WE ARE HERE FOR LIAM

$26,553 of $50,000 goal

Raised by 320 people in 10 months
LW
Lindsay Walper
on behalf of Cari Comboye
 Victoria, BC
I have dedicated my life to helping others, especially in the health-related career I have chose to follow. I have tried to bring comfort and hope to each person that I have cared for in the hospital -- but in a twinkle of an eye my family’s life has changed and now we need to reach out to you, our friends and family for comfort, hope and support.

Our family just received the most heartbreaking news that our precious Liam (my nephew/oldest grandchild) who is only 3 years old, has malignant glioma diffuse intrinsic pontine glioma (a brain tumour), and his diagnosis is not good. We are shattered.

My sister Cari and Mike need to leave to Children’s Hospital in Vancouver for six weeks to be with Liam. Cari will also need to care for baby Brody who is only 5 months old. We need your help.

Please consider supporting my sister. There is no amount too small. We believe in miracles and know that love conquers all things and knowing you are with us in prayer and in spirit will bring some peace through this process. Thank you in advance for your support.

Respectfully, Lindsay Walper.  
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My precious Liam passed away on October 19th. I haven’t been able to say anything since the day you left my side. I thought it wasn’t really happening or I wished so hard it wasn’t real. Life feels like it has ended and I’m completely shattered, barely hanging on on. This pain is unbearable, I’m in a horrible dream. Your love lifts me up like helium Liam. If anyone knew me and Liam he was my soul , my heart, my being. I say hallelujah you are an angel in the shape of my son. When you took your last breath, I Wish I took mine. I will forever miss your sweet handsome face , your laughter, your warmth, your kindness, and touch. You made me a better person, and mother to Brody. I promise Liam , I will be the best mother to Brody, wife to your Daddy they are the light in this darkness. I will fight everyday to save other children who suffer from what took your life. This hell on earth of a journey that our family was dealt, will make will make a difference Liam , I promise. We will find the home run cure that can save lives in my lifetime. There won’t be a day, I don’t think of you my love and talk about you. Twinkle , Twinkle little star , do you know how loved you are.... love Mom .
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I could say there is no cure for DIPG, but that wouldn’t do the lack of a cure justice. There isn’t even adequate treatment for DIPG. The “treatment” option for kids diagnosed is radiation: high-energy particles or waves, such as x-rays, gamma rays, electron beams, or protons, to destroy or damage cancer cells.

The only problem with treating a child with radiation to destroy or damage cancer cells is that it also destroys healthy cells. It can also result in a number ofextremely unpleasant side effects such as nausea and inflammation, which physicians treat with steroids. Steroids then cause their own wealth of side effects such as weight gain, mood changes, and a ravenous appetite.

All to buy additional months. Not years. Months.

GO HOME AND LOVE YOUR CHILD

No, really. That’s the last option.

Can you imagine walking into a hospital to get your child checked out for concerning symptoms, learning he or she has an inoperable brain tumor, and then being told “your guess is as good as mine” by the medical staff?

That’s essentially what happened to my sister and her husband. Doctors know so little about this disease that the parents are in charge of treatment. The parents decide the path to take because there is no path to take.

Parents can fill their child with drugs and radiation with the hope of squeezing out a few months of quality life or choose to take their child home and watch them deteriorate bit by bit.

What would you do?

Today Mike, my sister and Liam visited the hospital for his weekly check ups...My sister shared with me last night that Liam isn't doing as good as he was. Our hearts are breaking watching him decline
The hospital staff noticed the change as well, they are attempting to move his MRI to this week hopefully to find out if there are any changes in his tumour. It is hard to say that word. How does my 3 year old nephew have a tumour? A killer tumour. My eyes are filled with tears, I can barely see the screen clearly, my heart is being ripped out of my chest. Brody suffers as well, Mike and Cari are dealing with their emotions, decreased energy due to exhaustion and not being able to do normal things like swimming or any activity where other kids are - including day programs and no daycare as they don't want him bringing home sickness as Liam's immune system is compromised

