Ethan's Journey ❤️
Donation protected
Update: Ethan's liver is slowly failing. He's currently stable but has been listed for transplant. He is 28 on the list out of 40. His stomach is so distended that he is on 3 different diuretics to ease some of the retention. His stomach size makes in hard for him to breathe. We live in the mountains, and his doctors are at UC Davis and San Fransisco. With bimonthly blood draws in Sac, hospital stays, and drs appts, it's trying on us with only my income. Thank you for your love and support. ❤️
In the beginning of Ethan's liver transplant journey: Tomorrow Ethan goes back into the hospital. He has been coughing a lot and he just finished over a month of antibiotics a month ago. He's tired a lot. He does anywhere from 3-5 rigorous treatments a day. Each treatment takes about an hour and a half. He has been doing this since he was 6 weeks old. He has to take enzymes to aid in digestion every single time he eats anything. When he was 6 weeks old I would break open the enzymes-take about 6 or 7 little beads and would use my finger to shove them down his throat with a squirt of water before I would breastfeed him. This is his "normal" life. It is all he has ever known. It hasn't been easy, sometimes it's a fight. He doesn't want to do all these treatments. He doesn't get that option. It never feels like enough is done. It's hard being the enforcer. I can't explain how much my heart rips out of my chest when I see tears in his eyes. When he is scared or when he just wants to be a "normal" kid. When he wants to go to his friends house but has to take all his equipment. Or when he has to go do blood work, get liver biopsy, or finds out when the GI doctor last year says the word "transplant". Ethan screamed "NO!" absolutely terrified sobbing. That was the first both Ethan and I had heard that word used. I got my knees right there on the hospital floor begging the Lord to let it be me instead! I rebuked those words right then and there and looked at the doctor and said, "Are you a man of faith?" He said, "Yes!" I said, "The Lords going to heal my son!" Tomorrow marks a new hospital stay. I believe it is like a tune-up that is common with CF patients. A 2 week complete overhaul. We have IV's, pic line, and around the clock treatment to look forward too. But the end result will be a stronger little boy. By the Lords grace, we will get through this. I have faith. Ethan has learned to trust in the Lord with his whole heart and leans not on his own understanding. He is my warrior and he is so loved.
In the beginning of Ethan's liver transplant journey: Tomorrow Ethan goes back into the hospital. He has been coughing a lot and he just finished over a month of antibiotics a month ago. He's tired a lot. He does anywhere from 3-5 rigorous treatments a day. Each treatment takes about an hour and a half. He has been doing this since he was 6 weeks old. He has to take enzymes to aid in digestion every single time he eats anything. When he was 6 weeks old I would break open the enzymes-take about 6 or 7 little beads and would use my finger to shove them down his throat with a squirt of water before I would breastfeed him. This is his "normal" life. It is all he has ever known. It hasn't been easy, sometimes it's a fight. He doesn't want to do all these treatments. He doesn't get that option. It never feels like enough is done. It's hard being the enforcer. I can't explain how much my heart rips out of my chest when I see tears in his eyes. When he is scared or when he just wants to be a "normal" kid. When he wants to go to his friends house but has to take all his equipment. Or when he has to go do blood work, get liver biopsy, or finds out when the GI doctor last year says the word "transplant". Ethan screamed "NO!" absolutely terrified sobbing. That was the first both Ethan and I had heard that word used. I got my knees right there on the hospital floor begging the Lord to let it be me instead! I rebuked those words right then and there and looked at the doctor and said, "Are you a man of faith?" He said, "Yes!" I said, "The Lords going to heal my son!" Tomorrow marks a new hospital stay. I believe it is like a tune-up that is common with CF patients. A 2 week complete overhaul. We have IV's, pic line, and around the clock treatment to look forward too. But the end result will be a stronger little boy. By the Lords grace, we will get through this. I have faith. Ethan has learned to trust in the Lord with his whole heart and leans not on his own understanding. He is my warrior and he is so loved.
Organizer
Cynthia Prout
Organizer
Grass Valley, CA
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