Wishes For Bede

$239,771 of $55,000 goal

Raised by 2,800 people in 29 months

We are fundraising to improve the life experience of one very special little boy and we hope you will help!

This gofundme was primarily set up for people who would like to support Bede but are not attending his local community fundraiser.  You can make a difference to this beautiful child's life.

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A bit about the small but mighty Bede...
Bede is always making the most of life and smiling as much as possible. He loves spending time with his family and in the sunshine but Bede's life has not been easy.

Bede was diagnosed with aggressive terminal brain cancer at only 4 months old and given just weeks to live. That was nearly 3 years ago and he has been defying the odds with a smile ever since.

Bede underwent 9 months of intense chemotherapy in the hope of buying him some time to enjoy his life and his family. The treatment left him more unwell than any doctors had predicted and even once chemotherapy stopped Bede remained critically ill for long periods of time spending most his time incredibly unwell as an inpatient in PMH. He has been in ICU many times, had multiple surgeries, many ife threatening infections and the Darch's have stayed months at a time in PMH.

Bede has spent most of his time at home for the last year but requires constant care even throughout the nights.  
Bede can not talk or see. His whole central nervous system gets disorganised leaving Bede screaming and hitting his head and needing medication. Bede often vomits throughout the nights. His body doesn't tolerate being fed even through a tube so feeding him is very difficult and more often than not means he needs to be sedated.

 

He requires extensive therapy. 

His parents Issy and Roy have been by his side helping him make the most of his life, every step of the way. Tyring to make sure every day has good times to counter the bad. They have put their whole worlds on hold, Roy lost his job due to Bede's high care requirement. They have been dedicated to providing him with as many happy, peaceful, loving moments as possible to try and add some balance to his life.

Bedes latest scans show that his cancer is once again progressing. The doctors predict that Bede does not have long to live . We have heard this before and we hope Bede will defy the odds and continue with his therapies and being with his family in a happy way. But even if he does life hasn't been particularly easy lately.

Issy and Roy have now used all their resources and support to get through the last three years, holding their family together and providing Bede with as happy a life as possible.

This is a happy loving, positive, genuine family, that light up those around them and we want to help them. These are beautiful people.

We are fundraising to support Bede in having the best quality of life for whatever time he has left. 

Thank you for your support of this determined little boy and dedicated family. 

You can see more of bede's life at www.teambede.com



10491257_1460168142.7274_funddescription




+ Read More
Angie McHugh
26 months ago

Hi guys, we were moved by your story tonight and would like to offer your family a two night wkd at our holiday accommodation with an open ended expiry date so you can use it when you feel you are able, if you would prefer you can use the wkd as an item to be auctioned at your fundraiser. Please private message me if you would like to accept our offer and we will provide more details to you. You are in our thoughts. Kind Regards Angie

+ Read More
Karen Walker
26 months ago
7
7

Hi im just wondering what state this family lives in? Im a registered nurse for 40 years, criminal check done etc working with children check done, in sydney and if they live here i would offer babysitting

+ Read More
Rochelle Polley
26 months ago
5
5

What ever happens you have been the best parents that he could have ever had. I wish all the best in this trying time.

+ Read More
Janine Tout
26 months ago
4
4

What a beautiful family, just loving each other no matter what. The compassion, humility and honesty to share your story is inspirational. We lost our oldest daughter to Brain cancer when she was 10 yrs old. It is the cruelest thing, no child should leave this earth before their parents. We cannot know your pain and anguish but send our love to you. Fill each day with beautiful experiences that will be cherished.

+ Read More
Sally Davis
26 months ago
3
3

I dont have children but i love this little boy and would love to hold him in my arms. God's gift to such beautiful parents. God bless you and your family.

+ Read More
Zoe Wyatt
26 months ago
2
2

I cried for your beautiful baby Bede and your family after i watched the project. I have no idea where you get your strength. I can never imagine the pain and agony you all are going through but know that you've pulled my heart strings tonight and I will pray for Bede and your family. xxx

+ Read More
Susannah Harper
26 months ago
1
1

Karen walker - the family is in Perth.

+ Read More
Melissa Noble
26 months ago
1
1

Bede's story has touched so many people's hearts. What a powerful impact this little boy has had, allowing people to show their humanity by donating and offering love and support. Thank you for sharing your story and for reminding us about the power of love. We all saw the love last night... A love that will last a lifetime.

+ Read More
Pauline Tanti Farrugia
26 months ago
1
1

My heart breaks into tiny pieces,tears come flooding,and can barely see what I am typing,I shall pray and pray for Bede,and also for your loving family ,may God Bless you All

+ Read More
Nani Babu
26 months ago

This is very nice blog and informative. I have searched many sites but was not able to get information same as your site. I really like the ideas and very intersting to read so much and Please Update and i would love to read more from your site,Thanks... http://www.cricinfobuzzlive.com/india-vs-west-indies-live-streaming-tv-telecast/ http://www.sportshike.org/football/fifa-futsal-world-cup-2016-schedule-live-stream-telecast-highlights/

+ Read More
Kristina Ray
26 months ago

Prayers to your family and courageous son.

