Ari's Journey

$21,050 of $20,000 goal

Raised by 143 people in 32 months
Baby Ari who was born on the 10th of September 2015 was born with a condition known as craniosynostosis. This means his skull has fused in four places many years too early (yes... This does mean he is advanced,) but it makes the next 12 months a journey for our little Ari. Because the skull cannot expand properly it compensates by growing more in the direction parallel to the closed sutres. This growth pattern results in abnormal head shape and and abnormal facial features and does not provide enough space for the growing brain. This leads to possible visual impairment, sleeping impairment, eating difficulties, or can present challenges later on in life.

The treatment for craniosynostosis is major surgery on the skull (Craniosynostosis Vault Remodel (CVR) done by a neurosurgeon to open the sections on the skull which have fused too early and reshape it to allow room for the brain to grow.

The team of specialists that will be looking after our angel are based in Adelaide which means The Nakkour family will need to travel. What I am hoping to do is raise as much money for Jess and Gab to help them with the massive costs of their travel, accommodation, surgery, CT scans, anaesthetics, medications, physiotherapy, and multiple follow up appointments.

We greatly appreciate everyone's support and well wishes along this journey!

Thank you from the bottom of our hearts xx
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Thank you so much again everyone, Ari is doing well, spent last night in ICU. He can't open his eyes but is being comforted by his Mum and Dads talking, singing and cuddles xxx
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Today Ari had his VER , blood and other tests. He was very brave and has smiled the whole time. Love you mate xxx
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The date has changed- Little Ari is heading to Adelaide on Wednesday. He is booked in to have his surgery next Tuesday. This is a last minute change due to another family not arriving for their appointment. Jess and Gab have had to rebook flights and accommodation. Please share this post so we can raise as much as possible to help them out. Xxx
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We have a date.. Ari's surgery date is the 29th of March. A little later than first expected. Now Jess and Gabs need to begin organising accommodation and everything else. Thank you all again for your generosity. The amount we have raised is unbelievable and will help this little family enormously xxx
See how I roll!!!
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$21,050 of $20,000 goal

Raised by 143 people in 32 months
Created January 24, 2016
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TJ
$200
Torquay Jessos
30 months ago

Best wishes little legend. Ev, Em, Ozzy and Eddie x

NA
$50
Neno & Jamie Aroyan
30 months ago

Get well little man xxx keeping you in our prayers

DD
$50
Dream Doors
30 months ago

We look forward to seeing Ari back to his normal self very soon xx

MK
$500
Maria Kottaridis
30 months ago

All the best x

ME
$50
Melissa Egan
30 months ago

Sending you all lots of love!

MM
$270
Megan Mouradian
30 months ago

All the best. I hope Ari recovers quickly.

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