Xtraordinary Joy

$4,564 of $10,000 goal

Raised by 56 people in 26 months
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Our beautiful Moriah Joy was diagnosed at 16 months with an extremely rare chromosome abnormality. She is missing 46 genes on her X chromosome. There are less than 10 recorded cases in the world. Because it is so rare, there are no treatment options. There is no disease name, no scientific research, no awareness events. It has taken us months of seeing specialist after specialist with no understanding of her condition to help us realize it is up to us to help her.

We have been blessed to connect with two other families in the United States who are going through this with their daughters, so that we have somewhat of a community. Together we understand the fears of the unknown results of these missing genes.

We feel called to start a foundation, Xtraordinary Joy, that will advocate for these girls' special needs and recruit revolutionary research efforts to discover treatment options.

We invite you to be a part of something great, eXperience the JOY of helping establish the groundwork for helping our girl and others.

Read more at www.xtraordinaryjoy.org
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We have a new website with PayPal donate button we prefer everyone use to make tax deductible donations. Visit www.xtraordinaryjoy.org
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https://youtu.be/VYI-WcLDpJA
New challenge. Same campaign. I'm turning 40 and found my voice. Shouting my Xtraordinary Joy! Shout with me. Make your own video of JOY, give joyously to this foundation and spread the joy! Thank you.

My recent blog post explains more about what 40 years means to me.
https://messagethatbringsjoy.wordpress.com/2016/06/10/exodus-joy-29/
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$4,564 of $10,000 goal

Raised by 56 people in 26 months
No Longer Accepting Donations
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Created April 22, 2016
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$50
Anonymous
18 months ago
$25
Anonymous
21 months ago
$25
Anonymous
22 months ago
$25
Michelle Foley
23 months ago

We love seeing all the progress Moriah has made. You go girl!

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