101
101
31

Saving Eliza Continued

$2,115,870 of $3.0M goal

Raised by 397 people in 19 months
Every single dollar raised here has, and continues to go to Cure Sanfilippo Foundation, a 501c3 nonprofit (tax ID: 46-4322131).  Donations are tax deductible.  Cure Sanfilippo has a mission to advocate and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome.  In short, we fund research to save children via treatments & clinical trials.  No dollars ever go to or for any particular family or child.   We tell individual stories, for the greater cause and mission....which is to cure this terrible fatal brain disease in little children, often referred to as a Childhood Alzheimer's.  Our deepest and humble thanks for visiting this page and considering support.  You are our hero!   Glenn O'Neill (Dad, Donor and President of Cure Sanfilippo Foundation)  curesff@gmail.com (anytime)
---------------------------------------------------------------------------------------------------------------------------------------------


Thank you for visiting this new campaign to help us continue our efforts.   Orginal Story is down below.

Happy 8th Birthday Eliza!!   A 10 day, $100,000 goal to help save and better the lives of innocent children.  If the new goal set here is reached, we will do it!

You never stop fighting for your child.  Ever.  I'll be honest, I'm nervous this year.  It's hard to know how many supporters are out there, still following...still fighting with us to help Cure Sanfilippo Syndrome.  We have only a few more days to reach our Annual Drive goal to fund urgent research* for children, in honor of Eliza's 8th Birthday on Nov 16th.


We think Eliza is doing well overall, and can't believe our little girl will be 8 years old.  She is happy most of the time.  We cherish every second of time with her, and her loving big brother.  The HOPE we have is thanks to your support!  A VIDEO update is below and we hope you'll take a few minutes to watch.   

And after you do, would you be one of our $100 donors this year (although every amount helps)? 


The truth is, we will need YOUR support to reach this goal.  Literally, children's lives hang in the balance.

* There are 3 current projects in need of urgent funding, with a path to clinical trials for more children: 1) for enzyme replacement,  2) gene therapy, and 3) mesenchymal stem cell to repair the brain. 

You can support here, or by sending a check made out to Cure Sanfilippo Foundation, PO Box 6901 Columbia, SC 29260. 

Thank you for your kindness, compassion, and empathy.  Our humble and deepest thanks is from all Sanfilippo families.

Glenn O'Neill (Eliza's Dad)
Cure Sanfilippo Foundation www.CureSFF.org
curesff@gmail.com (anytime)
Latest Foundation update: www.CureSFF.org/update

#Happy8thEliza  

1,000 supporters at $100 = GOAL REACHED!  Will you be one?

SHARE     SHARE    SHARE

As always, all funds go toward the mission of our non-profit 501c3 Cure Sanfilippo Foundation (Tax ID: 46-4322131), which is to advocate for and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome.  Donations are tax deductible.

Our Story

It all started back in 2014, with this 3 minute video:  

Now, we truly believe we are witnessing a miracle.  What else can explain more than 36,000 people already donating more than $2 million dollars, over the past 2 years, to fund a chance at life for our daughter Eliza and other children. Diagnosed 3 years ago with Sanfilippo Syndrome —a terminal disease sometimes called “Childhood Alzheimer's”— Eliza has now become the first child in the world to have been given this new treatment!  The second child has also been treated and in the coming months & through next year, a few handful more children around the world will be part of this groundbreaking gene therapy clinical trial that is already showing promising results.

The WORLD decided to rally around our little girl for this greater cause, and she’s become the face of this disease…a symbol for Sanfilippo parents everywhere not to give up HOPE.

 And we’re not giving up on them either.

Many more children are still fighting, and we won’t stop until every last one of them is afforded a chance at life. There are more children that need this treatment than there are available spots in clinical trials, and these precious little ones can’t wait. Given the rapidly degenerative nature of Sanfilippo Syndrome, not receiving a treatment, and soon, is a death sentence.  Can you imagine being one of these parents?