We need your prayers, today, tomorrow and always. Please pray for Liam - he will be having an MRI Thursday September 21st due to sudden symptoms instead of October 5th. Please pray for my sister, her husband, Liam and his little brother Brody. Our family needs them so very much. Please your prayers and shares mean more than you can imagine.
Pray for Liam - nothing is impossible
My little hero
Our hearts
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Since our July 5th MRI , and we heard the Tumor has shrunk by a little under half. The doctor said "I'm Happy as Hell , can I say Hell? We said Hell yes you can say it. We have been trying to enjoy our new way of life and taking every day as a gift. We have had lots of family visits which has been so comforting to us all. Liam has now started his second round of chemotherapy out of 6 cycles. On day 4 of taking it he got really sick , we called the hospital right away , we had to give Liam more meds to help with nausea. Today was his last day of chemo meds and so far so good. His appetite is literally a few bites of food a day , he's lost so much weight and his muscles seem to be much weaker. This is a daily battle we face and fight as a family and pray we conquer. Thank you for all the love and support it truly helps.
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Dave Weldon - thank you very much for reaching out to us...(this is Lindsay - Liam's Auntie...unfortunately due to where the tumour is located...doing a biopsy could kill him. His tumour is located in the pons in his brainstem. So we do not know exactly which kind of cancer this is...we only know it is DIPG
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Read a Previous Update
Kari Hubert
10 months ago
3
3

Hi there, my mother Carol Hamilton shared this fundraiser to my wall in hopes I could offer information to Liams parents on my treatment methods used. I have a brain cancer, Glioblastoma Multiforme and have used both medical and alternative medical therapies. Iook forward to hearing from any family members, feel free to message me and my love and thoughts are with you all.. Kari Hubert

+ Read More
Janet Heineman Sutter
10 months ago
2
2

I found this page through Jo enoughoftherare Bishop. My heart goes out to you and your precious Liam will be in my thoughts and prayers. May God give you all you need and allow you to lean upon Him as you walk this pathway. You are never alone.

+ Read More
Raechel Gray
9 months ago
1
1

No idea if this will help but I was just reading this article about a Dr in the US that operates on inoperable brain tumors. http://people.com/human-interest/florida-mom-cancer-free-doctor-removes-inoperable-brain-tumor/ She had a grade 4 glioblastoma

+ Read More
Patti Stoutenburg
10 months ago
1
1

Trying to read this through all my tears....breaking my heart, but love the pics!❤

+ Read More
Dave Weldon
7 months ago

Hi again, sorry to ask again, but has Liam been tested for PD-L1 which is a protein that masks the tumor from the bodies immune system? - if the tumor exhibits PD-L1 then there are drugs, immunotherapy drugs, that "unmask" the cancer and Liam's own immune system, his T-Cells, would attack the tumor.

+ Read More
Tiah Workman
3 months ago

I am so sorry for your loss :(

+ Read More
Amie Padilla
3 months ago

Oh my god -- there are no words. The tears are falling down my face at this sad sad news. As a mother, I just can't imagine. Your little angel is as peace now. My sincerest condolences.

+ Read More
Donna Lynch
3 months ago

I am so sorry for the loss of Liam. My heart breaks for your family. Your memories of him will last forever.

+ Read More
Lisa Blais
3 months ago

There are no words anyone can say at this time to lift you from this painful loss......just know that you are loved and that even the thoughts you have shared bless others . We are praying for you all ....

+ Read More
Patti Stoutenburg
5 months ago

My love & prayers are still with you all, & wishing you strength special hugs to sweet Liam, & Brody xoxo❤️

+ Read More
Amie Padilla
5 months ago

What a 'hell' of an update! Thinking of you and your family. Your strength is inspiring.

+ Read More
Dave Weldon
9 months ago

Hello there, have the family considered contacting the Conconi Family Immunotherapy Lab? - has the cancer been tested for PD-L1?

