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Help Save my Wife's Life

$13,321 of $75,000 goal

Raised by 99 people in 5 months
33474400_1544574905849493_r.jpegMy wife, Leah,  became severely sick in 2015 with a life threatening disease. She has been diagnosed with a rare condition and a very complex detail of her illness is that she has severe mold exposure from back in 2015. That is where this all began for her. She went from being a very healthy, active, happy, free spirited, God loving woman and mother...to being bedridden. She has been fighting hard and struggling every single day for almost 4 years now. Our family has lost all of our financial income that I was able to provide. I resigned to be able to give her 24/7 care and to help to take care of our daughter. Leah has been diagnosed with Mast Cell Activation Disease, mold exposure, multiple chemical sensitivity, tick borne disease including Lyme, Babesia, Bartonella.  She also has been diagnosed with stage 4 endometriosis with ovarian endometrioma that ruptures one to two times per month(Leah is too weak to withstand surgery to get the mass out), severe migraine disorder, chronic fatigue, fibromyalgia, immune system dysfunction, dysautonomia, memory loss, stroke like symptoms, neurological degradation that is now thought to be irreparable, autonomic dysfunction, POTs and a list of others. She also has been diagnosed with diabetes insipidus due to the mold exposure. She suffers with extreme pain daily and is not able to take pain medicine due to her allergies. She has 4 safe foods. Her body is very malnourished. She has endured so much pain and suffering on a daily basis. She is on oxygen therapy,  in a wheel chair, and has to wear a respirator to even go to the hospital to get her IV treatments.  She has been going for these treatments for over 2 years now.  She is beginning to get beyond weak and tired. Her brain is not working as well and she is experiencing stroke like symptoms very often. She will wake up and not be able to move and she will struggle to breathe at times. She is taken by ambulance very often due to her condition.  Her symptoms have been getting much worse. And she is turning into one of the most severe cases her doctors have seen. She is not able to tolerate most of the standard treatments. Every other day she endures blood draws, IV infusions, hospitals, labs and she still makes sure to come home to our daughter every night and be her mother. Our little girl also has some issues from the mold exposure and allergy and we are Praying that she will never go through what her mother is battling. We have exhausted all of our financial resources. We took out 401k, Federal Air Marshals donated money and leave, Marines pulled together to help raise funds for us. Family has pulled together for us and Church's have held fundraisers. We appreciate everything and are grateful. We have lost our home, our car has been voluntarily repossessed, we have sold Leah's engagement ring and now her wedding ring. We have spent over $100,000 in medical bills and treatments and still owe a lot more money. Our focus is now on survival. We had hopes Leah would recover quickly and we were delivered the news today that in her current environment, since she was exposed to so many  forms of mold before this in 2015...HER BODY IS SHUTTING DOWN AND OUR DOCTOR FEARS THAT SOME DAMAGE EVEN WHEN IN A CLEAN ENVIRONMENT MAY BE IRREPARABLE. She is not able to even begin treatments until she is living in a sterile, clean room environment.  We are trying to build her a safe space where her body can begin to heal using MGO board that she can tolerate , low EMF and a positive pressure, air filtered, hospital grade, clean room that she can stay in to try to repair some of the damage to her body. She is being placed on home care once we get into a clean environment. The longer we wait the worse she gets. She has not been in public besides medical facilities since 2015. Here are some pictures of Leah before she became sick.  33474400_154457495359952_r.jpeg33474400_1544575032198314_r.jpeg33474400_1544575061486738_r.jpeg
To those that know us...we really struggled with asking for help. But, at this point we feel we are backed into a corner. Her biggest fear is leaving our little girl.  We appreciate any help and any donations. We really need Prayers. Leah says, "God is bigger than this...He will work it out." Her chant during every medical procedure, or when she is in so much pain and scared for her life is, "God is within her, she will not fall; God will help her at the break of day." Psalm 46:5  Thank you for your time and your Prayers. GOD BLESS https://tmsforacure.org/symptoms/symptoms-and-triggers-of-mast-cell-activation/   
Patient Worthy also wrote an article on Leah. You can view that here: https://patientworthy.com/2018/12/03/holding-on-to-faith-and-hope-leahs-story-part-1/ 
This is a glimpse of what she is going through daily. 33474400_1544575106815915_r.jpeg33474400_1544575136803311_r.jpeg33474400_1544575171806870_r.jpeg33474400_1544575220468380_r.jpeg33474400_1544575246175609_r.jpeg33474400_1544575272133057_r.jpeg33474400_1544575307711913_r.jpeg33474400_1544575340358294_r.jpeg33474400_1544575360458411_r.jpeg33474400_1544575384948810_r.jpeg33474400_1544575411676806_r.jpeg33474400_1544575430822912_r.jpeg
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Video on Progress and Thank You. Leah's mom was watching Harper today and Leah has been so tired, she was asleep again. The sun was out and I felt it on my heart to get outside and give an update and show the progress. Thank you. God Bless.
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Just wanted to update everyone on the progress of the safe addition for Leah and our family. We just received the wood today to begin framing the addition. It is too cold to pour the slab. The foundation is in, as well as plumbing and electric is run to the space already. Leah's dad just had the wood delivered today to frame everything. We are Praying for the weather to continue warmer. We are in upstate NY. So Praying for good weather....we will wait to pour slab until it is warmer. Leah also tested out some different windows and materials. It's very hard because she has been getting more and more sick as time progresses. Please Pray she can hold on just a few more months to get in this space. Every day she does IV treatments and tries to take her supplements to help her body, but they are sometimes hard for her to tolerate and she ends up very sick and goes through being very discouraged and then she sees Harper and her Spirits lift back up. She will continue to surrender daily, but not give up. Her picc line has been bothering her arm a bit. But she puts up with it and is thankful to have the blood draws and IVs at home. She is now on long term home care. We are very thankful. We have to meet with 2 new doctors this month. A new neurologist in Rochester. Her neurologist here did not feel equipped because of her migraines being about 20 per month now and her other symptoms. We also have to see a nephrologist because of her chronic low sodium. She keeps trying everyday and I know she is scared, but leans on Jesus and thanks me for being with her and taking care of her. She homeschool's Harper daily, but gets very tired and does it from bed. But, Harper has the ability to make her mama happy and smile always. I try to take Harper on adventures and get her out for activities while Leah's dad is home with her and working on the addition. Harper has another dentist appointment tomorrow and we are Praying they can save her tooth and all goes well.She did great 2 weeks ago getting her abcessed one pulled. We are Praying for Harper's health and for her to feel God's comfort and love. She is picking out small things for her new little room near Leah in the safe addition. Leah has been writing to different charities and even Lowes and Home Depot and Pella, the window company, when she has the energy to use her phone....the truth is we need about another $40,000 to complete the house and money is very tight. We are worried, but we will rely on God. He will provide. Leah says, "God has done bigger." So we will keep Praying. Thank you to everyone who made it possible for us to make it this far. You have no idea what it means to us. We love you all. God Bless you guys.
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This has been a pretty rough couple weeks. Harper has an abcess on her tooth. She has to get it pulled and is back on an antibiotic(penicillin) and then they will pull her tooth next week. She has a gene mutation that they will not be able to give her "laughing gas." She will be awake and we are waiting on the approval from her specialist that she can use lidocaine and epinephrine. We are Praying that God turns alot of things around for us. But, our biggest Prayer is Harper is healthy and comfortable and is not scared. She did get some blood work back and we are waiting on the doctor to tell us exactly what we are looking at. She is such a good girl and so so happy. She loves God so much. We know the Lord is with us. Providing and making a path.

