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#unshakeableMikeyTrent

$46,738 of $50,000 goal

Raised by 566 people in 6 months
Created July 10, 2018
Megan Damon
on behalf of Matt Corwin
Some history:
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Meet Michael Trent! 14-year-old, spirited, athletic, fun-loving man-child;

awesome big brother and
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son,
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loving boyfriend,
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and the bestest, best friend.
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Mikey was diagnosed with a small aneurysm in his carotid artery about 4 years ago. Doctors told his parents that this was not to be worried about but that they would do another scan in 5 years to check that it hadn't grown.

About 2 months ago, Mikey asked if he could try out for football. His mom insisted that he couldn't until another MRI was done to check on his aneurysm. She had some convincing of his medical team to do because she wanted the scan done earlier than they had recommended but they got it done. What they discovered was an absolute shock... there was a new aneurysm, a fuseiform aneurysm in the basilar artery (middle of the brain stem) which was significantly larger in size than his original carotid artery aneurysm.

His doctors and parents worked to figure out a plan for almost a month for this rare and difficult diagnosis. His parents were advised to come back in 3 to 6 months to do another check-up and discuss putting in a stent instead of risking surgery to remove the aneurysm from this delicate location.

4 days later, on July 4th, Mikey suffered a stroke in his brain stem from a blood clot that had formed. No one could see the blood clot in CTs or an MRI until they did a CT with an angiogram and by then the damage was done. The doctors said it happened within 5 minutes and there was nothing anyone could have done to prevent it. Mikey has been in the ICU ever since.

He has now been diagnosed with Locked-In Syndrome with paralysis. This means that the damage done by the stroke in his brain stem has paralyzed him to the extent of no longer being able to move anything except his eyes, and only vertical movement and blinking at that. This is a paralysis that is rare and is unlikely to resolve.
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The Plan (so far)
 To provide him with any encouragement and support to recover any of his voluntary muscle movement that he can, (especially in his face and throat). Physical, Occupational, and Speech Therapy as soon as possible are a must in encouraging any of this recovery.

His mom and step dad (Dezaree and Matt Corwin) are already working out the details to renovate their home so that Michael can come home and have the space and access for his supplies and comfort that he needs AFTER he has grown strong enough to be discharged from the ICU and successfully completes a stay in rehabilitation.

However, there will be tremendous unforseen costs moving forward with Michael's care that include everything from communication devices, therapies, rehabilitation, etc.

Can you help?
Any amount of donation and/or support you can give is appreciated more than we can express. Or if you know of anyone or any treatment that we can look into to help our boy, please share your stories with us!

PLEASE pass this information along to family, extended family, best friends, friends, friends of friends, charities, do-gooders, etc. in the area and beyond to put their positive vibes, prayers, experiences and donations toward this mighty feat to help our family provide the best support and comfort to him that we can in this life-changing moment.

All you have to do is click the donate button above and/or share this link through Facebook, Twitter, Instagram, email, text, etc. 

Thank you so much, from the bottom of our hearts, thank you.

#unshakeableMikeyTrent #Mikeystrong

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Update 48
Posted by Megan Damon
23 hours ago
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"My baby is home and (almost) back to his normal smiley self. Thank you all for continuing to lift us up☝❤

This kid is my hero! Can't imagine the struggles he has faced and will continue to. He is like no other...

#unshakeableMikeyTrent"

-Mom (Dez Corwin)
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Update 47
Posted by Megan Damon
5 days ago
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Mikey's procedure seems to have been successful. Recent CT angiogram shows that the flow diverter stent and coils are doing their job. He is still struggling with headaches and controlling his pain, but he is recovering back at Roseville Kaiser PICU with some of his favorite nurses.
He had a very special visitor today... Mikey's rehab Doctor, Dr. Showen, from UCSF drove all the way from san fran to check on her boy. (Insert photo)
We want to thank everyone for their positive thoughts and prayers. This has been a nightmare, but we are hoping he is on the mend and we will return home soon .
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Update 46
Posted by Megan Damon
11 days ago
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On Jan 3rd Mikey was complaining of a terrible headache that would not subside along with extremely high blood pressure. After CTand MRI the doctors found that his aneurysm had not only grown since august but the wall was weakening and was putting him at high risk for rupture which would be fatal. There was no choice but to do surgery to try to divert the blood flow away from the weakening vessel. This procedure is very risky with an unfavorable survival risk, but we had no other options. The doctors preformed a flow diverter stent and coiling procedure.

This is Mikey's scans. Left is from Aug, right is from July.

The next picture is a 3D view of his aneurysm.

So far the procedure has been successful but he needs close monitoring to ensure the stent does not clot and cause a major stroke, or worse. He has had a very bad headache for the last few days which can only be treated with pain medication. The doctors said this was to be expected. They are keeping him in ICU until this headache can be managed and his temp comes back down to normal.

We thank God that #unshakeableMikeyTrent came out of surgery with no regression as far as his physical recovery is concerned...and of course his life.

Please continue to keep him and our family in your prayers. ❤
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Update 45
Posted by Megan Damon
14 days ago
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Merry Mikey Trent Christmas!

We hope you all had an incredible Christmas and wish you the most incredible 2019. May you, our #unshakeableMikeyTrent family, feel even an ounce of the love we have been shown this last 6 months.
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$46,738 of $50,000 goal

Raised by 566 people in 6 months
Created July 10, 2018
Megan Damon
on behalf of Matt Corwin
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