+ Read More
Patti Stoutenburg
9 months ago

Dear sweet Cari, & Mike! Thinking of you all the time, & sending prayers to you all for Liam! Was with Ashley today for a bit & we spoke of you with our love❤️ on Mother's Day, & everyday, love Patti xoxo

+ Read More
Patti Stoutenburg
9 months ago

Awe what a great bunch of people Mike works for! Super cute picture of Liam & his dragon~ with the eye patch❤️ Sending more love & prayers to everyone xoxo

+ Read More
Amanda Hopkins
9 months ago

From one fighting family to another, our thoughts are with you.

+ Read More

$26,553 of $50,000 goal

Raised by 320 people in 10 months
Created April 13, 2017
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AJ
$100
Arlene Jillard
4 months ago

No family should have to go through such heartbreak. Alayne, my prayers and my love are with you and everyone.

$20
Anonymous
4 months ago
SS
$100
Shikha Singh
4 months ago

We are there with you

Kari Hubert
10 months ago
3
3

Hi there, my mother Carol Hamilton shared this fundraiser to my wall in hopes I could offer information to Liams parents on my treatment methods used. I have a brain cancer, Glioblastoma Multiforme and have used both medical and alternative medical therapies. Iook forward to hearing from any family members, feel free to message me and my love and thoughts are with you all.. Kari Hubert

+ Read More
Janet Heineman Sutter
10 months ago
2
2

I found this page through Jo enoughoftherare Bishop. My heart goes out to you and your precious Liam will be in my thoughts and prayers. May God give you all you need and allow you to lean upon Him as you walk this pathway. You are never alone.

+ Read More
Raechel Gray
9 months ago
1
1

No idea if this will help but I was just reading this article about a Dr in the US that operates on inoperable brain tumors. http://people.com/human-interest/florida-mom-cancer-free-doctor-removes-inoperable-brain-tumor/ She had a grade 4 glioblastoma

+ Read More
Patti Stoutenburg
10 months ago
1
1

Trying to read this through all my tears....breaking my heart, but love the pics!❤

+ Read More
Dave Weldon
7 months ago

Hi again, sorry to ask again, but has Liam been tested for PD-L1 which is a protein that masks the tumor from the bodies immune system? - if the tumor exhibits PD-L1 then there are drugs, immunotherapy drugs, that "unmask" the cancer and Liam's own immune system, his T-Cells, would attack the tumor.

+ Read More
Tiah Workman
3 months ago

I am so sorry for your loss :(

+ Read More
Amie Padilla
3 months ago

Oh my god -- there are no words. The tears are falling down my face at this sad sad news. As a mother, I just can't imagine. Your little angel is as peace now. My sincerest condolences.

+ Read More
Donna Lynch
3 months ago

I am so sorry for the loss of Liam. My heart breaks for your family. Your memories of him will last forever.

+ Read More
Lisa Blais
3 months ago

There are no words anyone can say at this time to lift you from this painful loss......just know that you are loved and that even the thoughts you have shared bless others . We are praying for you all ....

+ Read More
Patti Stoutenburg
5 months ago

My love & prayers are still with you all, & wishing you strength special hugs to sweet Liam, & Brody xoxo❤️

+ Read More
Amie Padilla
5 months ago

What a 'hell' of an update! Thinking of you and your family. Your strength is inspiring.

+ Read More
Dave Weldon
9 months ago

Hello there, have the family considered contacting the Conconi Family Immunotherapy Lab? - has the cancer been tested for PD-L1?

+ Read More
Patti Stoutenburg
9 months ago

Dear sweet Cari, & Mike! Thinking of you all the time, & sending prayers to you all for Liam! Was with Ashley today for a bit & we spoke of you with our love❤️ on Mother's Day, & everyday, love Patti xoxo

+ Read More
Patti Stoutenburg
9 months ago

Awe what a great bunch of people Mike works for! Super cute picture of Liam & his dragon~ with the eye patch❤️ Sending more love & prayers to everyone xoxo

+ Read More
Amanda Hopkins
9 months ago

From one fighting family to another, our thoughts are with you.

+ Read More
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