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Cancer treatment expenses for kidney recipient

$4,000 of $5,800 goal

Raised by 37 people in 3 months

39340062_1559816432590786_r.jpeg(Photo updated since surgery)
(Note 6/5/19:  Thank you all so much for your prayers and help!!! I have to update the amount needed to add in what we are told we may need as our part towards the lodging. I hate changing this, but if you read on, you'll see the necessity).
so initially I had this set to be a $1,000 goal --the GoFundMe default, but after discovering that our van is not repairable after all and that we will probably have to pay $35 a day towards our lodging for 30 -35 days, I had to add that that on as well as the GoFundMe fees).

My husband has been diagnosed with squamous cell cancer. He has a tumor on his neck/head the size of a grapefruit. You can see it in the photo, though it has grown considerably since I took the photo.
   He is scheduled to undergo surgery on Tuesday and will be hospitalized 5 days afterwards. They have to operate in two stages. The first 5 hours will be to remove the tumor and any other areas that need it.(There are 3 other smaller areas). Then another five hours for reconstructive surgery where they will take skin from either his chest or thigh to replace the skin that's removed on his neck and head.
    This will be at the Cleveland Clinic.
    Three weeks later he will undergo radiation treatments for about 6 weeks. That will occur in Cleveland, about 5 days a week.
   My small family consists of my husband, our son (who is 16 and autistic, non-verbal) and myself. We are all disabled.
    Greg had a kidney transplant in 2011 after which he has to remain on immunosuppressants for the rest of his life. These drugs help his body avoid rejecting the kidney, but they also greatly reduce his immune system and makes him more susceptible to other illnesses.
    That makes this cancer treatment so much trickier because they have to monitor him closely as they take him off the immunosuppressants did he can heal after surgery, but during that duration he is at risk for kidney failure.
    We live an hour and a half drive from Cleveland near Mansfield.
    Another issue is that on his way home from an appointment a few days ago, he hit a deer and came very close to totalling our only running vehicle (still waiting to hear back from our insurance company and mechanicb. We have a rental car through tomorrow but his surgery is the next day.
    I don't know how we can afford the rental car after the insurance company stops paying for it. The contract is only through Monday and surgery is Tuesday.
   There will be a lot of trips to Cleveland and back for my son and I during surgery week, then when radiation begins (3 weeks after surgery) there is up to 6 weeks of getting him to Cleveland daily for that.
    The average cancer patient in our area can get radiation here, but due to his complex medical situation with his kidney it has to be done there near his specialists and his kidney transplant doctor, the doctors tell us.
    My husband suffered sepsis in his knee in December and January, then had part of his toe amputated in March due to MRSA, now cancer...
     Any help for getting him to surgery and treatments and meals for my son and I during surgery week and the six weeks of radiation is so much appreciated.
     We have to pay for a rental car to get Greg to his surgery, my son and I to and from Cleveland (an hour and a half one way) to be with him during surgery week, $500 for our insurance deductible for our van repairs, back and forth to Cleveland for follow-up appointments. Then beginning June 11th he starts radiation for about 6 weeks. He can't have it done near our home, but due to his kidney concerns has to have it done there at the Cleveland Clinic downtown to be close to his specialists including his kidney transplant doctor.
    We are a Christian family and I've laid this at the foot of the cross. This funding was suggested by several members of Facebook groups I'm a part of, and I'm humbling myself to place this as part of trusting God to get us through.
    I know the Lord will bless you for any help you may offer. Thank you ❤
    I plan to share updates on my website at SincerelySapphire.com
www.sincerelysapphire.com
As well as here on the GoFundMe page.
Thank you and God bless you!

(Edit note:  so initially I this set to be a $1,000 goal --the GoFundMe default, but after discovering that our van is not repairable after all and that we will probably have to pay $35 a day towards our lodging for 30 -35 days, I had to add that that on as well as the GoFundMe fees).

   I'm extremely grateful and thankful for any and all donations you are able to bless us with, and I covet your prayers to get us through all this❤
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My little raccoon ❤ Greg actually looks a lot better today than the other day. His right eye is open now.
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Please say a prayer for Greg and if he knows you, consider giving him a call. He's really lonely right now and has been in a bad place emotionally due to it
I've been really worried about him...
Evan and I were there Thursday night and are going back up tomorrow to see him.
But it's two more weeks till pay day and I have to be careful and budget our gas. It's 85 miles one way, so every time we go to be with him it's 170 miles.
The donations here have stopped and if you feel led, gasoline assistance would be a great help.
In addition, I'm asking you (if he knows you) to please consider visiting him or calling him. He has his cell phone with him. We are on the home stretch now (Lord willing) and he needs to know people care while he's laying there lonely and depressed.
They took the feeding tube out yesterday (yay!) and he is struggling to eat much, so that's a concern too.
Evan and I are fine. Just very stressed and worried about Greg. It's all really wearing me down
But I know God is still on the throne and He's got this...
Thanks
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Please continue praying for Greg. Evan and I are with him now. He is more banged up from his fall than I thought :( His eye is all swollen shut from falling in his nursing facility room night before last. (He wanted you to see his condition for those who have supported us, so he knows I am posting this).
They want him to be in a facility for 2 more weeks due to the IV. My mom's nursing home (I found out today) won't take him for that last 2 weeks without us paying $2,000 out of pocket for the Medicare co-pay. So I don't know what will happen at this point :(
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I just spoke with Greg. He said he's ok from last night's fall and there is no permanent damage. He's just sore more than anything.
He went to the kidney doctor today and his labs look great there! They told him it was better than a normal non-transplant person ☺
That's the good news
Now the not-so good news.
They don't think he's ready to come home yet because his doctors extended his IV medications, and he still has to have the feeding tube because he isn't handling the transition to regular food well.
BUT if he stays there we'd have to pay $150 a day out of pocket (which of course we can't).
If he comes home and a visiting nurse comes it would only be paid 100% if they are only needed 2 hours per week (which isn't likely).
As I was typing this, the social worker from the nursing home where he is in Cleveland called and we talked about it all and she agreed to check with the nursing home by our house (where my mom is) to see if we can transfer him there (which he is ok with since we could all be together much more often and he would be in familiar surroundings) and if that works out I would transport him there myself on Sunday).
I just hope our insurance covers it at our local nursing home since he was there last winter.
So please pray for the best possible outcome. Thanks!
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$4,000 of $5,800 goal

Raised by 37 people in 3 months
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RT
$100
Robert Taussig
2 hours ago
DD
$75
Dede Denbow
11 hours ago
KK
$20
Kathy King
18 days ago
DD
$250
Debra Duncan
27 days ago
$20
Anonymous
1 month ago
$25
Anonymous
1 month ago
MP
$30
Mark Parker
1 month ago
$350
Anonymous
1 month ago
$100
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1 month ago
LF
$20
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1 month ago
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