Chloe's journey to lung transplant
Donation protected
My name is Chloe, I'm 19 and I have Cystic fibrosis. A terminal illness, there is no cure. Not a lot of people are aware of what Cystic fibrosis actually is! It's a lung disease that not only effects your breathing, it also effects your weight, your bones, diabetes etc. I'm prone to infections and even the mildest results in me being admitted to hospital. I spend most of my life here, it's my second home. 2-3 weeks at home (if I'm lucky) then 2-3 weeks in hospital on intense intravenous antibiotics. It's lonely and I miss my family. But then again it's all I've ever known. I've suffered with cf all of my life and as I've got older it's got worse (it's taking over) I'd love to be doing things that the average 19 year olds are doing, like having a career, working or even going to uni. Instead I do the same routine every day, like medicines, physio, feeds, tablets, injections! It's just non stop, and takes most of my time up.
When I was younger cf never seemed to affect me as much, but as I've got older and my illness has become aggressive, I'm realising all the things I want to do with my life... But cystic fibrosis won't let me. I want to be independent and have a job, live a normal life. I find it really hard to do any of those things because my body's constantly drained and relies on tablets and physio therapy and injections also I'm in constant need oxygen! It gets to me now I've grown up, because I see friends moving on with they're lives, like having careers, driving, going out enjoying there having fun. They always ask me to join them but I don't bother because I know, I can't. I feel drained, struggle to breathe so don't really attempt to go anywhere. Walking up the stairs is a massive task for me. To the point where I'm gasping for my breath! It's frustrates me a lot but now I'm on the transplant list, I can hope and pray the call will come. I know having a double lung transplant is a big risk and it could go either way but I'm willing to take that chance for the hope of a future. I'm so relieved I'm on there. I'm praying for the gift of life.Your donations will help me to do the things I really want on my bucket list. I only have now. I can't plan for my future. I just dream of it, and have hope in my heart. Thank you xxx
When I was younger cf never seemed to affect me as much, but as I've got older and my illness has become aggressive, I'm realising all the things I want to do with my life... But cystic fibrosis won't let me. I want to be independent and have a job, live a normal life. I find it really hard to do any of those things because my body's constantly drained and relies on tablets and physio therapy and injections also I'm in constant need oxygen! It gets to me now I've grown up, because I see friends moving on with they're lives, like having careers, driving, going out enjoying there having fun. They always ask me to join them but I don't bother because I know, I can't. I feel drained, struggle to breathe so don't really attempt to go anywhere. Walking up the stairs is a massive task for me. To the point where I'm gasping for my breath! It's frustrates me a lot but now I'm on the transplant list, I can hope and pray the call will come. I know having a double lung transplant is a big risk and it could go either way but I'm willing to take that chance for the hope of a future. I'm so relieved I'm on there. I'm praying for the gift of life.Your donations will help me to do the things I really want on my bucket list. I only have now. I can't plan for my future. I just dream of it, and have hope in my heart. Thank you xxx
Organizer
Chloe Hopkins
Organizer
