21
21
2

Victoria's fight for Orkambi

$1,865 of $100,000 goal

Raised by 20 people in 9 months
Created May 4, 2018
Mari Kae
on behalf of Carol Pennington Vigneau
Victoria, 15 is the daughter of a friend of mine.  She was diagnosed as an infant with Cystic Fibrosis. Cystic Fibrosis (C.F.) is a hereditary disorder that causes the production of thick mucus which blocks the lungs resulting in respitory infections. As I write this she is once again in Sick Children's hospital in Toronto.

Victoria is a brave young girl that had recently advocated at Queens park for herself and others living with  Cystic Fibrosis. Currently there is no cure for C.F.  Orkambi is a drug that has been clinically proven to improve lung function and  reduce infection. Unfortunately this medication is not covered by OHIP and a year supply costs approximately 250,000.  Victoria is asking the Ontario government to negotiate with Vertex, the drug company to lower the cost of the medication. 

As long as she can, Victoria will continue to advocate for those suffering with C.F. But for now she needs your help.  Any donation would be greatly appreciated to help with the costs of the medication she desperately needs, or costs related to her care.  

To learn more please read the Toronto Sun newspaper from Thursday May 3,  2018 or click on the link below. 

http://www.cbc.ca/news/canada/toronto/ohip-plus-cystic-fibrosis-drugs-1.4623150

Thank you.
+ Read More

$1,865 of $100,000 goal

Raised by 20 people in 9 months
Created May 4, 2018
Mari Kae
on behalf of Carol Pennington Vigneau
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
ST
$100
Silvana Tassone
9 months ago
KM
$50
Katherina McIsaac
9 months ago
CM
$20
Craig Miller
9 months ago
JG
$20
Jeffrey Goodall
9 months ago
JJ
$50
Janese Jones
9 months ago
$20
Jory Holt
9 months ago
DM
$500
David Mckerroll
9 months ago
JQ
$25
John Quinn
9 months ago
ML
$50
Marc Laframboise
9 months ago
$50
Anonymous
9 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.