William's Cancer Treatment

£11,499 of £20,000 goal

Raised by 194 people in 46 months
In early 2014 our then 18-month old son, William, was diagnosed with an Ependymoma - a brain tumour.

Although it was removed and he underwent a gruelling 9-months of chemotherapy, the tumour came back in August 2015.

The tumour was again surgically removed with a view to treating what was left with radiotherapy. 

This page was originally set up to raise money to help with funding for Proton Beam Therapy (a less damaging form of radiotherapy than that offered in the UK) with any extra money raised going towards treating his tumour should the radiotherapy not be successful.

Devastatingly, the tumour grew back to become larger than before the second surgery within a month of being removed and we had no other option than to proceed with UK treatment.

Especially given how fast the tumour has grown we are now fundraising for future treatment. This will likely mean supporting research projects into William's type of tumour (Brain Tumour Research is drastically underfunded).

Please visit www.makewilliamwell.com for further information.
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www.makewilliamwell.com

Hello,

In large part thanks to the support we're continuing to receive, we have decided to set up www.makewilliamwell.com to not only help William but also other children and parents in a similar position to us.

If you'd like to follow William's progress you can register for updates on the website - although the GoFundMe page will be left going, I'll restrict my updates to the new website.

Thank you again to everyone for your kind donations and messages. With your help we're now better prepared than ever to fight this tumour.

Warmest Regards,

Hilary, Steve, William and Charlotte
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Although we thought the worst possible news we could expect was that Proton Beam Therapy was not going to happen for William, a scan was done yesterday and his tumour has grown to the extent that it is now larger than it was before being surgically removed.

We now have no other choice than to settle for radiotherapy in the UK since he needs to be treated as soon as possible.

It is not possible to describe how we feel and I am finding it really difficult to write this but people need to know.

As well as having increased risks we are unsure as to how effective the UK radiotherapy will be given the size the tumour has grown to.

Although it is tempting beyond belief to bury our heads in despair there is an incredibly special young man counting on us to do all we can to make sure that we continue the fight.

As such we intend to use people's donations to do whatever is needed in order to make sure that if the radiotherapy does not work, the next stage in his treatment is as effective as possible.
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ONLINE PETITION

Thank you so much for the positive comments to my last post. We were in despair after hearing the news but now have renewed vigour and I am asking for your help once more to push again for the best possible treatment for William by signing and sharing the online petition to have him referred to Germany for Proton Beam Therapy:

https://www.gopetition.com/petitions/proton-beam-therapy-for-william.html
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Although we are eternally grateful for the continued support we had a devastating set back yesterday when we we told our NHS funding has been removed since the centre in America has denied treatment due to William having a tracheostomy and the difficulties this would mean for flying.

All indications were that their approval was just a formality and we would just have to pay for the medical transfer.

There is a small chance that their decision may be reversed and we are looking into another centre in Germany although the whole cost of this would have to be met by us and we may have to settle for photon therapy in the UK which would be as effective in treating the tumour but likely result in a higher degree of brain damage.

Although we were fundraising primarily for Proton Beam Therapy (PBT), we also wanted to raise money for medical research into his type of cancer should he need further treatment.

If we don't manage to get PBT we totally understand if anyone wants their money back and will issue refunds on request.
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Read a Previous Update
Sandra Knott
46 months ago

Thinking of you all xx

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Fiona Collins
46 months ago

Luke's Life Legacy are following your story. Please get in touch.

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Lynn Parkin
46 months ago

Thank you for keeping us updated, I know how difficult it must be. Everyday you are facing another hurdle, keep going - stay strong and we are all right behind you x

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Bob Weatherit
46 months ago

Hi Stephen sorry to hear of the latest setback,have you logged onto the NCCT site at Freeman Hospital here in Newcastle to see what available they are making great progress on a daily basis for treatments.Try to keep positive as difficult as it is Bob

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Sandra Knott
46 months ago

Keep strong we are all behind you and looking forward to our fundraising this week, big hugs to a lovely little man and all the family xxx

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Trish Yearn
46 months ago

fingers crossed for a beautiful boy xxxxx will sponser 2 moz

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Lynn Parkin
46 months ago

Don't give up the fight for William, he's so precious. Stay strong xx

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£11,499 of £20,000 goal

Raised by 194 people in 46 months
Created September 18, 2015
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JH
£20
jacqueline hannan
40 months ago

My prayers are with young William and the rest of the family steve

£100
Anonymous
40 months ago
£100
Anonymous
41 months ago
£100
Anonymous
41 months ago
£20
Anonymous
41 months ago
£30
Anonymous
41 months ago
KE
£5
Kirstie Eden
42 months ago
DC
£15
Deborah Cassidy
42 months ago
MR
£30
Maria Rathbone
45 months ago
AW
£439
Anglian Water
45 months ago

Bake Sale total raised @ Anglian Water. Lots of love from your friends and colleagues. Xx

Sandra Knott
46 months ago

Thinking of you all xx

+ Read More
Fiona Collins
46 months ago

Luke's Life Legacy are following your story. Please get in touch.

+ Read More
Lynn Parkin
46 months ago

Thank you for keeping us updated, I know how difficult it must be. Everyday you are facing another hurdle, keep going - stay strong and we are all right behind you x

+ Read More
Bob Weatherit
46 months ago

Hi Stephen sorry to hear of the latest setback,have you logged onto the NCCT site at Freeman Hospital here in Newcastle to see what available they are making great progress on a daily basis for treatments.Try to keep positive as difficult as it is Bob

+ Read More
Sandra Knott
46 months ago

Keep strong we are all behind you and looking forward to our fundraising this week, big hugs to a lovely little man and all the family xxx

+ Read More
Trish Yearn
46 months ago

fingers crossed for a beautiful boy xxxxx will sponser 2 moz

+ Read More
Lynn Parkin
46 months ago

Don't give up the fight for William, he's so precious. Stay strong xx

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