Beau Sullivan needs your help

Our perfect son Beau Francis Lee Sullivan was born August 22, 2017. We knew baby would be born with clubfoot  at our 5 month ultrasound and that this little quirk would be a piece of cake to handle and oh boy if we only knew how right we were about that! Along with his little feet it became apparent after Beauford was born that he had (bpes) or little eye syndrome a very rare genetic mutation. Worried as first time parents we took Beau to an eye specialist who determined an eye lift would be Beau's ticket to full vision and thus grow and thrive. Surgery day came at Sacred Heart in Spokane and it was discovered that Beau was unable to be intubated (impossible in an emergency situation for a breathing tube to be placed) the doctors found a way for this procedure to work  this time but next time we most likely would not be so lucky. After being advised to stay many tests were done and it was determined he had been aspirating his food. The only way we could make little Beau safe was if a g feeding tube was placed and a tracheotomy was performed. We have been in the hospital for over 3 weeks and are soon to be discharged. Beau's Dad Zach works while I stay at home with Beau. While insurance covers most costs it does not cover Dad's lost wages and trips out of town. We thought we had lots of appointments with clubfoot but now having a trached child with a feeding tube there is tons. Zach and I have stayed positive throughout this unexpected circumstance but its pretty easy to do with a smiling adorable baby but truly we believe we have a guardian angel on our side and that everything happens for a reason. We are proud people and don't ask for much, but when it comes to our beautiful son we have made an exception. We are asking for your help in making our transition back to home easier. Anything helps and we appreciate it more than you know.

When it rains look for rainbows!