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Rowan Price fighting AML

$78,987 of $150,000 goal

Raised by 919 people in 10 months
Created October 7, 2018
Rowan is the three year old daughter of Scott and Mandy Price, and the little sister of Emory.  Rowan was diagnosed with AML M7 on Friday, October 5, 2018.  AML M7 is an aggressive and rare form of leukemia for children.  Chemotherapy treatments will begin almost immediately.  This road of treatments will be extremely long, and will likely include a bone marrow transplant.

Scott, her father, has dedicated his life to working with special needs kids as a Special Education teacher in a local elementary school.

Mandy, Rowan’s mom, is a RN at the Veteran’s Hospital in Salem, VA.

Rowan’s parents spend their days helping others, and it’s time we help them!

Anything that you give will help with hospital costs, treatment plans, missed days from work, and all the other monetary costs that come with fighting childhood cancer.

Let’s show the Price family that we are all ROWAN STRONG!
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8/6/19
From Mandy:
Today was one special and crazy day. Our day started fairly early. We found out last night that our transport was set for 9 am this morning and it happened to also be Emory's 7th Birthday. We gave Ems the option and she wanted to wake up early and come to the hospital to celebrate her birthday before we left. Thanks to some amazing staff members on 5C at UNC Children's we had a banner, balloons, presents, cake, cupcakes, and Duck donuts. She loved it. It was a quick celebration and transport arrived right when they said they would.

As they loaded our baby girl on the stretcher for an ambulance ride to the airport and a medical flight to CHOP, I saw the fear in her eyes. Although she was nervous, Rowan handled the unknown with grace and dignity. And once we got above the clouds, Ms. Hollywood quickly settled in and enjoyed the flight and attention. We were then met by an Ambulance at the Philadelphia airport and transported to CHOP. We are settled in our room, which is Much larger than any hospital room I've been in.

Emory and Scooter Price made it up here to us around 10pm. Scott stopped outside of Annapolis at Sandy Point State Park. He wanted Em to have a special day and I think he succeeded. She said it was great getting to put her feet in the water and run in the sand. The last couple days we have tried to make special for Emory. We know today, 8/6/19, her birthday, may be interrupted by travel, which it was, so we wanted her to know just how special her birthday is and she is. We are thankful to our family, friends, and nursing family that helped us celebrate her.

We now begin a new chapter in this book. We begin our clinical trial on 8/7/19. We must commend our team at UNC for getting all the necessary workup done and coordination and persistency to get us up here today. Because of them, we arrived at CHOP, ready for the trial, no additional testing needed, signed consent and are now ready to begin
We truly need all the prayers we can get for Rowan, this clinical trial must go. ********************************************

*Rowan's only fundraiser page*
https://www.gofundme.com/y3uj5-rowan-price-fighting-aml

**Rowan's only FB Group**
https://www.facebook.com/groups/176579613254461/?ref=share

**Currently only T-shirt fundraiser**
http://www.yeshirts.com/store/c53/Rowan_Strong_.html

If any additional pages/sites noted, please report!

If you are just joining us, our first post was October 8, 2018. Welcome to Rowan's fight against rare Leukemia, AML M7 and bone marrow transplant journey and relapse.
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8/3/19
After a really long and super busy day yesterday, we thought we were busting out of here for two nights but once again, the unpredictable happens. Rowan spiked a fever as we were about to discharge last night, literally papers in hand. So we are still at UNC Childrens Hospital likely until we travel to CHOP. We will likely travel by medical transport if we can get insurance approval.

So thankful Emory had the experience she did yesterday! She spent some time with the UNC girls Soccer Team. She scored the first goal in their new stadium and had a blast doing it. Thank you #uncathletics and a very special Child Life Specialist. It's hard being an older sister that's so energetic and full of life spending days in the hospital. But we know this is best for our family so we are thankful when Em gets special opportunities like this! She may become a soccer player now!

To say we are exhausted and disappointed is an understatement. But cancer knows no boundaries. #justkeepswimming
#uncsoccer #goal #lifeisunpredictable #makethemostofit #cancerjourney #noonefightsalone #fightlikeakid #rowansfight #pricefamilystrong #onedayatatime #curekidscancer #RowFightWin #rowanstrong #RowFightWinAgain #leukemiawarriors #amlm7
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8/1/19
From Mandy:
I have started this post multiple times with the inability to put my thoughts and feelings into words. This journey has been difficult, it's been draining, it's been hopeful, it's been unexpected, and it's been unfair. We were given the results of Rowan's bone marrow biopsy and......

They aren't good. What cells are present are immature Leukemia cells. What this means is that the clinical trial we just finished had No response on her Leukemia. This is devastating to say the least. I feel like we've been hit by a Mack truck and then it has reversed back over us. I feel numb, empty, and feel like every single step I take is a huge chore. I literally feel like my shoes are large heavy cinderblocks. Everyone around us is moving at warp speed but we are stuck, just stuck seeing the flashes of people and things fly by us, hearing the whoosh of life roar right by us.

Our prognosis does not look good but Rowan is Rowan. She is absolutely amazing. Her spirit is still intact, her light still shining bright, and her fight is still mighty. So if there is still even the smallest of possibilities to pursue treatment options then we seize that opportunity and hold on to the little bit of HOPE we have left, we hold on to the giggles and smiles we continue to hear and see that give us Hope and gives us strength. Rowan is the absolute love of my life, I've known since the day she was born she was uniquely special. I don't want this to be why she is special, I want her to be special because she fought this, she won this, and special because she defied odds and is an absolute miracle.

We need every ounce of prayer you have. We need prayers that we will be accepted to the clinical trial we think is her best option, prayers that her body, her mind, her spirit remain strong to continue this fight, and we need prayers as her parents and for her Big Sister. No parent should have to make the decisions we are making and discussing the options we are discussing.

Rowan is a light, a light that shines so bright and touches so many. We will do what is best for her and best for her bright and precious spirit as we continue this journey.
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7/12/19

WOW!!!! Today marks 100 days of inpatient hospital stays. 100 days of being confined to hospital rooms, looking out hospital windows, unable to feel the sunshine or smell fresh air, 100 days of riding tricycles in hospital hallways, playing with your parents and sister, 100 days plus without seeing your friends or playing with other children. This does not include the 100's of hours spent in the clinic, day hospital, lab, OR, PACU and different testing during our entire journey. And though our life has been altered forever, our path in life disrupted, a huge mountain placed infront of us, our children have taught us what it means to be strong, adaptable, forgiving, loving, persistent, and graceful. They have handled this adversity with dignity and grace, all while having smiles on their face. When the day brings tears, it's short lived. Our girls are resilient, they push through, and they find the joy, love, and light in each situation. They remind us daily that life is unpredictable, it's not always fair, but it is what you make it. We have learned from Emory and Rowan to live life one day at a time and to enjoy each day to the fullest. We feel blessed to be able to stay together through this cancer and transplant journey and we feel blessed to have 2 amazing daughters that teach us more and more about life each day. Although our home is a hospital, it's still a happy home because we are together and Together is our favorite place to be.

If you are just joining us, our first post was October 8, 2018. Welcome to Rowan's fight against rare Leukemia, AML M7, bone marrow transplant journey, and now our journey through relapse.
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$78,987 of $150,000 goal

Raised by 919 people in 10 months
Created October 7, 2018
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