The treatment for craniosynostosis is major surgery on the skull (Craniosynostosis Vault Remodel (CVR) done by a neurosurgeon to open the sections on the skull which have fused too early and reshape it to allow room for the brain to grow.
The team of specialists that will be looking after our angel are based in Adelaide which means The Nakkour family will need to travel. What I am hoping to do is raise as much money for Jess and Gab to help them with the massive costs of their travel, accommodation, surgery, CT scans, anaesthetics, medications, physiotherapy, and multiple follow up appointments.
We greatly appreciate everyone's support and well wishes along this journey!
Thank you from the bottom of our hearts xx