Lupus Awareness fundraiser

Hello, My name is Paris Nettles I live in saginaw MI. I have decided to start up the very first Lupus awareness walk in Saginaw County

My Goal is to create awareness for a disease that's not talked about much in the public eye, Yet it affects Millions of people worldwide.

I want to create educational awareness and in the future open up a support group facility that supply resources and information about autoimmune diseases and that can be utilized locally and even around the world. working with many nonprofit organizations such as Lupus of America foundation and Michigan Lupus foundation. 

I want to have this event in May, because it is lupus awareness month. I plan on having this event every year annually in Mid-Michigan. 

I'm asking for donations to help cover this event, T-shirts for participants, water and while trying to raise money to donate to a Great cause. I am paying out of my personal savings for T-shirts, Refreshments.  Help is appreciated. 

About me; The end of 2015 I was diagnosed with Lupus! I had a positive ANA and DNA and was sent to Ann Arbor MI for futher evaluation . It all started with a painful rash that covered my whole face, filled with skin lesions.  My symptoms were very complex and looked like Many other illnesses one of the reasons why LUPUS very hard to diagnose
I went to see Specialists in Ann arbor MI "rheumatologist" " Internal Medicine" where it was suggested that I get a KIDNEY Biopsy" as scared, nervous I was at the time, I had no other options especially when signs and symptoms was there that something was attacking my kidneys from elevated protein in urine an High Blood pressure. 

I got the biopsy done and them 2 weeks felt like a lifetime, but I felt I would get answers!  results came back positive a for two different autoimmune diseases one being IGA nephritis and LUPUS with the presence of lesions from LUPUS on my kidneys. I'll never forget that day, to hear the words "Paris... Basically Your immune system is attacking your own body, in your case Your KIDNEYS"... I never felt so hopeless" the only way I could describe it, as walking out eyes full of tears to hear that I might be on dialysis within 10 Years... 

when I was diagnosed I really didn't know much about Lupus and how bad it can get. there wasn't much information out about Lupus only that it literally can take everything from you, even your life.
I had to do online research, Mayo clinic to even understand what this disease is.
that is why I decided to become a advocate and speak UP about LUPUS and talk about it, get the information out so people know that there is HOPE!
You're not a lone Join me for this WALK.

May-19-2018 at ojibway Island in saginaw MI. at 1:00 PM.

Thank You!

Lupus is a serious disease that can affect anyone. It is most often diagnosed in young women, between the ages of 15 and 44. While the cause is not known, lupus is an autoimmune disease – in which your immune
system attacks healthy cells by mistake – that can potentially damage many parts of the body! Heart, liver, kidneys and skin. There is no known cure for lupus, though effective treatments are available!


I would like to personally Thank our sponsors: in advance: Holeshot Harley-Davidson, Central Michigan Harley Owners Group, and Healthsouce Saginaw. Thank You!!