Life Changing Lyme Treatment Needed
I'm Karli, a 30 year old stay at home mom to two amazing little boys. I'm married to Lonny, a hard working, super supportive husband.
Almost a year and a half ago, after the birth of our second child, Presley, I noticed something was very wrong with my back. I was in pain 24/7 and had no idea why. I went to my doctor, who wasn't entirely sure what could be causing it but suggested starting physio, chiro and going on addictive pain medication. I did this for months and my symptoms only got worse instead of better. I went back to my doctor and asked if there was anything else we could do. He suggested keeping up with what I was doing and told me to make sure to take the pills I didn't want to take while taking care of my children. The pills made me feel out of it, but still in pain. One time i passed out after taking one pill, with both kids in my care. Needless to say, i don't take them anymore... I left the clinic in tears that day. The pain got so bad that I would end up in bed waiting for my husband to get home from work almost every day so he could take over looking after our boys. There were many nights I would lay in bed crying from the amount of pain I was in, begging my husband to let me take everything I had stashed in my bedside table. Of course, he did his best to make sure that didn't happen. I went back to my doctor numerous times, finally getting him to agree to an MRI. While waiting for my referral to go thru, I went to physio, acupuncture, chiro, massage, even a neuro surgeon and physiatrist... all numerous times. Three separate ER trips in between, all with no relief and no answer. My first MRI results came in saying there was a spot of concern on my spine, and I was called back for a second. I felt a bizarre sense of relief thinking maybe an answer was around the corner. No matter what it was, I felt like as long as the cause was found, it was progress and something to embrace. I was wrong. The first MRI showed something, but the second didn't. So, the unrelenting, painful mystery remained. What was going on with my back that could be totally disrupting our lives? How do I fix this? How much longer could I live like this? Those questions plagued me and my husband for over a year. Doctors were not taking my pain seriously and my depression worsened. Then, a friend told me about Lyme disease and that so many of my symptoms matched up. She told me I would most likely be met with skepticism from doctors as Lyme isn't well recognized yet in the medical community. So, with hesitation and a lot of guts I asked my doctor for a Lyme blood test. The Canadian blood test is very simple, generic and not in depth. There are many co-infections that can be involved with Lyme, and the Canadian test doesn't look for any of them. So, like almost everyone else who ends up actually having Lyme, I tested negative on the Canadian test. In order to get a complete Lyme test, I would need to get my blood drawn here and send it off to a lab in California called Igenex. These tests cost money. Money our family doesn't have. We have been contemplating asking for help for over half a year... but the time needs to be now. My symptoms remain, and are now progressing and evolving... into chronic headaches, dizziness, fatigue, tinnitus, and more. We need to figure out what's wrong. If we can rule Lyme disease out, we can focus on other possibilities, and vice versa. We need our quality of life back.. It's been gone for far too long. Our children need their mom back, and my husband needs his wife to be healthy and happy, and able to function. Again, this isn't easy for us to ask, but we have decided to put our pride aside for now. Thanks for reading this. If donating isn't a possibility, just the acknowledgment that chronic pain is real is more than enough for us. Thank you!
I've recently started back on antiviral and antibiotics for Lyme and co-infections (Bartonella and babesia), and have added rectal ozone insufflation therapy. In two weeks I will begin needing regular iv infusions of different vitamins and other things to help my body detox (rid the toxins (bacteria etc) that are being killed off by the antibiotics. )These IVs cost lots of money. Unfortunately, my benefits have been blown thru in under two months so everything is once again out of pocket.
My husband is doing the best he can to give me what I need medically, but we could use some help again. We hate having to reach out for financial help. But we feel we have no choice as I need to get better. There can't be another alternative.
We appreciate your continued support and would ask for you to please share this on social media so that it reaches as many as possible.
Thanks once again,
Lonny, Karli, Liam and Presley Bergen
There will also be great prizes to enter to win as well as a 50/50! To purchase your tickets, please email me at email@example.com.
Tickets need to be purchased soon so we can ensure our venue has advanced notice of numbers to plan for, meal wise!
Sharing this event with your friends and family would also help us tremendously, as getting the word out is paramount!
Thank you so much for your continued support. This has already been a long journey and it's going to be even longer unfortunately. Treatments could help expedite this process, but those treatments cost a lot of money. That's why we are holding this fundraiser.
We hope to see you there. It's going to be a great evening!
Here it is!
Karli’s Lyme Journey
I grew up in Manitou, MB. I was the shy but adventurous girl who rode horses in 4-H, biked into town, cut grass, and lived in mosquito bites. Sometimes I would find this strange bug stuck in my skin, too. By the time I found them, they were already white. Ugly things. I didn't know how ugly they REALLY were until I had kids of my own.
