Wayne's Open Heart Campaign
About 23 years ago, Wayne suffered a severe virus attack to his lungs and heart. During the past year, his enlarged heart weakened to the point of failure. Although he is at home now, his life is extremely tenuous. He is “on the list” for a heart transplant. The factors for this are incredibly complex. The doctors tell him it is “a long hard road” with no guarantees and many uncertainties! So all of us who are his friends and supporters send love and prayers to him, and mount this campaign to try to alleviate at least one form of suffering – needing money to pay many expenses as he is unable to work now.
When this crisis occurred, Wayne was in the midst of a major job search and at the end of his unemployment insurance. He has no more savings. With your help, his friends in the local Buddhist Community have set up this Open Heart Campaign to raise $30,000 to allow him to pay his rent, medical bills, and living expenses during this medical and financial crisis.
Even with this new shocking diagnosis of Advanced Heart Failure, Wayne remains true to his “essence” in life of shining light to others, and accepting all the challenges that he now faces with grace. We all know that death is certain. Wayne is now faced with knowing that it could be at any moment. His meditation practice is standing him in very good stead. He is active in the Dharma, and has always stepped up to help with retreats and gatherings of all kinds. He is a volunteer with the Medical Reserve Corp for the Town of Wellesley. He has volunteered in other groups like Boston Vegetarian Society, Yoga at the Ashram, etc. and is always ready to perform random acts of kindness.
But now, it is not too dramatic to say that every activity including carrying groceries can be taxing and can trigger another attack. This campaign will insure that Wayne and his girlfriend who is now his caregiver, can remain in their current home/apartment while he waits for a “perfect” heart match. Now, the tables are turned and Wayne needs our “random act of kindness”. Your kind gift will see him through financially as well emotionally, and your act of selfless giving will definitely warm his failing heart.
Many blessings to all who find it in their heart to contribute to this worthy cause of helping a kind and humble friend (with a very large heart in more ways than one, both literally and spiritually). We all deserve a loving heart!
HELP SPREAD THE WORD!
My cardiologist appointment showed my heart rhythms are stable and unchanged. But does not change the fact that my heart is still weak and enlarged.
I do have more follow-up appointments to monitor me.
Unfortunately, my resourceful and wonderful social worker who was working with me resigned her job so as to be with her family. Now I have to wait until they hire a new part-time SW to assist with my issues and insurance.
So far, I am doing fine for now. I have a new mission which is advocating to eliminate plastic straws and plastic pollution. I have researched materials on plastic pollution and eco-friendly products, etc. to campaign against our plastic straws use in Wellesley restaurants. Please see our group website for pertinent info to use and start a campaign in your community or Town.
Check out this You Tube video about a plastic straw in a turtle’s nostril by marine biologist, Christine Figgener on Dec 2015. It is painful and sad to watch.
I have learnt so much about the negative and toxic impacts of plastic pollution on our health, the environment, ocean, marine life and wildlife. Please follow the old mantra… RRR… Reduce, Reuse and Recycle or updated mantra…RRRR… Refuse- plastic straws and plastics. I will mention my own new mantra next time.
Find your passion!!!
The heart failure doctor wants me to come into ICU when I settle my insurance and other issues. I am trying to appeal SS on not putting me on Medicare after being on SSDI for 2 years. Transplant meds are ridiculously expensive and patients have to pay out of pocket as insurance does not cover most of it. I cannot afford this so I wait until my health insurance that I pay for, change to Medicare. Insurance bills can become insane especially staying in ICU.
It seems to be more dangerous for me to be in ICU as I have to get Cath every 7days alternating the insertion location. The risk of death, embolis, infection, side effects or complications seems too high to be in ICU indefinitely like months with serious IV meds with serious side effects like arrthymias that can send me into VT or VF or heart failure. The insertion sites also leaves permanent skin marks. I can become worst or dying while in ICU.
I feel I need to be sicker and ICU would be the option. Waiting at home is not an option. This is a hard decision as I am able to do many activities while I feel OK for now. Some may say why don’t you just get it. I wish it was that simple and quick. I pray that timing would be good when all the pieces fall in place.
In the meantime, I have other medical appointments due.
Until then, please pray for me to resolve these issues.
I have another test to look at my liver as I do not want to think about getting a liver transplant if it deteriorates. My weak heart affects my liver drastically.
Life continues as I try to make the best of it without feeling depressed or having a negative paradigm. People tell me that I have a great attitude to my condition and outlook.
Live life to the fullest and mindfully as you may never know what may happen tomorrow.
I had some doctor’s visits recently. With my transplant MD, cardiologist and liver specialist, everything seems unchanged but still slightly abnormal. I feel OK but still have a weak and enlarged heart.
Labs seemed the same. I had right heart catherization which may will let me know about the pressures in my heart which is one big indicator of the function of my heart. I am still low on the waiting list. This will be the third year and I will mostly likely move up my status for a heart.
It is a bit scary when the time is slowly approaching as you know it eventually will. I am trying to get my affairs in order. I have done some before.
I have already done searches for services but am not fully aware of what else is there. I am looking into other services that will help with my expenses.
I live in public housing which is OK for now as I could not afford the rent and expenses. Paying my expenses has and will always be a challenge as SSDI do not pay much. So far, I was able to get help when needed. Now it is a bit more difficult as I have maxed out on my credit cards. Life is a real struggle.
When I get my cath results, I will know how I am doing.
I have been keeping busy with my activities and interests. Life is never boring.
Hi Michael I am sorry to hear of your challenges. My thoughts and prayers are with you.
The Baione Family send our prayers and well wishes.May GOD Be with you and may your faith stay strong through these trying times. With Renee and her family by your side,The LORD our GOD has surrounded you with the right people. GOD Bless.
May the Lord have mercy on us. Brother Michael is one such who has always sought his own way/Dharma. In Trinidad and Tobago we have to get corporate sponsors such as via the Public Relations Officers. In America I am told it is more of a personal challenge to raise funds. I do hope some one can still approach Corporate America. I pray that uncle Michael and Renee can find their own way/Dharma. The Lord works/walks in strange ways. One door closes and another opens always even if so little. Please help Uncle Michael and I hope and pray you will persevere in the light or new light of the Lord.
I love you Uncle Michael! Everything will be okay, we have to believe it will.
My continued and prayerful support for Wayne's golden heart. Fr. Harold Imamshah
Life is all about learning how to love! Here is a wonderful opportunity to help a fellow human in need, while helping to strengthen your own heart! We are all in this together and Karma is real. Thank you ten thousand times my good hearted humans....
Thank you so much, friends. I am Wayne's eldest brother. I have reached out to my Catholic friends as well. I am a retired Catholic priest. Hopefully with God's grace and the generosity of many, we can help my brother who has a "heart of gold" even as his physical heart is weakening. With deepest appreciation from his brothers and family. Rev. Ron YM.