3rd Annual Natasha Beck Fundraiser
Donation protected
This months charity marathon being hosted by Rize Up Gaming is Batten Disease. This charity drive will start July 17th and run through July 27th 2015.
What is Batten Disease?
Batten disease is one of approximately 50 diseases called lysosomal storage disorders (LSD), meaning that genetic mutations disrupt the cells ability to dispose of wastes. With Batten disease, cells are thrown out of balance with the build-up of proteins and lipids (fats).
Because of these damaged cells, patients with Batten disease suffer progressive neurological impairment, which includes:
• Seizures
• Visual impairment/blindness
• Personality and behavior changes
• Dementia
• Loss of motor skills and the ability to walk, talk and communicate
Because of widely varying genetic mutations, the arc of Batten disease can vary tremendously for each person. Sadly, until more strides are made in research, treatments and cures, Batten results in an early death of our children and adults.
Chaos may be a path of anything and everything. Chaos may not judge and may not have boundaries, yet when it comes to the lives that could be saved. What choice would you make if you had a say in helping?
This service may not seem like much, however the more people made aware of this fatal disease, the more these children who are suffering from this will be given a hope for not only a better tomorrow but a future all together.
What is Batten Disease?
Batten disease is one of approximately 50 diseases called lysosomal storage disorders (LSD), meaning that genetic mutations disrupt the cells ability to dispose of wastes. With Batten disease, cells are thrown out of balance with the build-up of proteins and lipids (fats).
Because of these damaged cells, patients with Batten disease suffer progressive neurological impairment, which includes:
• Seizures
• Visual impairment/blindness
• Personality and behavior changes
• Dementia
• Loss of motor skills and the ability to walk, talk and communicate
Because of widely varying genetic mutations, the arc of Batten disease can vary tremendously for each person. Sadly, until more strides are made in research, treatments and cures, Batten results in an early death of our children and adults.
Chaos may be a path of anything and everything. Chaos may not judge and may not have boundaries, yet when it comes to the lives that could be saved. What choice would you make if you had a say in helping?
This service may not seem like much, however the more people made aware of this fatal disease, the more these children who are suffering from this will be given a hope for not only a better tomorrow but a future all together.
Organizer
Gary Tekulsky
Organizer
Channahon, IL
