read More
Maria Stamatakos
23 months ago

All the best for tomorrow darling. We love you and have you in our prayers, love cousin Maria and Auntie Militsaxxx❤️❤️❤️❤️

+ Read More
Ebony Toth Littlewood
23 months ago

My daughter who is 5 months now has larger omphalocele which is liver and intestines on the out side these babies are the strongest babies and they truely are fighters ... and I was told to terminate at 20 weeks ... my little girl won't be getting surgery until she's 4 so she'll have a everything on the outside till then and she stayed in rch for 2 months and now where back and forth due to infection hope everything goes well with ur Bub n stay strong xx

+ Read More
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