Natalie's Medical Fund.

$5,221 of $60,000 goal

Raised by 73 people in 8 months
My name is Natalie, and I am 23 years old living with Cystic Fibrosis. Cystic Fibrosis causes various effects on the body, but mainly affects the digestive system and lungs. The degree of CF severity differs from person to person, however, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, will eventually lead to death.

At 23 years old, I am at the point of living with 15% lung function, requiring a lung transplant and needing to relocate to Toronto, ON. The recommended treatment now, is either keep on maintaining symptoms of CF, watching my lung function decline and succumb to the fate of CF, or have a life saving transplant that will give me my life back.  

In order to be put on the transplant list, I first need to relocate to this new city with my family as soon as possible. This means leaving my hometown behind, finding somewhere to live for the time being, while I'm waiting for a transplant. I would also need to travel three times a week into hospital to be monitored closely, be in inpatient rehab to get stronger for transplant and make sure my body is ready to receive new lungs. 

My family and I would be so grateful and appreciative of any donations given because it would help tremendously with the financial burden that comes with this adventure. It will help us not focus on finances so much, and be able to focus on my health and getting my life and our lives back on track. I, would be forever grateful to each and every person who decides to help me along this journey. 

Without this transplant, I am not sure that I am guaranteed another 2 years. This transplant is not a cure but it could give me a life that I have always dreamed of having. Instead of chest physiotherapy, hours of breathing treatments and endless medications, I could look forward to just a little bit of medications, more time with family and loved ones, making a life for myself, and enjoying the life I have been gifted.
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Hello everyone!
I apologize for the updates being so far and few, I wait until I have a significant amount before I update.

It has been ONE month today that I have been officially listed. Has been about the longest and hardest wait of my life, not going to lie. I have been doing transplant physio three times a week since being discharged from the hospital as well. I have a few sessions left to do in Toronto before we can start doing two a week in Oshawa and once a week in Toronto, which will be a little easier.

I have been on IV antibiotics for just over one month as well, fighting off an infection. I had a doctors appointment today and decided to go ahead with two more weeks of IV antibiotics and add two weeks of oral antibiotics on top of that. I have been struggling to keep my weight up as my gallstones have been acting up, so that's been tough on me for sure, and my PFT's (Pulmonary Function tests) are sitting at 13-14% at the moment.

So, with all that being said, things have definitely not been easy. Things are definitely harder than I thought they would be and it's been a mental change that I've had to deal with but I am doing it.
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Hello everyone!

I know it's been a while since I have updated. I wanted to wait until I had more significant news or things to tell everyone. We are finally moved into our new house in Oshawa. It was one hell of a move, and I wouldn't have been able to do it without everyone's help, without parents, and without my boyfriend. I appreciate everyone so so much for the help.

I am currently updating you all from St Michael's, I have been admitted for a lung infection (routine two week antibiotic run). I have an appointment next week with the Transplant Coordinator and the Transplant Surgeon to go over some things, the paperwork and hopefully get listed that day. It feels like it took a long time to get here, but it also feels like it all came way too fast. Everything has been so overwhelming, from the move to all the feelings to everything in between, sometimes it feels like it's all too much to handle. But I have been doing my best trying to stay positive, and with everyone's support that is what I will continue to do!

Thank you to everyone who has donated or spread the word or raised awareness for me, it has been greatly appreciated! We have come this far, but there's still a long way to go! It would mean so much if anyone could donate, share, spread the word, whatever you can.

Thank you all so much, will update again soon :)
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Hello everyone,

I know I haven’t updated in a while, I was just waiting for more tests to be done and results to come back before I updated anyone on anything. I would like to start by saying thank you to everyone who has supported me thus far, in whatever form you have donated, I appreciate it immensely and it does not go unnoticed.

In my last update I left everyone with the information that I had to go for an appointment with a gallstones specialist and go for a biopsy and wait for results from my liver specialist. As far as my gallstones issue is concerned, the specialist does not think that they are a pressing issue at the time being and has given his recommendation that we can wait until after my transplant to take care of the issue if it does not resolve on its own. I also went for a liver biopsy at the end of March in Toronto. The procedure went smoothly, and I do not remember most of it. The results came back, and I got a call from my liver specialist at 5 o’clock PM May 4th, telling me that I do NOT need a liver in addition to the double lung transplant. I guess the Force really was with me that day (for all you Star Wars fans).

I had an appointment with my CF team in Sudbury today, just a simple follow up to see how I’m doing, but also to see if my feelings are still the same regarding transplant. I told my doctor of course they were, I didn’t come this far to only come this far. So, she said they will be having another meeting May 31st to discuss my transplant case and check off everything that needed to be checked from their list, and then I would receive the official call shortly after.
Things are progressing more quickly now, we are in the home stretch of the process and shortly we will be able to begin our move down South and start this new adventure that life has lead me to. It is scary, I will not lie. I would be crazy if I didn’t find this scary at all. But this is what needs to be done for me to do all the wonderful things that I have planned in my head, and I will face this challenge with everything I’ve got, with all of your support to back me up.

That is the update I have for now, if you have any questions feel free to send me a message
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Hello everyone, sorry it has taken some time for me to post this update!

Things have been a little complicated lately and seem to be taking some time. Right now, the transplant team and a team of specialists are trying to diagnose what's wrong with my liver and where to go from there. Between an ultrasound taken in 2014 and a recent MRI done as part of transplant workup testing, they have said that there is significant unusual changes in my liver/spleen I believe. My MRI shows my liver being slightly bigger, with some cirrhosis and my spleen also looks enlarged. There are also stones from my gallbladder in some of the ducts as well.

I met with the liver transplant specialist a week or so ago and was given all of this information. She told me that I would have to go for a liver biopsy (where they take a little sample of your liver), so they could test it and find out what is going on and also another test to test the liver pressure or something like that. If these tests come back okay and it's nothing too severe, they will just be closely monitoring my liver. If they do not come back okay, then it is possible that I will need a liver transplant in addition to the double lung transplant as well.

I am meeting with another specialist in a couple weeks who will talk with me about my gallstones to see what can be done about that, if it is a possibility to have the gallbladder taken out now, or if it's possible to take it out at the same time as the transplant(s) are being done.

It has all been very overwhelming and stressful having to wait to find out answers, but I am grateful for everyone's support and kind words, definitely helps make things a little easier! I feel the love and appreciate everything being done !

If you have taken the time to read this far, there are a couple events that I am going to mention.

Spaghetti Fundraiser Dinner will be held at Algonquin Secondary school, from 3 PM to 7 PM May 5th, 2018. Tickets are 12$ for adults, 5$ for children 12 and under. There will also be a silent auction. I will further update on this as I know more, with ticket locations and where to buy.

Also, on april 6th, there will be a Jam Night in Bonfield hosted by the Rutherglen Jammers, silent auction as well.

Thank you everyone!
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$5,221 of $60,000 goal

Raised by 73 people in 8 months
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