Since treatment, we see a new light in Eliza’s eyes— she is connecting with us in a way we thought was gone forever. She is working to regain the skills the disease stripped away in the 6 and half years it tore through her body.  She is a fighter!  Other Sanfilippo children deserve this chance too. At this stage, funding is one of the only things that will accelerate research to give these children a chance. Money doesn’t make the world go round, but it does bring medical treatments faster to children who are dying.

Our goal is to reach $4M here to help make this happen. Please donate TODAY to give these beautiful Sanfilippo children a rightful chance at life.  Please share so the world can hear their collective voices.

Our hearts are forever thankful for giving our daughter Eliza and others a chance at life.  We are reminded of one quote from a special supporter that has helped us through the hard days: “Keep the faith, and the faith will keep you”.  We believe!

Glenn, Cara, Beckham and Eliza (The O’Neill Family)



23989990_15057797940_r.jpeg
Learn more about Sanfilippo Syndrome here  www.CureSFF.org/about-sanfilippo

Meet just some of the Sanfilippo families here:  www.CureSFF.org/meet-the-families


Baby Sadie
23989990_15057798300_r.jpeg
Paisleigh and the Butler Family
23989990_15057798730_r.jpeg
Rowen and the Fernandez Family
23989990_15057799150_r.jpeg
Izzy and the Jurado Family
23989990_15057799350_r.jpeg
Keira and the Esposito Family 
23989990_15057799700_r.jpeg
Parker and the Talbert Family
23989990_15057799930_r.jpeg
Abby Grace and the Ferguson family
23989990_15057800160_r.jpeg
All funds go toward the mission of our non-profit 501c3 Cure Sanfilippo Foundation (Tax ID: 46-4322131), which is to advocate for and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome.  We are out to end this disease and help ensure treatments for as many children as possible along the way.  We must reach our goal and mission before it is too late for these beautiful children. With a donation and a share, you can make the difference!  Action saves lives.  Action brings miracles.  Our daughter Eliza is proof of that. 

 Donations are tax-deductible.  

Other donation options: 
--  www.CureSFF.org (click Donate)
--By check: Cure Sanfilippo Foundation, PO Box 6901, Columbia, SC 29260

 Follow the latest at  www.facebook.com/ElizaOStory

Special thanks to the artists, who worked free of charge to help us:
Video by the amazing Benjamin Von Wong
Photograpy by the talented Anna Tenne Photography
+ Read More
Update on 5 Year Anniversary. I apologize for not updating here more frequently.
.
Today is a very special day for us. On April 2nd, 2014, the #SavingEliza video was released. While it seems like a lifetime ago, it set in motion a movement, now 5 years and counting, destined to help treat, stop and one day cure Sanfilippo Syndrome. The response to the video was immediate, and our forever THANKS is to the millions who took action on this video. Just LOOK what you've done!
.
---Saving Eliza video raised $500,000 in the first 15 days after release, every dollar going to fund research for Cure Sanfilippo Foundation in the effort to help ALL children with the disease.
.
---In the summer of 2014, Saving Eliza becomes the first GoFundMe campaign EVER to reach the $1 Million-raised raised mark
.
---In late 2014, Saving Eliza becomes the first GoFundMe campaign EVER to reach the $2 Million-raised mark
.
---Coverage on the Today Show, @Good Morning America, People Magazine, @The Doctors TV Show, and hundreds of others...
.
---Today, more than 65 core families are part of the Foundation and thanks to them, Cure Sanfilippo is raising millions for research each year.
.
--- Cure Sanfilippo Foundation, started in late 2013, has now raised more that $7.5 Million through grassroots fundraising efforts
.
---Cure Sanfilipppo has funded more than 20 research grants around the world and helped fund 2 clinical trials that are treating children. From our research projects, we have more trials in the pipeline and coming.
.
---Cure Sanfilippo's goal is to raise an additional $8 Million over the next three years to give more children a chance at life and to reach proven, effective treatments for future generations. Saving Eliza lives on through this mission.
.
What started as a shot in the dark idea in early 2014 (a viral video), to try to spread awareness for the worst disease no one had ever heard of, 5 years later, has turned into a national non-profit for Sanfilippo Syndrome, supporting this urgent research to help children.
.
And personally for our family, Eliza's days are mostly happy ones, She is still running, eating, and laughing. And even though she no longer talks, her spirit and eyes tell the story. Her healthy big brother Beckham is doing well overall and he is his little sister's biggest fan. While not all fairy tales have the perfect happy ending, we believe this is a miracle story, nonetheless. It's an honor, a passion, and a privilege to be part of ensuring future parents and children with Sanfilippo Syndrome will not have the same fate.
.
I hope you might consider sharing this video again on the 5th Anniversary of Saving Eliza. It's a very special time for us.
.
Everything above is because of you and your kindness for the most vulnerable children in need. You are our inspiraton to keep going. ❤️ Thank you!!!
.
Glenn (Dad, Donor and President of Cure Sanfilippo)
curesff@gmail.com (anytime!)
#CureSanfilippo
.
Benjamin Von Wong, Cara Parsons O'Neill, Dragos Rezeanu, Karen X. Cheng
+ Read More
[New Eliza video] Well, Eliza has finished her 2 years in the clinical trial. It's emotional and surreal...and it's thanks to you. Other little kids have been treated as well, and that is also thanks to you.

