V.B.T Surgery for Phe

£19,943 of £55,000 goal

Raised by 168 people in 6 months
Created July 18, 2018
Thank you for looking at this page about 9yr old Phe and her VBT surgery
We are raising money for life changing scoliosis vbt surgery in Germany
Phe is a very active 9yr old that loves gymnastics.... Dance.... Theatre....swimming and riding her bike. Due to her scoliosis, the increasing deformities and medical issues it is causing,  these activities are becoming harder for her to do. Scoliosis has been an invisible illness for Phe until recently.
At 5yrs old Phe started falling over, falling off her bike, falling off the beam at gym. One day doing a handstand that she could no longer hold we realised her spine was curved. The NHS were amazing. In just a few months she was diagnosed  with early onset idiopathic scoliosis and was wearing a brace 23hrs a day. As we fell apart Phe took it all in her stride and adjusted with ease to brace wearing. Never complaining.  Despite wearing the brace the curve progressed as did the rib cage hump, trunk shift and protruding shoulder blade. With this came numb legs and issues with her internal organ. None of this is fun at such a young age.  With all this came the frustration that Phe is losing some skills she could once do with ease like lifting her arms above her head straight.
Now.... since may 2018 Phe spine and rotation has increased at an alarming rate. The NHS can offer metal rods meaning a lengthy operation and recovery. After this she wouldn't be able to do everything she wants. We don't want this for our child.
VBT hopefully will be available here on the NHS in a few years but too late for Phe.  VBT can only be done on a curve that is not too large. We are now getting near that range so don't have long to raise the money for Phe to go to Germany for surgery. Of course we would prefer not to be in this position but as we are we feel that as parents we need to provide Phe with a surgery that offers her the best childhood and future. 31429216_1532082079244708_r.jpegCost.... the cost of surgery is significant along with insurance, travel, accommodation, consultation fees and after care.  This is why we need to fundraise and quickly. As parents it is heart breaking to see the physical and medical issues our daughter has already been though. To see her unable to do what she loves.  We believe VBT will transform her childhood and future

. Thank you for reading. Please share.
We are arranging some local events to fundraise in the coming months.
Please help make our daughters dream of a great childhood come true.  No donation is too small. Every £1 will make a difference.
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Update 8
14 days ago
We have been thankful Betty brace has made it possible for Phe to have vbt surgery but we won't miss having Betty in our lives. Phe will be free to move like other children her age. Phe has worn all of these without complaint. It's now time to move on :) Counting down the days to surgery and a brighter future
Thank you .
betty brace
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Update 7
26 days ago
We are very excited to say with everyone's help we have raised enough to go for surgery. We leave for USA late january.
Phe is very excited to be having surgery and hoping for an amazing future.
We will update you more in February.
The fundraising will continue so we can fund physio long term and all follow up appointments.
Thank you so much for supporting our daughter
Merry Christmas xxxxxxx
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Update 6
2 months ago
Due to Phe's medical needs her German consultant has transferred her care to a colleague in USA.
This reduces our initial costs but increases greatly the travel and follow up costs.
Our fundraising was always for a 2yr treatment plan for Phe.
The change in consultant doesn't change our 2yr overall costs.
Thank you very much for supporting Phe so far and hope you will continue to support her.
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Update 5
3 months ago
Please come along with your friends and family . Join Phe for some cake. Bbq and fun :)
all welcome
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£19,943 of £55,000 goal

Raised by 168 people in 6 months
Created July 18, 2018
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