Leah came with us and sat in the car all day yesterday. She was so stressed out yesterday, I'm not sure if she has a cold today, or if she is just exhausted mentally, and emotionally. We had blood work done at the house for Leah today. She had some issues with her picc line being moved around and pulled out and yanked on by a few nurses....its so hard because each new person you get, they have the ability to either really help, or to make things more difficult for her. We are thankful we think we have it figured out, but now keeping an eye on her body and Praying no infection. She really needs rest and she is trying really hard to give everything to God. It is very hard for her because she can not physically be in some of these places to hold Harper and comfort her. I think that is hardest part. But, she stays on the phone and is in car waiting for when Harper comes out. We will continue to Pray and to keep our hearts and eyes fixed on the Lord. We will update as we can. Right now, we Pray the Lord just washes His love and His strength over Harper.
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Just wanted to share some pictures of the progress on the safe space for Leah and Harper. The slab should be poured sometime this week. Leah's dad has been outside non stop working on getting the plumbing in. We have taken so many measures to safe guard Leah and make everything as non toxic as possible. We have also been testing different materials to see what she is allergic to before we use them. She has to test window samples and insulation, as well as MGO board and paints. Her dad is wiring everything to help with her EMF sensitivity and is using basically same thing they use in hospitals. The plumbing we are using is safe for her and we have to have a heavy duty filtration system anyways. We are building the addition right on her parents land because we could not afford to buy our own. We are so thankful. Here are some pictures. Leah got to make it outside briefly to look at it today and she can not put in to words how she feels. Just happy tears. Thank you to everyone who donated so far..and who continue to donate. The GoFundMe money made getting the foundation poured possible. We still have a ways to go on raising funds, but we know God will guide us. We are humbled and thankful. -Dorian
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