Eliza is doing pretty well overall, and we are so thankful. As we continue our fight, there are many more kids who haven't gotten a chance against this terrible disease, Sanfilippo Syndrome.

If there is one thing you could do, in honor of Eliza, her brother, and Mom & Dad, it would be to support the new viral VIDEO campaign for Carter at http://www.SavingCarter.com. If we can help this new campaign go VIRAL, it can fund another clinical trial for children, and a new therapy that could benefit Eliza and many other kids in the future.

All our LOVE for those new followers, and those who have stood with us from the beginning, and continue to.

Overwhelmed, emotional, but loved & full of HOPE always . Thank you. Glenn, Cara, Beckham & Eliza O'Neill

PS- reminder to watch, share, and support http://www.SavingCarter.com if you are able please

Latest Cure Sanfilippo update at www.CureSFF.org/update
New Eliza Video - May 2018
+ Read More
$90,000 raised for Eliza's Birthday campaign, thanks to you!!

Eliza had a wonderful and happy day on her birthday. Well, in reality we celebrated three different times, but that's OK...more cake! Lots of smiles and laughs.

You helped us raise over $90,000 in just 10 days! Again just truly humbled at your loyalty and support for our cause. These dollars will go to research projects with a path to clinical trial treatments for children. We truly appreciate it, in the efforts to Cure Sanfilippo Syndrome. Thank you so much for caring! Cara, Glenn, Beckham and Eliza!
Big Brother loves his sister
At the Apple Orchard
+ Read More
Earlier today, a supporter commented "The miracle happens in the moment".  That's such a great reminder.  This video below is from just last week. We are blessed and soak in every single second. 

Happy 8th Birthday today to Eliza!  $75,000 has already been raised and our final push is to reach $80,000 for her 8th birthday before midnight.

Tonight our hearts overflow, and we are strengthened and inspired thanks to you.

This is our final update on the campaign. Goodnight and thank you for your kindness, compassion, and empathy.

The O'Neill Family

#HOPE #SavingEliza #CureSanfilippo #SaveChildren #GivingFamiliesHOPE You are making a difference. 
Blessed
Happy 8th Birthday Eliza!
+ Read More
Read a Previous Update

$2,115,870 of $3.0M goal

Raised by 397 people in 19 months
Funds raised will benefit:
Cure Sanfilippo Foundation
Certified Charity
+ Learn More
Columbia, SC
EIN: 464322131
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
  2. After the deduction of payment processing fees, PayPal Giving Fund delivers the funds it receives to the chosen charity on a monthly basis.*
* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$10
Anonymous
15 days ago
$25
Anonymous
18 days ago
$25
Rick Eckert
19 days ago
$10
Anonymous
20 days ago
KS
$250
Kathy Spear
20 days ago
$20
Anonymous
20 days ago
$10
Anonymous
20 days ago
KF
$50
Krzysztof Falkowski
21 days ago
MP
$50
Mary Patzin
21 days ago
$50
Anonymous
21 days ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.