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Eryk Shares

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Hello, My Name is Erika D'meza i am the mother of Eryk D'meza whom is 16 years old and suffers from a neurological Muscular disease called Spinal Muscular Atrophy Type One. This disease is progressive and will one day take his life. Eryk is attached to breathing Machines feeding pumps, heart monitors, nebulizer machines, cough assist machines and more on a day to day basis. Children who have noticeable SMA symptoms at or shortly after birth usually are very weak, have difficulty breathing, sucking and swallowing, and never reach the developmental milestone of being able to sit on their own.
This disease is a physical disability not mental. Eryk is a brilliant boy with so much to offer the world. He strives to do his best in school making straight A's and high honor's with advance courses. But the reality of this disease slaps him in the face every morning when he tries to get up and realizes how much work it takes for him to even cough or breath or the joys of eating are little by little being taken away. From a boy who enjoyed the taste of my cooking or eating out and snacking like any other child, to now a boy who can barley chew on already blended food cause his disease has deteriorated the muscles for him to even swallow. Never the less from a child who was able to sit up on his wheelchair all day be outside and play on his chair with his brothers and sisters to now a boy that can't be seated for to long up right without the possibility of him choking or even stop breathing cause his disease has progressed so fast that all the likening in his life are being taking away. What's amazing to me as a mom is that he still manages to wake up with a smile on his face and never I mean never complains once about anything. Even though he knows that he's getting worst and one day this god so awful disease will take his life he doesn't worry about it. He says ''mom I really would love to go to Yale or even Harvard and if I don't make it to one of thoses I want to go to NYU''. Eryk is selfless and he wants to mold the world to be not only an accessible place but useable place to others just like him where there are no boundaries.
Eryk also has a once a year event called Eryk Shares The Power Of Christmas where for the past 5 years for one day out of the year we invite over 250 children with disabilities to attend an event that we host and give toys, books, stuffed animals & more. That day is also a full day of fun for them where we have face painter's, magician's, crafts, gingerbread house making, create your own cupcakes station and more. We create a day of fun just for them until the center is up and running. You know ideally we think that gifts in life would be hitting the lotto or finding money or being given something but with Eryk in my life not only as my son but as my day to day teacher I've learned that a gift of life is being able to open our eyes in the morning or for Eryk stepping on the ground and enjoy the felling of the ground underneath his feet or for the blind seeing all the colors and scenery that we all so selfishly look past cause were rushing everyday going to a race to nowhere. We don't take the time to be grateful for all that surrounds us. An attitude in life towards things is such a small thing like given a smile to someone else or even giving a compliment but can cause such an immense effect on everything and everyone around us. That we don't realize, cause we're caught up in such a self absorbed world. I try to remind myself of all these things that I have learned from my son every morning so that it affects my attitude towards life and can help everyone else around me in a positive way. There are so many things that Eryk could've ask for like a wheelchair accessible van or even his own home to be wheelchair accessible but he chooses to want a place that can help other children like him self fit in with no judgement or people stairing in wonders or pity. This letter is from Eryk

"Hello,
My name is Eryk D'Meza I am a 16 year old boy with a disease called Spinal Muscular Atrophy (type one). SMA is a disease that has taken my ability to walk, move, eat, drink and do anything for myself. I am a straight A high honors student, I do great in school but sometimes I think, that's all I have going for me. So about 5 years ago I started a charity organization for children with disabilities, something they help raise money so that one day children just like myself can have a place that can suit all our needs and make is feels as if there are after school activities that are not limited to us. But as of this year we have changed the dynamics of my charity. We now have been raising money and are one school , playground, bowling alley and fields at a time going to make it all not only accessible for us but useable by us.
In order for this to happen we every year do a fund raiser so we can get enough to cover any expenses needs to change our whole community into useable grounds for all.
If you can Please help in donating what you can raffle items, food to vend and or gifts for the children it would be greatly appreciated.

I am forever grateful for my life even with all my illness but I have my life and that's what counts so I'll spend what ever is left of it paying it forward.

Thank you in advance for any donation

Eryk D'Meza

If you can please help us make Eryk's dreams come true with raising the money to purchase play sets and modified play areas for children with all sorts of disabilities it would be whole heartily appreciated. Giving these children there own get away not only help in social skills in life but it gives them a meaning of being someone and a part of something.
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Donations 

  • Natalie & Zachary Berwick
    • $50 
    • 7 yrs
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Organizer

Eryk D'meza
Organizer
Stroudsburg, PA

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