In Sept 2014, we were over the moon with our newborn second son. It should have been one of the happiest times of our lives. But it soon became a living nightmare. Excruciating upper back and neck pain became my new normal. No medical therapies helped. Insomnia, fatigue, anxiety. Vibrating sensations in my abdomen, burning fingers, bone pain, pressure headaches, air hunger. But that back pain... Something had to be very wrong. Countless trips to my GP, specialists, MRIs, blood tests, ER visits. No answers, no relief. I was going down, fast.
One day, a friend said my symptoms sounded like a friend of hers. She had Lyme Disease. I put it in the back of my mind... and then I looked it up. The flood gates officially opened.
"In the fullness of time, the mainstream handling of Chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine." - Dr Kenneth Lieger
In May 2016, after learning our Canadian Lyme test misses up to 70% of cases, and spending thousands to get properly tested, I finally had my answer. I have chronic, late stage Lyme Disease. Relief! No. In order to get proper treatment, I would have to go out of province. We set up a go fund me. A month later, I left my young family behind to see a Lyme specialist in BC. I finally felt a sense of hope.
A year of countless combinations of antibiotics and herbals later, there is some progress, but it is slow and expensive.
Our Canadian health insurance does not cover Lyme treatment and specialist appts. Our government doesn't recognize my disability. One that has made my husband not only work a full time job, but come home after to care for 3 instead of 2.
Lyme disease has taken a lot from us, and my monthly Medical costs keep piling up. There are new treatments that have proven to help Lyme patients feel better and even reach remission. These are very costly.
With your support, I'll have access to more options to help me hopefully get better, faster. There is a Sud Spud and Steak fundraiser being held at Thirsty Lion Tavern in Wpg MB on August 19,2017 for my Lyme Journey. To help by donating a silent auction prize please contact Jackie Shoemaker@1-204-825-0150 or email firstname.lastname@example.org.
Tickets will be available in Manitou at Sam’s Food Store, or by contacting Wilf Klippenstein(204-822-8570) Jackie Shoemaker (204-825-0150) or Lonny Bergen(204-223-9046)
There is a GoFundMe page set up as well: https://www.gofundme.com/upv2dghw
Southern MB is a tick hot spot, and this is going to be a record year. Please do regular tick checks on yourself and your kids. To learn more, visit www.canlyme.org.
On behalf of Karli, thank you for your time and consideration by considering helping us with a silent auction prize. You may contact me for pick up or my mailing address to send it to. I will be doing a follow up call/visit with all business’ by July.
I'm still going hard on antibiotic and supplement treatment, but haven't been able to successfully get enough funds together for some iv treatments.
What's happening now that this fundraising platform has started to no longer be of enough help, is that one of my friends has decided to try to put organize a social to help me with my treatment costs.
My ideal treatment goal would to go to a place that has been getting so many people better, fast. It's a place called Infusio. They use your own stem cells and many other complex procedures to get you better. They are based in Germany and Beverley hills. It's the place that some celebrities have gone to get better. It is very expensive but there are ppl just like myself going. Some have had to re - mortgage their home. Sell everything they have. Some have gotten money from crowd funding, just like this. And they don't regret doing any of it, because IT WORKS.
Here is the run down for the Infusio chronic Lyme treatment:
Immune Modulation: Modulating the immune system by regenerating the thymus gland function using thymus extracts.
Substitution: Substituting vitamins and minerals to give the body building blocks to use while healing.
Detoxification: Addressing viruses, bacteria and toxins that may interfere with the healing process.
Disease Specific Treatments: These are used to address acute symptoms related to the disease itself.
Mind-Body Medicine: Using bodywork, lifestyle and nutritional counseling as well as stress management techniques to eradicate factors that may make the patient susceptible to poor health.
The team feels that this comprehensive and integrative approach is critical to successful therapy. They also feel that this approach is superior to a solely symptomatic treatment approach and yields lasting and stable health for patients in the long-term.
The 2 week program is offered at Infusio Beverly Hills or Frankfurt treatment center.
The cost of the Lyme Program is between $25,000-$28,000 (US) depending on the treatment location being the US or Germany; typical Supportive Treatment Days (10 total) take place Monday through Friday, each day 3 to 4 hours in duration, with the stem cell procedure scheduled according to your attending practitioner’s recommendations. Travel costs and accommodations are extra. So at least 30,000 cdn minimum...
It's a lot. I know. It would be a dream come true to get there. It's a huge pipe dream, but it's one I feel will need to happen eventually anyway, so I have to start somewhere.
I'm hoping that thru your sharing of this campaign on social media, your generosity, and hopefully a very successful social fundraiser, that we can make this happen for my family.
I really encourage you to all share this campaign. My family would be so grateful. It's time for this Mom to feel like a healthy Mom again. One who can play with her kids, get them to school, get them to games... maybe one day I can even play games too!
Thank you so very much. Your support means the world to me.