+ Read More
Shannon Wanlin
26 months ago

You have a beautiful family. I never understand the why's and I think nobody does, but you all are embracing life as much as possible. I wish you all the miracles this world has and hope that you raise enough to spend the rest of your lives being with your children as much as possible. You all deserve the best and my thoughts and prayers are with your family and that special little boy who has touched the hearts of thousands!

+ Read More
Anna Larkin
26 months ago

Your unconditional love for your children is incredible. My love and best wishes go with you in this terrible time.

+ Read More

$239,771 of $55,000 goal

Raised by 2,800 people in 29 months
Created April 8, 2016
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$100
Anonymous
22 months ago
CB
$50
Chris Burnham
22 months ago

Gorgeous Bede's story touched us so much. Thank goodness he has such wonderful, strong parents, an amazing big brother, and a beautiful little sister to love him so much. Our thoughts are with all of you. Chris, Matt, Felix and Taffy xox

AA
$50
Anonymous Anonymous
23 months ago

Your family is never far from my thoughts, even though I do not know you, but can feel the love and warmth coming through your posts. Stay strong, you are AMAZING.

MA
$200
Maia's Angels
24 months ago

Sending all of our Maia's Angel's love, and a little fundraising money, to you and your beautiful family. May you be able to make more precious memories together. Aroha nui (big love) xxx

NW
$50
Nicole Weir
25 months ago

I have followed Bede's journey from the beginning and his light and his family's unrelenting support has continually touched me. You are never far from my thoughts. Wishing you peace

$20
Anonymous
25 months ago
Angie McHugh
26 months ago

Hi guys, we were moved by your story tonight and would like to offer your family a two night wkd at our holiday accommodation with an open ended expiry date so you can use it when you feel you are able, if you would prefer you can use the wkd as an item to be auctioned at your fundraiser. Please private message me if you would like to accept our offer and we will provide more details to you. You are in our thoughts. Kind Regards Angie

+ Read More
Karen Walker
26 months ago
7
7

Hi im just wondering what state this family lives in? Im a registered nurse for 40 years, criminal check done etc working with children check done, in sydney and if they live here i would offer babysitting

+ Read More
Rochelle Polley
26 months ago
5
5

What ever happens you have been the best parents that he could have ever had. I wish all the best in this trying time.

+ Read More
Janine Tout
26 months ago
4
4

What a beautiful family, just loving each other no matter what. The compassion, humility and honesty to share your story is inspirational. We lost our oldest daughter to Brain cancer when she was 10 yrs old. It is the cruelest thing, no child should leave this earth before their parents. We cannot know your pain and anguish but send our love to you. Fill each day with beautiful experiences that will be cherished.

+ Read More
Sally Davis
26 months ago
3
3

I dont have children but i love this little boy and would love to hold him in my arms. God's gift to such beautiful parents. God bless you and your family.

+ Read More
Zoe Wyatt
26 months ago
2
2

I cried for your beautiful baby Bede and your family after i watched the project. I have no idea where you get your strength. I can never imagine the pain and agony you all are going through but know that you've pulled my heart strings tonight and I will pray for Bede and your family. xxx

+ Read More
Susannah Harper
26 months ago
1
1

Karen walker - the family is in Perth.

+ Read More
Melissa Noble
26 months ago
1
1

Bede's story has touched so many people's hearts. What a powerful impact this little boy has had, allowing people to show their humanity by donating and offering love and support. Thank you for sharing your story and for reminding us about the power of love. We all saw the love last night... A love that will last a lifetime.

+ Read More
Pauline Tanti Farrugia
26 months ago
1
1

My heart breaks into tiny pieces,tears come flooding,and can barely see what I am typing,I shall pray and pray for Bede,and also for your loving family ,may God Bless you All

+ Read More
Nani Babu
26 months ago

This is very nice blog and informative. I have searched many sites but was not able to get information same as your site. I really like the ideas and very intersting to read so much and Please Update and i would love to read more from your site,Thanks... http://www.cricinfobuzzlive.com/india-vs-west-indies-live-streaming-tv-telecast/ http://www.sportshike.org/football/fifa-futsal-world-cup-2016-schedule-live-stream-telecast-highlights/

+ Read More
Kristina Ray
26 months ago

Prayers to your family and courageous son.

+ Read More
Shannon Wanlin
26 months ago

You have a beautiful family. I never understand the why's and I think nobody does, but you all are embracing life as much as possible. I wish you all the miracles this world has and hope that you raise enough to spend the rest of your lives being with your children as much as possible. You all deserve the best and my thoughts and prayers are with your family and that special little boy who has touched the hearts of thousands!

+ Read More
Anna Larkin
26 months ago

Your unconditional love for your children is incredible. My love and best wishes go with you in this terrible time.

+ Read More
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