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The Linder Disease: Research, Treatment

$985 of $10k goal

Raised by 8 people in 39 months
Joselin Linder  BROOKLYN, NY

In 1995, Physician, Dr. William "Billy" Linder was dying of an unnamed, undiagnosed illness. Soon it became clear his illness had been seen before, 30 years previous in his uncle, and 40 years previous in his grandmother.

Through the hard work of Harvard's Seidman Lab, it soon became clear that this illness was caused by a one-in-a-billion mutation. And while these genetic researchers - some of the best in the world - believe they know what gene it is, they haven't been able to prove it. Without proof there can be no in depth dialogue among the scientific and medical communities.

Meanwhile, 8 people are living with this gene. Some of these people are experiencing a catastrophic breakdown in their vascular systems. They need help solving the mystery of this gene and the illness it's causing.

Your help will go directly toward research, treatment and travel expenses to seek out appropriate treatment.

We are alone in our plight - but not alone. Because of people like you, we have hope.

Thank you.

Joselin Linder

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Update 4
Posted by Joselin Linder
1 month ago
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Today - The Family Gene is on the front page of The New York Post.

http://nypost.com/2017/03/05/what-its-like-to-live-with-a-mysterious-killer-gene-disorder/
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Update 3
Posted by Joselin Linder
1 month ago
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Please visit the website - to learn more about the new book about our family gene - called The Family Gene - Ecco, March 14, 2017

http://thefamilygenebook.com/
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Update 2
Posted by Joselin Linder
2 months ago
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The Family Gene Book will launch on March 14th, preorder now.
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Update 1
Posted by Joselin Linder
31 months ago
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Going to speak today at Patients 2.0. Tomorrow, Health 2.0. Really excited and feeling ready to start this conversation about the significance of rare diseases!
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Read a Previous Update
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$985 of $10k goal

Raised by 8 people in 39 months
Created January 30, 2014
NB
$30
Nancy Brody
7 days ago

Hi Joselin- I was completely moved by your family's story and I am looking forward to buying your book. I had the pleasure of hearing you speak at Congregation TIfereth Israel on Shabbat this past weekend and I was completely moved by your story. I too grew up in Bexley and growing up in such an idyllic place sometimes makes it feel that our families would not be vulnerable to tragedy. I commend you writing your book and speaking about your book because this could be anyone's family. I hope that researchers quickly find what is needed to make things easier for you and your family. What courage you have! Sincerely, Nancy Brody (Bexley Class of '85) and YMCA colleague of Pam Slater:)

SG
$200
Suzy Gilison
31 months ago

Love you!

JK
$100
Jennifer Kovatch
31 months ago

So proud of you! xo

$500
Anonymous
30 months ago
$30
Anonymous
31 months ago
$25
Anonymous
31 months ago
$50
Anonymous
31 months ago
RP
$50
Renee Paul
31 months ago
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