#PrayForBruno battles #DravetSyndrome
Donation protected
Bruno suffers from Dravet Syndrome .
Bruno Has been seizing since he was 3 months old and it has caused lots of regression at his age! He requires full time attention.
Dravet Syndrome is a very rare condition to manage especially that Bruno fits all the description described with Dravet. He is at a baby level in a 7 year old body. All you do with a baby, it's what I do with bruno. I must feed him, change his diapers, guess when he's in pain or satisfied, carry him everywhere I go ( has no sense of danger so it's carrying dead weight) and on top of this I must try to control his seizures and triggers ! He's very photo Sensitive and pattern sensitive which cause more seizures !
He can never be left unattended as you never know what patterns around him will make him seize. He can never be left unattended As he is at risk of falls! His condition is very delicate and fragile and this has caused us to be well known in the hospital ! While he sleeps he's had seizures turning him blue requiring oxygen and to be suctioned ! His seizures have lasted anywhere over 10 min easily and with Dravet syndrome , seizures over 10 min are common. My biggest fear is to lose him during a seizure .
With this fundraiser I can get help to purchase his much needed wheelchair van, pay for his medical bills and meds not covered by insurance , pay for special equipment I need for him , and just be able to care for him with his medical needs.
as much as I love the fact I was able to purchase a used wheelchair van, it’s been a hassle working on the used van as it’s been giving me mechanical and electrical problems . I need to fix it or buy a better van that will last longer as Bruno is growing and getting heavier. As a single mom solely relying on child support it's very hard to do this. I wish I could work full time but with my son’s condition , it's very hard . I had to give up my job and any future plans I had , once my son was diagnosed with DRAVET SYNDROME.
I hate begging for donations but I need my son to be safe ! I will never ask for luxury just comfort for safety. We live in a small 2 bedroom 1 bath home with grandma and grandpa so I'm blessed to have them w me helping me with angelene and bruno. However, they can only do so much at their age . Any little help I can get it's truly appreciated.
I can't unfortunately rely on anything else more than what I already have as I'm alone as a single mom. A lot of you have donated and supported and I can't tell you how thankful and blessed I am for all your support! Pls, any little help I can get, I truly appreciate it. If I were to raise more than what I need I promise you I will make this money go to where it's needed too. I know too many parents needing support & trust me , If i could , i would !
I want the best for my son while he's with me and big sis in this world ! I want them to be happy with whatever I'm able to provide.
I thank you dearly once again. Blessings today and always.
Thank you.
www.gofundme.com/prayforbruno
www.paypal.me/prayforbruno
.https://www.facebook.com/642647459129430/posts/1592732977454202?s=1776135429&v=i&sfns=mo
Bruno Has been seizing since he was 3 months old and it has caused lots of regression at his age! He requires full time attention.
Dravet Syndrome is a very rare condition to manage especially that Bruno fits all the description described with Dravet. He is at a baby level in a 7 year old body. All you do with a baby, it's what I do with bruno. I must feed him, change his diapers, guess when he's in pain or satisfied, carry him everywhere I go ( has no sense of danger so it's carrying dead weight) and on top of this I must try to control his seizures and triggers ! He's very photo Sensitive and pattern sensitive which cause more seizures !
He can never be left unattended as you never know what patterns around him will make him seize. He can never be left unattended As he is at risk of falls! His condition is very delicate and fragile and this has caused us to be well known in the hospital ! While he sleeps he's had seizures turning him blue requiring oxygen and to be suctioned ! His seizures have lasted anywhere over 10 min easily and with Dravet syndrome , seizures over 10 min are common. My biggest fear is to lose him during a seizure .
With this fundraiser I can get help to purchase his much needed wheelchair van, pay for his medical bills and meds not covered by insurance , pay for special equipment I need for him , and just be able to care for him with his medical needs.
as much as I love the fact I was able to purchase a used wheelchair van, it’s been a hassle working on the used van as it’s been giving me mechanical and electrical problems . I need to fix it or buy a better van that will last longer as Bruno is growing and getting heavier. As a single mom solely relying on child support it's very hard to do this. I wish I could work full time but with my son’s condition , it's very hard . I had to give up my job and any future plans I had , once my son was diagnosed with DRAVET SYNDROME.
I hate begging for donations but I need my son to be safe ! I will never ask for luxury just comfort for safety. We live in a small 2 bedroom 1 bath home with grandma and grandpa so I'm blessed to have them w me helping me with angelene and bruno. However, they can only do so much at their age . Any little help I can get it's truly appreciated.
I can't unfortunately rely on anything else more than what I already have as I'm alone as a single mom. A lot of you have donated and supported and I can't tell you how thankful and blessed I am for all your support! Pls, any little help I can get, I truly appreciate it. If I were to raise more than what I need I promise you I will make this money go to where it's needed too. I know too many parents needing support & trust me , If i could , i would !
I want the best for my son while he's with me and big sis in this world ! I want them to be happy with whatever I'm able to provide.
I thank you dearly once again. Blessings today and always.
Thank you.
www.gofundme.com/prayforbruno
www.paypal.me/prayforbruno
.https://www.facebook.com/642647459129430/posts/1592732977454202?s=1776135429&v=i&sfns=mo
Organizer
Jacel Delgadillo
Organizer
Miami, FL
