Vivian's Hope

$19,965 of $33,000 goal

Raised by 178 people in 7 months
Created October 3, 2017
The news that Vivian, our beloved 10 year old daughter, has DIPG, a terminal brain condition, is absolutely devastating. There is no known cause and no cure--making this something that could happen to any innocent child.

We are determined to do everything possible to help find a cure while ensuring that our darling maintains a high quality of life.

With the utmost grace and grit, Vivian has begun her fight to overcome this nighmare. We have resolved to enjoy each moment with her, from her unique sense of humor and gusto for sticker projects to the love that shines through her beautiful brown eyes every night when we sing our sunshine to sleep.

Beyond the conventional palliative options are some promising rays of hope, but all are quite costly ($30,000+ per treatment is standard, with no insurance coverage due to the experimental status) so we must start planning and saving up now to give Vivi the best possible chance.

Since every day with Vivi is a gift, we want to make all her dreams come true. Gwendolyn Gomez will act as the beneficiary on behalf of our daughter.

From playtime with koalas, pool parties and RV camping trips, your compassionate support to this campaign will allow us to make this time extra special + support us in our quest to beat the odds.
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Spring greetings! It's been a while since we've posted an update about Vivian. So glad to to share that she's doing very well.

Our 10 year old supergirl has withstood radiation, chemotherapy, targeted therapy and more pills and other supplements than she should ever have to deal with in a lifetime. All with a smile, an iron will and a wonderfully goofy sense of humor.

Attached is a recent photo of her at the beach, enjoying a beautiful afternoon and building a sandcastle, and just being a kid.

Thank you to everyone for your kind support in helping make this possible.
Enjoying the sun and sand @OceanBeach
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Happy holidays everyone! Yesterday we returned from Vivian's Make a Wish trip to Oahu, Hawaii so it seems like a good time to update everyone on how she's doing.

Vivian has responded very well to conventional therapy, which ended early last week. We are overjoyed to see that she is back to her old self personality-wise, and exhibiting far fewer symptoms than she has in many weeks. She still uses her scooter for longer excursions, but now walks independently most of the time. Her adorable smile and contagious laugh are also back, lighting up every day.

Hawaii was the perfect place to journey for some solid days of swimming, snorkling, big wave watching, playing with dolphins, ukelele strumming, and celebration of family.

We are humbled by the kindness, generosity and love that you have all shown towards our family this year. Wishing you all the very best for 2018.
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Vivian's health and mobility have continued to improve over the past weeks. While we've had some setbacks along the way, our little chatterbox is back! She was even able to walk entirely on her own during a short recent shopping trip.

Last weekend, we received a VIP San Diego zoo tour, which was truly special. We got to pet a kangaroo and a ringtail possum, feed an elephant, caress two koalas, and watched up very close as a lion pair and a jaguar were fed.

On Monday, Vivian hosted a pizza party for her 5th grade class in appreciation of the many handmade cards and gifts they have sent to support her.

Planning for the near future, when radiation ends in mid-Dec., is an overwhelming challenge. We'll then be treading in uncharted waters, searching for experimental miracles to prolong Vivian's precious existence without sacrificing her quality of life.

Nonetheless, we are in good spirits as the holidays kick into higher gear. Can't fully express how thankful we are to be together each and every day.
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This past weekend, we took Vivian to the zoo for some special events thanks to the SD Zoo Healing Arts program. She created a bat-themed watercolor, got a closeup view of a binturong, and received lots of treats at the Halloween carnival.

Afterwards, we were able to spend several hours at the zoo thanks to the use of a rented mobility scooter, Vivi adored it, and it was indeed the only thing that made it possible for her to spend so much time out and about.

Thanks to your generous donations, we were able to purchase a mobility scooter for Vivi. She is thrilled with it; the fact that she now has so much confidence to go outside is wonderful!
Scooting around the zoo!
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$19,965 of $33,000 goal

Raised by 178 people in 7 months
Created October 3, 2017
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