Emily Walker’s Journey
Donation protected
Campaign link gofundme.com/4e2vc-emilys-journey 
As Emily’s Great Grandmother. I am setting up a go fund me page to help ease the financial and medical 
burden her family faces. The following are words from Emily’s Mom, Kailani “Born September 14th, 2018 Emily was 8lbs 11 ounces. She passed her newborn screening and they sent us on our way with a healthy little girl. Around a month old she started developing red cheeks and severe cradles cap! Going to her pediatrician ( same one who saw her the day she was born) he prescribed ketoconazole 2% shampoo and hydrocortisone topical steroid. The shampoo seemed to just irritate her head so after the second wash I d/c it. The topical I applied once and stopped because my view is she’s a baby with gentle skin and topical steroids just seems excessive for red cheeks. Plus she started developing red bumps all over her body. Her doctor said it is just eczema and it’s normal. Over the next month she got worse, her whole body covered in oozing patches. Her face raw and angry with sores. Her skin shed like a snake. Her pediatrician would not listen to my concerns with how aggressive her skin was getting so I ultimately switched doctors. I switched her doctors three times. During which she saw a dermatologist who was a complete joke! Said nothing and barely looked at her! Her new pediatrician recommended topical steroids because her skin was so severe and by that point I just shut up and listened to the doctor. The steroids seemed to help calm her flares but they would never go away. He referred her to a allergist and to a pediatric dermatologist. Mind you during this whole time of seeing new doctors and allergist and back and forth trying to get answers, Emily was barely sleeping, crying all the time, itching until she bled! I held her, for the most part, consistently for almost her whole 7 months of life. The allergist tested for allergies and immunodeficiencies. Which came back with allergies to egg and milk proteins and low immunoglobulin g. Allergist had no real concerns with these answers and told us to continue the topical steroids and to start bleach baths. He also suggested to cut out her allergies from my diet. So I did! I basically went vegan for over three weeks. I was determined to do anything for my baby. Still with that her skin did not improve. The allergist tested her immunoglobulins again a month later, only to see that her immunoglobulin g had lowered again, but of course not enough to concern him! Finally as we are waiting to get in to see the specialist dermatologist in Seattle I tell her pediatrician “ she needs to see him now!” Because her legs had looked worse then ever before. Her original appointment was not until June, almost 8 weeks away! So I get a call Tuesday April 23 to hear they can see Emily Friday! So of course I take it! We see this dermatologist and he thinks it’s more than just eczema( in my mind I’m thinking “ flipping finally!”) and he wants to run some labs and see us in a few weeks. As we are waiting to get Emily’s blood drawn, his assistant runs out and asks us after her labs are drawn if we can wait 30 mins so he can look at something then we can go. Of course we say “okay”. 30 mins after her test he pulls us in a room and tells us her sodium is so low she should be seizing and not responsive. He admits her and the process of her ICU stay began. “
Little Emily is stable at this time in ICU , Seattle’s Children’s Hospital. She is on a ventilator to breath for her , a feeding tube and a dialysis machine to work as her kidneys. A lot has changed for her and we don’t have answers as to why her body is doing all of this. Emily has an older sister Kaia. She is 6 years old and staying with a friend and neighbor while her parents remain with Emily in the hospital. The family is devastated, but strong and hopeful. It has also been a financial strain, especially not knowing exactly what the prognosis is for Emily , how long she will be hospitalized and what the future medical care required for her will be. At this time Emily’s parents find it to difficult to share current pictures of Emily on the ventilator. Any donation will be appreciated.
As Emily’s Great Grandmother. I am setting up a go fund me page to help ease the financial and medical burden her family faces. The following are words from Emily’s Mom, Kailani “Born September 14th, 2018 Emily was 8lbs 11 ounces. She passed her newborn screening and they sent us on our way with a healthy little girl. Around a month old she started developing red cheeks and severe cradles cap! Going to her pediatrician ( same one who saw her the day she was born) he prescribed ketoconazole 2% shampoo and hydrocortisone topical steroid. The shampoo seemed to just irritate her head so after the second wash I d/c it. The topical I applied once and stopped because my view is she’s a baby with gentle skin and topical steroids just seems excessive for red cheeks. Plus she started developing red bumps all over her body. Her doctor said it is just eczema and it’s normal. Over the next month she got worse, her whole body covered in oozing patches. Her face raw and angry with sores. Her skin shed like a snake. Her pediatrician would not listen to my concerns with how aggressive her skin was getting so I ultimately switched doctors. I switched her doctors three times. During which she saw a dermatologist who was a complete joke! Said nothing and barely looked at her! Her new pediatrician recommended topical steroids because her skin was so severe and by that point I just shut up and listened to the doctor. The steroids seemed to help calm her flares but they would never go away. He referred her to a allergist and to a pediatric dermatologist. Mind you during this whole time of seeing new doctors and allergist and back and forth trying to get answers, Emily was barely sleeping, crying all the time, itching until she bled! I held her, for the most part, consistently for almost her whole 7 months of life. The allergist tested for allergies and immunodeficiencies. Which came back with allergies to egg and milk proteins and low immunoglobulin g. Allergist had no real concerns with these answers and told us to continue the topical steroids and to start bleach baths. He also suggested to cut out her allergies from my diet. So I did! I basically went vegan for over three weeks. I was determined to do anything for my baby. Still with that her skin did not improve. The allergist tested her immunoglobulins again a month later, only to see that her immunoglobulin g had lowered again, but of course not enough to concern him! Finally as we are waiting to get in to see the specialist dermatologist in Seattle I tell her pediatrician “ she needs to see him now!” Because her legs had looked worse then ever before. Her original appointment was not until June, almost 8 weeks away! So I get a call Tuesday April 23 to hear they can see Emily Friday! So of course I take it! We see this dermatologist and he thinks it’s more than just eczema( in my mind I’m thinking “ flipping finally!”) and he wants to run some labs and see us in a few weeks. As we are waiting to get Emily’s blood drawn, his assistant runs out and asks us after her labs are drawn if we can wait 30 mins so he can look at something then we can go. Of course we say “okay”. 30 mins after her test he pulls us in a room and tells us her sodium is so low she should be seizing and not responsive. He admits her and the process of her ICU stay began. “Little Emily is stable at this time in ICU , Seattle’s Children’s Hospital. She is on a ventilator to breath for her , a feeding tube and a dialysis machine to work as her kidneys. A lot has changed for her and we don’t have answers as to why her body is doing all of this. Emily has an older sister Kaia. She is 6 years old and staying with a friend and neighbor while her parents remain with Emily in the hospital. The family is devastated, but strong and hopeful. It has also been a financial strain, especially not knowing exactly what the prognosis is for Emily , how long she will be hospitalized and what the future medical care required for her will be. At this time Emily’s parents find it to difficult to share current pictures of Emily on the ventilator. Any donation will be appreciated.
Organizer and beneficiary
Lynda Robinson
Organizer
Boynton Beach, FL
Kailani Walker
Beneficiary