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Join Aria's Fight to Beat Cancer!

$44,666 of $150,000 goal

Raised by 409 people in 2 months
Created February 25, 2019
Team Aria
on behalf of Sandra LaBrum
One day when me and my daughter decided to go out for some ice cream, she met another sweet little girl named Aria and they hit it off. They quickly became great friends and have had many play dates and great moments together. From beach trips, to Chuck E Cheese days, to birthday parties, we've had some great few years together. Unfortunately, Aria (age 7) has been diagnosed with Stage 4 Liver Cancer and will need a transplant. She and her family desperately need our help. Please read about her story below, from her mom, and please help them with any amount you can. I've teamed up with Aria's parents, to start this Go Fund Me account in hopes of a little help to get them through this tough time... "This by far is the hardest message I've ever had to write. After 7 weeks of seeing multiple Doctors & Specialists, on Friday, February 8, 2019, my beautiful, sweet bébé girl was diagnosed with a hybrid of Stage 4 Hepatoblastoma & Hepatocellular Carcinoma (which is two forms of Liver Cancer). She is currently undergoing treatment at Children's Hospital Los Angeles. On December 21, 2018 Aria started having stomach pains, nausea & unexplained fevers. We went to several different pediatricians on multiple occasions, but all of the doctors chalked up her symptoms to traditional stomach pains, constipation, stomach flu, etc. We were not satisfied with their assessments as her symptoms did not improve & were coupled by paleness, weightloss & fatigue. We decided to go to a GI Specialist. Aria then had multiple scans (ultrasounds, x-rays, MRI's, CT's, EKG's, biopsies, etc). They discovered multiple large malignant tumors on her liver diagnosed as pretext Stage 4 Hepatoblastoma & Hepatocellular Carcinoma hybrid. Pediatric cancers account for only 1-2% of all cancers. Hepatoblastoma is a very rare form of cancer that generally affects 3 year olds & younger which averages 1 in a million. Aria will be 7 years old on March 2nd which makes her much older than the average. The fact that she has a hybrid of 2 forms of liver cancer makes her case extremely rare. She is the 1st child at Children's Hospital Los Angeles to be diagnosed with this hybrid condition & one of only 11 children within the past 10 years to be suffering from these horrible diseases. Given the extent of the disease to her liver, she must undergo a transplant. Approximately 60 to 70% of her liver is consumed by these 2 awful diseases.  Her current treatment plan consists of 3 blocks of Chemotherapy (Cisplatin & Doxorubicin) followed by an evaluation for transplant eligibility. In order for her to be eligible for a transplant she must not have any metastasizes in her body. Currently her lungs are clear, thank the Lord. However, there is a suspicious lymph node in her esophagus. The doctors are hoping it's unremarkable but will not know for sure until further testing is done & chemotherapy treatments continue. If she's found eligible, a transplant will occur. Following transplant recovery, she will need to undergo 3 more blocks of Chemotherapy & be on immuno-suppressants and antibiotics for life. This the beginning of a long and rough journey ahead of us which we are determined to fight and succeed.  Many people have asked how they can help. Aria is B+ blood type. If anyone would like to donate blood, you can come to Children's Hospital LA and bank blood on her behalf as needed for transfusions. She has already needed 1 transfusion since we have arrived at the hospital. Other ways you can help... medical expenses are astronomical. For example, for just 1 of the medications she has to take - the cost of just 1 dose/1 injection is $10,000.00 per injection.  We have lengthy hospital stays, medical equipment, medications, chemotherapies, transplant, food, parking, gas, etc.  Any donation, no matter how big or small , is EXTREMELY appreciated! Thank you so much for all of your help, love, good thoughts,  prayers, & support. We truly appreciate it from the bottom of our hearts."
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I am sooo happy to announce that as of 6:14 PM tonight, ARIA IS OFFICIALLY ON THE TRANSPLANT WAITING LIST!!!! Praise the Lord!!!

We are sooo incredibly overcome with joy & so extremely excited at this wonderful opportunity for a second chance for our amazingly beautiful, loving & smart Unicorn Princess, Aria Lucette LaBrum!!

Thank you again sooo very much to everyone who has prayed with us, prayed for us, messaged, visited, checked in, ran/walked in her honor, fundraised/donated to her medical expenses & shared her story on social media, etc. All of this truly means the world to our family!! God is definitely hearing all of our prayers!!

