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V.B.T Surgery for Phe

£20,273 of £55,000 goal

Raised by 172 people in 10 months
Thank you for looking at this page about 9yr old Phe and her VBT surgery
We are raising money for life changing scoliosis vbt surgery in Germany
 
Phe is a very active 9yr old that loves gymnastics.... Dance.... Theatre....swimming and riding her bike. Due to her scoliosis, the increasing deformities and medical issues it is causing,  these activities are becoming harder for her to do. Scoliosis has been an invisible illness for Phe until recently.
At 5yrs old Phe started falling over, falling off her bike, falling off the beam at gym. One day doing a handstand that she could no longer hold we realised her spine was curved. The NHS were amazing. In just a few months she was diagnosed  with early onset idiopathic scoliosis and was wearing a brace 23hrs a day. As we fell apart Phe took it all in her stride and adjusted with ease to brace wearing. Never complaining.  Despite wearing the brace the curve progressed as did the rib cage hump, trunk shift and protruding shoulder blade. With this came numb legs and issues with her internal organ. None of this is fun at such a young age.  With all this came the frustration that Phe is losing some skills she could once do with ease like lifting her arms above her head straight.
Now.... since may 2018 Phe spine and rotation has increased at an alarming rate. The NHS can offer metal rods meaning a lengthy operation and recovery. After this she wouldn't be able to do everything she wants. We don't want this for our child.
VBT hopefully will be available here on the NHS in a few years but too late for Phe.  VBT can only be done on a curve that is not too large. We are now getting near that range so don't have long to raise the money for Phe to go to Germany for surgery. Of course we would prefer not to be in this position but as we are we feel that as parents we need to provide Phe with a surgery that offers her the best childhood and future. 31429216_1532082079244708_r.jpegCost.... the cost of surgery is significant along with insurance, travel, accommodation, consultation fees and after care.  This is why we need to fundraise and quickly. As parents it is heart breaking to see the physical and medical issues our daughter has already been though. To see her unable to do what she loves.  We believe VBT will transform her childhood and future
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. Thank you for reading. Please share.
We are arranging some local events to fundraise in the coming months.
Please help make our daughters dream of a great childhood come true.  No donation is too small. Every £1 will make a difference.
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Phe has hit her first bump in the road of recovery.
Unfortunately her body has not taken kindly to being in school.
We have tried all sorts but her body is not happy.
We will spend the next few days trying to get back on track ready for next week..
Despite this Phe still has boundless energy and things to say ❤
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We are home. Need to adjust back to normal life again :)
Phe curve had increased hugely by the time we got to surgery. The surgeon said we had arrived just in time. The correction from surgery has been far better than we hoped for. The improvement in Phe back appearance and general health is obvious already.

Thank you to everyone that helped and supported us as a family and to fundraise. We will be forever thankful ❤

Thank you for all the cards and $ . Phe loved buying new clothes to fit her new body :) All her clothes previously had to accommodate her brace.... but not anymore :)

We still have a long way to go as Phe continues to grow but feel she now has the chance to have a happier and healthier childhood.

❤❤❤❤❤❤❤❤❤❤❤
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Phe has all tubes removed which makes walking easier. Will be discharged on Monday:)
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£20,273 of £55,000 goal

Raised by 172 people in 10 months
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SR
£100
Sophie Robertson
3 months ago
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£200
Olwen Stovold
3 months ago
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£20
Danielle Oliver
4 months ago
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£10
C Kaps
4 months ago
IP
£328
Izzy Purser
6 months ago
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£1,000
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6 months ago
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