Whizzy Wheels Again
Sheonad Macfarlane Giffnock and Thornliebank Ward, SCT
My daughter Eilidh is central to this GoFundMe story.
We are nearly seven years on from her diagnosis with Spinal Muscular Atrophy Grade 2, a muscle wasting condition which robs her of her strength and ability to move independently. In that time we've successfully fund raised twice to gain her Whizzy Wheels, SnapDragon wheelchairs which have brought with them independence and improved quality of life not only for Eilidh but for all of the family too.
It's now time to fundraise for something different - a mobile hoist. As Eilidh has grown it's becoming increasingly difficult for us to lift her; we have a tracking hoist in our home but find it hard to travel away from home. A mobile hoist would allow us, family and friends to safely lift her as we travel near and far on trips and holidays.
Take a look at the hoist we are looking to fund raise for - The Molift Smart 150.
Through enabling and empowering Eilidh with the equipment she requires, we too are learning; she teaches us how it is to live with disability. She brings joy and I am hopeful of a bright future, but we need to ask others to help raise funds for vital equipment not provided by the NHS.
Will you consider making a donation to support Eilidh's independence and help fund Eilidh's future?
To read more about Eilidh and SMA, please read below and follow the link included.
"In the beginning
and baby Niamh was born.
and then followed baby Eilidh.
A happy family,
full of love,
A future bright and ever possible.
And then that changed:
the future was no longer quite as clear.
Life had changed beyond their comprehension.
What happened to bring about such a change?
On Thursday 27th May 2010 Eilidh, at 16 months old, after months of worry, was diagnosed with Spinal Muscular Atrophy Grade 2. (To read more about this genetic condition please go to http://touchandtickle.blogspot.co.uk/p/what-is-sma.html) A diagnosis which changed our family's perceived future. A diagnosis which meant that Eilidh would be wheelchair dependent.