We ask that you please continue to pray for Aria for a healthy & compatible donor for transplant, that her hearing & vision are restored, that her pain goes away and for total & complete healing of her precious little body.

Any & all good thoughts, vibes, love, prayers and support are greatly appreciated as well!! If you are able, we would be forever grateful If you are able to donate to her ever rising medical costs using the options below &/or if you would be so kind as to please share this on your social media. Thank you so very much & God bless you all!!

Venmo

PayPal

or GoFundMe

#TeamAria #AriaLaBrum #cancersucks #unicorn #princess #chla #warrior #unicornprincess #prayersforAria #AriaStrong
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At 10:55 am today we received some wonderful news!! Aria has been officially approved for a Liver Transplant!! In addition Aria's AFP has gone from 347 to 187!! Hallelujah, praise the Lord!! We are completely overjoyed, relieved & excited that they have expedited this request, as we were told the process can usually take several weeks. Now we are awaiting a call informing us when Aria will been officially listed.

Once she is officially listed on the Transplant List, a donor could be become available at any point in time. Therefore, the Transplant Team & Oncology Team will determine the best course of action at that time, since she is currently in the middle of a Block/Cycle.

Aria is now in the Consolidation Phase (even though she hasn't removed the cancer from her body yet). She has spent the past 2 days getting new Chemotherapy treatments for her 4th Block/Cycle. Instead of Cisplatin, she is now taking Carboplatin. She is still continuing with the Doxorubicin & Zinecard as well. These cycles are only 2 consecutive days of treatment for a 21 day Cycle. Then a new Cycle begins. She's scheduled for a total of 3 Cycles of therapy in this Phase. She's been having stomach pains from the Chemo but overall is in better spirits on this new slightly less aggressive Chemo medication than her previous medication.

Since our last update regarding Aria's hearing, we have noticed even more hearing loss We are scheduled for an ENT appointment next week to receive clearance for hearing aids. Unfortunately with the platinum-based Chemotherapy treatments she's on, hearing loss is more than likely permanent & can continue to further decline for up to 10 years post treatment. She has had a significant loss since her previous Audiology Exam. If her hearing loss continues beyond a certain range, she may need cochlear implants The insurance company is currently looking into whether or not our policy offers any benefits for hearing aids or alike technology.

In addition, Aria appears to have had some issues with her eyesight. A few days ago she was experiencing blurry/double vision. Her Oncologist said that one of the anti-emetic medications she's on can cause double vision. Once her treatment has completed & she has fully recovered from transplant, they will allow us to have her eyesight checked with her Pediatrician to see if any interventions are needed.

We are anxiously awaiting the call that Aria is officially on the Transplant List & looking forward to getting her some intervention with her hearing and vision. We will keep everyone updated as best as we can.

Last week before starting her next Phase of treatment, Princess Aria wanted to play dress up. She was eager to try on her Baptism Dress from a year and a half ago. She was happily surprised to discover it still fit & in fact is loose on her. It was so nice to see her sweet smiling face having a little fun through all of the chaos. She truly is my incredibly brave Unicorn Warrior Princess!!

We wish to say a very gracious thank you again sooo very much to everyone who has prayed with us, prayed for us, messaged, visited, checked in, donated to her medical expenses, shared her story on social media, etc. You have no idea how much it truly means to our family!! God is definitely hearing all of our prayers!!

We ask that you please continue to pray for Aria for a healthy & compatible donor for transplant, that her hearing & vision are restored, that her pain goes away and for total & complete healing of her precious little body.

Any & all good thoughts, vibes, love, prayers and support are greatly appreciated as well! If you are able, we would be forever grateful If you are able to donate to her ever rising medical costs using the options below &/or if you would be so kind as to please share this on your social media. Thank you so very much & God bless you all!!

Venmo

PayPal

or GoFundMe

#TeamAria #AriaLaBrum #cancersucks #unicorn #princess #chla #warrior #unicornprincess #prayersforAria #AriaStrong
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We just got a call from Aria's Oncologist. The lymphnode biopsy results came back and...NO CANCER WAS FOUND!!! Praise jesus!!! I am so utterly and completely over the moon right now!! This is one huge hurdle that was standing in our way for Transplant eligibility. Now Aria's Oncology Team will meet with the Transplant Team to determine next steps.

