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Cancer treatment expenses for kidney recipient

$1,860 of $2,500 goal

Raised by 19 people in 28 days

39340062_1559816432590786_r.jpeg(Photo updated since surgery)
(Note 6/5/19:  Thank you all so much for your prayers and help!!! I have to update the amount needed to add in what we are told we may need as our part towards the lodging. I hate changing this, but if you read on, you'll see the necessity).
so initially I had this set to be a $1,000 goal --the GoFundMe default, but after discovering that our van is not repairable after all and that we will probably have to pay $35 a day towards our lodging for 30 -35 days, I had to add that that on as well as the GoFundMe fees).

My husband has been diagnosed with squamous cell cancer. He has a tumor on his neck/head the size of a grapefruit. You can see it in the photo, though it has grown considerably since I took the photo.
   He is scheduled to undergo surgery on Tuesday and will be hospitalized 5 days afterwards. They have to operate in two stages. The first 5 hours will be to remove the tumor and any other areas that need it.(There are 3 other smaller areas). Then another five hours for reconstructive surgery where they will take skin from either his chest or thigh to replace the skin that's removed on his neck and head.
    This will be at the Cleveland Clinic.
    Three weeks later he will undergo radiation treatments for about 6 weeks. That will occur in Cleveland, about 5 days a week.
   My small family consists of my husband, our son (who is 16 and autistic, non-verbal) and myself. We are all disabled.
    Greg had a kidney transplant in 2011 after which he has to remain on immunosuppressants for the rest of his life. These drugs help his body avoid rejecting the kidney, but they also greatly reduce his immune system and makes him more susceptible to other illnesses.
    That makes this cancer treatment so much trickier because they have to monitor him closely as they take him off the immunosuppressants did he can heal after surgery, but during that duration he is at risk for kidney failure.
    We live an hour and a half drive from Cleveland near Mansfield.
    Another issue is that on his way home from an appointment a few days ago, he hit a deer and came very close to totalling our only running vehicle (still waiting to hear back from our insurance company and mechanicb. We have a rental car through tomorrow but his surgery is the next day.
    I don't know how we can afford the rental car after the insurance company stops paying for it. The contract is only through Monday and surgery is Tuesday.
   There will be a lot of trips to Cleveland and back for my son and I during surgery week, then when radiation begins (3 weeks after surgery) there is up to 6 weeks of getting him to Cleveland daily for that.
    The average cancer patient in our area can get radiation here, but due to his complex medical situation with his kidney it has to be done there near his specialists and his kidney transplant doctor, the doctors tell us.
    My husband suffered sepsis in his knee in December and January, then had part of his toe amputated in March due to MRSA, now cancer...
     Any help for getting him to surgery and treatments and meals for my son and I during surgery week and the six weeks of radiation is so much appreciated.
     We have to pay for a rental car to get Greg to his surgery, my son and I to and from Cleveland (an hour and a half one way) to be with him during surgery week, $500 for our insurance deductible for our van repairs, back and forth to Cleveland for follow-up appointments. Then beginning June 11th he starts radiation for about 6 weeks. He can't have it done near our home, but due to his kidney concerns has to have it done there at the Cleveland Clinic downtown to be close to his specialists including his kidney transplant doctor.
    We are a Christian family and I've laid this at the foot of the cross. This funding was suggested by several members of Facebook groups I'm a part of, and I'm humbling myself to place this as part of trusting God to get us through.
    I know the Lord will bless you for any help you may offer. Thank you ❤
    I plan to share updates on my website at SincerelySapphire.com
www.sincerelysapphire.com
As well as here on the GoFundMe page.
Thank you and God bless you!

(Edit note:  so initially I this set to be a $1,000 goal --the GoFundMe default, but after discovering that our van is not repairable after all and that we will probably have to pay $35 a day towards our lodging for 30 -35 days, I had to add that that on as well as the GoFundMe fees).

