Your Life, Lived Well
Life with chronic illness can become a long, sad slide of saying goodbye to the things you loved about your life. I understand that. I’ve lived it. We may have diagnoses, but we can still live well. My book shows you how.
I live with multiple sclerosis.
I’ve battled chronic pain, fatigue, trauma, and depression.
I was once 120 pounds overweight.
I spent a decade supporting a wife dying of cancer.
I still give care for people I love.
I’ve lived the challenges of chronic health conditions, both as diagnosed and caregiver.
And I noticed that most of our day-to-day problems aren’t with our medical symptoms directly, but with changing mindset, behavior, environment, solving practical and relationship challenges, and managing the everyday demands of medical care. I also noticed that, beyond a little advice encouraging me be a “good patient,” our system didn’t speak to the biggest problems I faced.
But I’m a scientist, so for me, it’s all about the data. I decided to science the hell out of it. I needed to know what others in these circumstances were dealing with. So I interviewed hundreds, surveyed thousands, scraped 2.23 million data points from the open web, and re-analyzed over 6,000 studies on more than a hundred conditions.
And I found answers. Most of our challenges aren’t directly due to our conditions, but to the life challenges of living with those problems that won’t end. Most fell into six groups.
I found that there’s not a one-size-fits-all answer. All those way-too-easy fads are too good to be true. We may not even like the answers that work.
But real, lasting answers begin with, “it depends…” Why? Because even though we share the same challenges, your answer depends on who you are, your conditions, and your goals in life.
So I’m finishing a book, Your Life, Lived Well, (releasing February 9th) that shows those of us living with, and caring for, chronic illness a better, personalized way to a quality life.
I need your to help get the book published and in the hands of those who can use it to improve their lives. (Get Chapter 1 free now! )
Healthcare is built on an acute care model, but over half of us now live with chronic conditions. The system is failing us.
I hope that one day all of us will be “well” again. I hope that someday there’s a pill, procedure, or diet that will magically return every one of us to full health. But that’s not now — or likely.
Our conditions are chronic because they have no medical cures. But there’s actually a lot we can do to improve our quality of life (and even our overall health) through our mindset, behaviors, environment, relationships, food, rest, movement, and carefully using our available resources.
All of those things won’t work for you, but each of them works for someone. Your challenge is discovering which are useful for you now — and in the future, because it will change over time.
Through a lot of research and experience, I built the system that shows you what will work for you. We get suggestions all the time. Someone swears “this” will really work. We get hopeful. We get disappointed. Maybe we try again. Maybe we’re so discouraged that we give up.
We need to live quality lives, and that also improves our health. We may have diagnoses, but we don’t have to live like we’re sick. So think of this as the guide to your life, lived well. No miracles. No magic. Just real science, real experience, and learning to work the odds in your favor.
Why am I skydiving on the cover of a book about chronic illness? First, because it’s a great metaphor for what we live everyday. Second, it’s a beloved activity I once gave up, but reclaimed, even in the face of multiple sclerosis. We all have things we’ve lost due to our chronic health conditions, but we can claim a better quality of life. That’s what my book shows you how to do. Read more…