As we were being transported from the PACU to the Oncology floor after surgery last night, we passed a huge containment box on the ground in the middle of the hallway. Guess what it was? An organ transplant pod!! Granted it was empty. But I have never seen one before. It was pretty amazing. I thought to myself, hopefully this is a little foreshadowing...and how poetic that it was transport taking us through to the "next phase".

God is clearly hearing all of our prayers & is so gracious!! Thank you all so very much for all of your continued love, prayers & support!! We are overcome with joy and excited to enter this next phase of her treatment & journey.

We ask that you please continue to keep Aria in your prayers that she will be eligible for a Liver Transplant so she can have her best chance at living a full life.

Any & all good thoughts, vibes, love, prayers and support are greatly appreciated as well! If you are able, we would be forever grateful If you are able to donate to her ever rising medical costs using the options below &/or if you would be so kind as to please share this on your social media. Thank you so very much & God bless you all!!

Venmo

PayPal

or GoFundMe

#TeamAria #AriaLaBrum #cancersucks #unicorn #princess #chla #warrior #unicornprincess #prayersforAria #AriaStrong
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After a very long and exhausting day, Aria is in recovery. The surgeon was able to remove all of the lymphnode in question, thank the Lord. Now we have to wait for results. We're hoping to hear back within the next 3 days.

Originally all of the Dr's, Head Surgeon, Anesthesiologists, Nurses, etc were on the fence about going through with the procedure today, given that she developed a cough and cold. After further discussion, they decided the benefits outweigh the costs and it was imperative that she have the biopsy done as soon as possible so they can determine next steps in her treatment plan. Miraculously, since she came to, it appears all of her cold symptoms have disappeared!!

Aria has been in a lot of pain. Therefore she's currently on morphine in an attempt to keep that under control. However, she was excited to eat some food & requested chow mein from Panda Express, popcorn & cranberry juice; all which she enjoyed snacking on as soon as she was able.

We were very pleased with the Surgeon who took care of Aria. He was very thorough and kind. Ironically, he too has a young daughter named Aria. In addition, it is very clear that my late Father has been here with us every step of the way today. When we first arrived, we were greeted by my Mom (Aria's Guita), Billy's Mom (Aria's Nana), Uncle Pat, Tia Maggie, Aria's great Grandpa Papa Rod, Great Grandma Kay, & our newfound friend, John. Tia Maggie had some gifts and Aria was able to choose one to open before we got whisked away. It was a plushie ty lamb. Aria opened the heart tag and said "Mommy, her birthday is April 15th!!" This date is significant for 2 reasons, 1) it was my late Daddie's birthday & 2) it was the original date Aria was due to be born. Then they escorted us to the Surgical Admitting room, "Room #4" (the 4th month of the year, April). Once we were finished there, we were whisked away to the preop bay," Bay #4". Once Aria completed her surgery she was sent to the PACU. This time she was in "Bay #15". As soon as she was awake enough to be transported to her hospital room, we were met by her nurse for the evening, who's name just so happens to be "April"!

I'd like to think that all these little coincidences are subtle nods to my Daddie letting us know he's here with us, as well The Father who is also making His presence & love known.

Tomorrow we are meeting with Aria's Primary Oncology Team to discuss today's procedure and to determine next steps for her next course of treatment. I'm hoping they may have some preliminary results for us. No guarantees though. We are anxiously awaiting the results of this biopsy and hope and pray that it will be benign.

We wanted to say thank you so much to everyone who has prayed with us, prayed for us, messaged, visited, checked in, donated to her medical expenses, shared her story on social media, etc. We ask for your continued prayers for her complete healing, that her esopheageal lymphnode is benign & unremarkable, and that she is eligible for this lifesaving liver transplant she so desperately needs.

Any & all good thoughts, vibes, love, prayers and support are greatly appreciated as well! If you are able, we would be forever grateful If you are able to donate to her ever rising medical costs using the options below &/or if you would be so kind as to please share this on your social media. Thank you so very much & God bless you all!!

Venmo

PayPal

Or GoFundMe

#TeamAria #AriaLaBrum #cancersucks #unicorn #princess #chla #warrior #unicornprincess #prayersforAria #AriaStrong
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$44,666 of $150,000 goal

Raised by 409 people in 2 months
Created February 25, 2019
Team Aria
on behalf of Sandra LaBrum
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