   I'm extremely grateful and thankful for any and all donations you are able to bless us with, and I covet your prayers to get us through all this❤
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Tomorrow begins the next phase in this journey. Greg gets released from the nursing home and we prepare for radiation and chemo.
I'm visiting him now and after I visit my mom (just up the hall) I will go home and do a load of laundry and begin packing.
The American Cancer society hadn't found lodging for us yet (this week was a no go, but they are trying for next week). However, Greg's client/friend lives in a large home in Solon (about 30 minutes from the Cleveland Clinic downtown where he will l get his treatments) and they have generously opened their lovely home for us to stay during the treatment phase (we will go home on weekends). My hope is that the ACS can find lodging for us for the remainder of the time (6 weeks in all, 5 days a week) so we don't have to impose on his friends longer than necessary.
Greg's brother Bob had offered to watch our little dog.
Greg told me today thathe's heard from a man in Syracuse, NY who is interested in the pinball machine. Please pray he buys it so we can buy our new vehicle and have that worry over with!!
Yesterday was the last day our insurance company will pay for our rental car, so we begins paying the whole amount ourselves as of today.
We would not be able to do that without your generosity and prayers, so thank you so much and God bless you greatly!
We will have lodging at least for this coming week, but we will have to have meals out. So between the full rental car fee and meals out it's going to go fast.
To cushion that a bit I bought a membership to the Entertainment book app ($19 per year, first month free) so we can get a long of dining discounts and buy one/get one free deals.
I'm really trying to be a good steward of your generosity and kindness.
God bless you
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Greg is still in the nursing home recovering from major cancer surgery where her gets physical therapy daily. Sunday should be his last day there as radiation and chemo (he's still contemplating the chemo) begins on Monday.
His wound is healing remarkably! I'm very encouraged by that.
He still slurs his words and his right eye is dropping...
I just got the call (as I was typing this) that we have to turn the rental car back in :(
The pinball machine ad went live today on Mr Pinball.com so please pray for a buyer!
I'm going to a AAA rental car lot in a few moments to try to get a new rental. Otherwise I don't know how I can get Greg to radiation on Monday!
I'm supposed to hear back from the American Cancer Society after 2:00 about lodging for the duration or I'll be driving him back and forth there and back (170 miles round trip).
Please pray...sigh...
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I've been meaning to post this. Greg's wound is healing really nicely.
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Greg is improving from the cancer surgery nicely. The wound is a whole lot better now. It's healing nicely.
He gets tired and weak pretty easily. He starts radiation on June 17th and will have six doses of low-dose chemo (to spare his kidney). He's still in the nursing home though I've taken him to doctors at the Cleveland Clinic three times, and will again on Tuesday.
We're working hard trying to sell that pinball machine to raise money for a new vehicle. That's been hard on both of us. Me doing all I can at my end and wearing myself completely out, and Greg because he's so limited on what he's able to do and do from the nursing home.
I did manage to get him home for a few hours today for us to get the pinball machine all put together and functioning so we could take pictures of it to try to sell it.
We have a few interested buyers. Just waiting for an offer now.
These crises all happening all at once is exhausting!!
Today I searched and searched through his messy "man cave" (rec room) till I found the cord then he needed a key we finally found, then another key for the header he forgot about. Then the translight search began. Finally found that. Then I had to go to Lowe's to buy a piece of glass for the display area he'd given me the dimensions for only to get it home and discover it didn't fit, so I have to go back tomorrow to get a replacement with the correct dimensions.
Anyway, it's running now and in great shape. We got the photos taken. Now just waiting for the right buyer.
He has another appointment with his radiology oncologist on Tuesday.
He's having physical therapy about 2 hours a day at the nursing home.
So much is up in the air with the transportation crises, and hoping to hear back about lodging during the radiation and chemo. My head is spinning...
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$1,860 of $2,500 goal

Raised by 19 people in 28 days
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$30
Esperance Niyoyankunze
5 days ago
$25
Julie Lannin
7 days ago
$20
Michael Shannon
8 days ago
JC
$25
Jennifer Caulfield
9 days ago
MP
$30
Mary-Louise Parker
9 days ago
HB
$50
Harrison Bates
9 days ago
KB
$20
Kathleen Benzel
9 days ago
$500
Anonymous
10 days ago
RL
$50
Robert Lally
10 days ago
KS
$50
Kurt Shimada
10 days ago
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