Vest for Loh

£3,120 of £10,000 goal

Raised by 127 people in 33 months
Our beautiful Shiloh was born with Cystic Fibrosis 6 years ago but this doesn't stop her ! However over the last 2 years she has developed serious allergies to fungal spores that are using her precious little lungs as a greenhouse. Because of the Cystic Fibrosis causing thickening of mucus and her not being able to cough it up like the average person can, this has enabled the fungal spores to grow, spread and remain there causing reduced lung capacity and risk of further complications. Loh is a little powerhouse who recovered from pneumonia with just one lung functioning in the past year.
Loh goes into Great Ormond Street every three month for specialist invasive treatment to her lungs she's had 5 treatments so far. Due to return again in April 2016
Cystic Fibrosis affects so much of Loh 's life. Every day she takes a huge range of oral medication, uses a nebuliser and has a physiotherapy regime all before school and again at bedtime. The condition and treatment has given her muscle weakness and tiredness, sometimes she is too exhausted to even do her physio that she can't live without. She has to have this twice a day.
Its a vicious circle Loh needs to be able to run around to loosen the mucus so she can cough up but when she's exhausted she can't which makes it unhealthily build up.
We are looking to buy a specialist inflatable vest that will shake and loosen up the mucus to support the ongoing treatment she's having. This amazing piece of equipment can cost anything from £7000 to £10000 and sadly the NHS are unable to fund this so we are appealing for your help and also will be organising fund raising activities. 
William Bellamy Primary School where Shiloh attends have very generously agreed to match whatever is raised by pupils and parents in their fundraising efforts. Due to unforeseen circumstances Shiloh is now in the process of transferring schools.
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We are pleased to announce that we have reached our target with the money that we have collected here on this go fund page and with the fund raising events that have gone on over the last 2 years we have successfully made the target that is needed for sorting out the most important piece of equipment for this lovely little girl shiloh who is now 8 and is aesthetically grateful and happy to know that she has the chance to own her own vest.
We as a family wholeheartedly thank everyone that has helped donated in any shape or form to achieve this wish for our shiloh. Big Thank you to all
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We are so excited 2 more days before this amazing event

Fundraiser afternoon tea for our Shiloh's PHYSIO VEST

We are so grateful for all your time and care and look forward to meeting you all
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Hi everyone I do apologise for the lack of updates.

We have had quite a rollercoaster year with our darling little Angel Shiloh who has been one awesome little fighter.

Sadly Shiloh's lungs over the year have teriorated so badly that for the right lung there was only one option to remove a section of it to try and preserve the rest from being damaged by the spread of the severely infected middle lobe.

 So at the end of August 2017 Shiloh had a Lobectomy a major operation that involves removing the middle lobe of her right lung.

The operation lasted for four hours with some complications, keyhole surgery was considered but when she got to theatre the lobe was so inflamed and full of puss mucus and infection she had to be opened up to remove the lung safely but sadly they still were not able to remove all of the badly affected area as the top of the bottom middle lobe is also extensively damaged.

We can only hope that there has been enough removed to preserve what is left of the right lung.

Now Shiloh's at a critical stage were in she has to work harder than she ever has to intensify the physio she already dose 3 times per day,



 Shiloh is still struggling with her recovery but it is early days yet. We cannot wait to see her back to her usual cheeky little self full of Energy and joy for life. Although she does her up most to push through the pain our supergirl has had to accept this time she has to rest and recover whether she likes it or not. Her strength is awesome  and during her 6 week stay at Great Ormond Street  there wasn't a member of her medical team that wasn't flabbergasted  with her recovery time  and the fact that she endured so much pain without a fuss.

If u would like to keep regularly updated and follow Shiloh throughout her journey for the fight of her life please visit her fb page; Vest For Loh.

WE HAVE SOME EXCITING NEWS OF AN UP AND COMING  FUNDRASING EVENT FOR SHILOH ON THE 11TH OF NOVEMBER HOSTED by Nicola Jane AND GUEST PERFORMERS from the winner of THE KIDS VOICE AND EsseX factor contestant. All welcome children too. Plenty for them to do and best of all a greet and meet meet with our guest of honour SHILOH

For full details and line up for the fundraising event follow the link below

Thanks to Nicola Jane's friends and family and all those that have been so kind and generous with your donations so far, because without your care and generosity we wouldn't have raised as much as we have now.

We can only hope with more fundraising we will be able to raise enough to buy shiloh her PHYSIO VEST ASAP to help aid her in her Fight For Life
This was the day she came up from theatre
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the quick update and I apologise for the lack of updates
Unfortunately a little angel shiloh has been quite poorly for all of this year they found at the beginning of the year the pseudomonas and aspergillus was quite bad they gave her a usual IVs over a period of two weeks and then she was sent home unfortunately at the beginning of March she was rust back into gosh Hospital with pneumonia
Her mum has had a meeting with the top surgeon and their game plan is to hopefully get on top of the infection that is causing so much pain for this little one, her right lung is being squashed up against her ribs due to an abnormality and all the infection. So the doctors are looking to remove the bottom lobe in her right lung failing this operation they have said in three years time she could be put onto the lung transplant list as her deterioration is such and this is where they could see her going if they can't get on top of all this infection. So I do urge the importance of this campaign getting our little angel this vest to help her do a her physio to keep her lungs healthy. I take this opportunity to thank her mum and her friend for the 25k walk they done last yer and they dun very well. They will also be doing the walk again this year. Thank you every one that is helping. Please keep up the good work. We still have quite a way to go
Hospital admission
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£3,120 of £10,000 goal

Raised by 127 people in 33 months
Created March 22, 2016
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Nicky Stack
2 months ago

You are one of the bravest girls I know, I love your fb posts ❤️

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