Theres a family in our community who could truly use a miracle...  lets pull together and make    that happen for them.

Jordan's and his parents just got some devastating life changing news

copied from Medas fb:

"Jordan's brain is dying slowly. It keeps swelling and as it develops atrophy the cells die. There is nothing they can do to help. They have no idea why this is happening or
why it keeps switching from the left side to the right He has recently developed 2 new kinds of seizures.
His seizures and strokes will get worse. He has started
new meds on top of the ones he already takes. There is
little to no medical help. I will continue to be his
caregiver as wait lists are 5+ years) Unless he moves to palliative/end of life care. Which he does not qualify for YET as an adult.

They might be able to help IF they could admit him and run some tests but the hospital won't     allow it. We are facing roadblocks at every turn. Adult Neuro won't admit him until he goes
into status again which could also cause another stroke or cardiac arrest. Peds Neuro isn't
allowed to admit him because hospital admin says chronologically he is an adult.

His peads team's last words to me on Thursday was "We have given up, we don't know what to do next. The new meds will help with pain and the swelling in his brain but will make him very
tired. 

Jordan is a fighter, we are strong and no matter what we won't give up.

He laughs, smiles and fights for his own life every day.

This is just a new road for us not a roadblock."

I know Jordans mom Meda personally... despite what she and her child are dealing with she's 
ALWAYS the first  one to offer support to anyone who needs it, a kind word, a home cooked meal, her time... she the first  one there for anyone whos struggling.   Folks, this family...  they need our help.


Jordan is only 18. Which is why he gets so little funding because he is still transitioning to adult world and waiting on paperwork/ gov't approval etc.   Jordans mom runs a catering company     and works every chance she can...  Jordan's  dad Jay works full time (and as much overtime as   he possible can to help) in automotive manufacturing to cover the costs, but its sadly not enough. 

He has recently required a new hospital bed to be  comfortable at home...  he also needs a new stroller ($2500) his medical/feeding supplies that are not covered  are appx $500 month alone...  any  time he needs to be left alone so that Meda can work require a private respite nurse. The
nurse is $35 per 1 hour of care....  

Meda also has another young child at home who goes without as any extra money she has goes to helping Jordan survive..       not to mention Christmas is coming up really fast! 

Lets help this family out folks...   if you're considering donating anywhere for the holidays
please consider donating here.  No donation is too little. Every single penny helps and is so very
appreciated.  #teamjordan