Vivienne's Medical Fund
We in the Northvale community were shocked to learn that Vivienne Knopp, an amazing 7-year old girl and friend to all of our children, fell suddenly ill while on vacation over Easter weekend. The Tuesday before her diagnosis, Vivienne was practicing with her softball team and running around the park playground with her friends. While in North Carolina visiting family, Vivienne suddenly lost partial mobility of her arm and began walking with a significant limp. Her parents brought her to the nearest hospital for examination and tests, which resulted in doctors diagnosing her with a very rare, very aggressive and inoperable form of childhood brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG).
DIPG is a brain tumor found in an area of the brain stem called the pons, which is responsible for controlling bodily functions like heartbeat, breathing, swallowing, eye movement, eyesight, and balance. The tumor almost exclusively occurs in children aged 4 to 11. Due to its location on the brain stem, it is almost impossible to remove the tumor surgically. As the tumor grows, it begins to interfere with all bodily functions where it restricts a child’s mobility, communication, and ability to eat and drink. The tumor eventually puts pressure on the nerves that control body functions through the pons and will lead to double vision, reduced eye movement, and significant weakness in the face, arms and legs.
Performing surgery to attempt to remove the tumor can result in severe neurological damage and may even be fatal. This type of tumor is not characteristically solid in mass and instead comprises several tumor cells that cannot be cleanly removed without also taking healthy cells out. The tumor is so aggressive that if surgery was possible, any remaining cells post-operation would continue to multiple and the mass would return.
As a Northvale community member and family friend to the Knopps, I am asking for your support in fighting for Vivienne on behalf of her amazing family.
Vivienne requires immediate, aggressive medical treatment to try and improve her medical situation. She is currently in a Houston hospital undergoing treatment in an attempt to save her life. The treatment path is very expensive and insurance does not cover the associated costs. However, the Knopps feel that the care she is receiving is her best chance at beating the odds. For those who know Viv, she is a smart, funny, strong and energetic little girl who always has a huge smile on her face.
The Knopps are in urgent need of your support and donations to help Vivienne continue her treatment path so she can continue to be a bright light in our community.
100% of all donations are being transferred into the Vivienne Knopp Irrevocable Trust where Vivienne’s parents can access the funds to pay for her medical expenses – specifically, 100% of funds raised will be allocated to her hospital stay, treatment path, specialist physician bills, any operations she may need if possible, and travel expenses when commuting to and from the hospital.
Your support is extremely urgent as Vivienne tries to fight through this. Any amount you can donate is not too little to help her beat this diagnosis. Let's all fight with Vivienne and ensure she has the best outcome possible.
Vivienne's viewing will be held on Sunday, December 10th from 2-6 pm at Saint Anthony's Church located at 199 Walnut Street, Northvale, NJ.
The funeral mass will also be held at Saint Anthony's church on Monday, December 11th at 10 am.
The interment will be held at George Washington Memorial Park in Paramus, NJ, immediately following the funeral service.
It is with deep sorrow and heartbreak that the Knopps would like to inform you of Vivienne’s passing this morning. They respectively ask for some privacy during this very difficult time to allow them the opportunity to process their loss and be with family. Details regarding Vivienne’s funeral arrangement will be made available in the coming days.
John and Giulia are beyond grateful for the outpouring of support you have given them and especially Vivienne over the last eight months. The various fundraisers and money raised through the GoFundMe campaign gave the Northvale community hope that Vivienne could beat her DIPG while allowing her to stay in our lives a little longer.
Personally, it is absolutely devastating to see such an amazing little girl succumb to such a rare and aggressive form of cancer. The Northvale community will miss Vivienne’s bright smile, amazing personality, and energy but we now have an incredible guardian watching over and protecting us.
Good evening - Please be informed that the event has been postponed due to unforeseeable circumstances and a new date will be communicated in the near future. The Knopp family is beyond appreciative for the outpouring of support you are providing to their amazing daughter and asks that you continue to keep Vivienne in your thoughts and prayers.
I also wanted to announce that the GFM campaign alone has surpassed $133K and all of the other community fundraisers that have occurred have made such an amazing impact in giving Vivienne the best chance to keep fighting this very aggressive, rare brain tumor.
Your support and ability to share this campaign with others is crucial to helping Vivienne continue getting the much-needed medical attention she needs in this very trying time.
Thanks for your understanding regarding the Gala postponement and happy holidays.
During this season of giving, we are so thankful for the generosity of The Rockleigh in donating the venue and food for the evening! This means that the vast majority of the money raised that night will go directly to the Vivienne Knopp Irrevocable Trust, and it is greatly needed! We hope that many of you will be able to attend this event. If you would like to purchase OR reserve a table or tickets, please email email@example.com OR ANY of the following committee members:
Rachel Ross Schanck
Sarah Eisner Kirch
Joanne Bonino Pianghi
We are now offering the option to RESERVE tickets or a table in advance! Simply contact any of the 4 of us listed above via email, messenger or text - we will reserve your tickets/table for you and you can pay at the door on the night of the event!
PLEASE help us share! We are all in this #FightForVivienne together!!
Please do not rush to treatments -- take a day to watch The Truth about Cancer docU Series. I also ask you to find out your childs MTHFR gene status (don't let the doctor say it does not matter) it 100% does. I would begin organic frankincense daily in a t formation on the face brain and on the stem of the neck and also CBD oil orally under the tongue... you can look to charlottes web organization... Please know Chemo and Radiation are not the only answers there are many many options of treatments. I will be praying for your child daily. Gerson Therapy and an alkalizing of the body would be a very good start... Just a question ? was your child given a vaccine before this began? I live near you in fort lee and have 3 children. If you need my help I am willing to come help - Do not be afraid to reach out , do not be fearful, do not make any choice for your child in fear. You also may want to look into the marijuanna with THC - find aggressive holistic doctors. --- text me 917-288-6223
We are so deeply sorry for your heartbreaking loss. There are no words, but please know that we will be praying your family through this month. May you feel the peace of Christ as you process your grief. Love from Aunt Katie's friends, the Raudenbushes.
Such a sad day....my heartfelt condolences for the loss of sweet Vivienne. Although I didn't have the opportunity to ever meet the little angel or her family, as a fellow Northvalean, I am deeply saddened to learn of her passing. May God give you all the strength to carry you through this sad, sad time.
i am so very very sorry. this is such sad news for vivienne and her family and friends... and the staff that treated her. i am really heartsick by her loss. my love, strength and prayers go to her family. i don't know them. i didn't know vivienne, but i am so very sad.
Might be of interest to the family, https://www.today.com/news/2-year-old-overcomes-stage-4-cancer-breakthrough-treatment-st-t119142
Praying for a miracle ❤ for a special little girl.
Please call me in reference to another fund raiser. I'd like to b able to put it on this page to get the word out. Thanks Christina Horton 201-655-8817
I work for a trust attorney. Let me know if you need help.
I hear you need gift donations for the basket raffle at Sear - I'll see what I can come up with and keep you posted.
Link for the meal train: https://www.mealtrain.com/trains/4dq7w6
Is there any way to make that flyer for the Sear House fundraiser easily shareable on public FB pages? I've already shared the go fund me but would like to just share the flyer as well to a public page. Thank you.
BEAUTIFUL!!! Thank you for sharing ♥