Jaden & Lanette's Support Fund

$8,155 of $10,000 goal

Raised by 138 people in 42 months
Lanette (McHone) Miller and her husband, Jaden, have had a difficult beginning to 2016.

On Friday, January 1, 2016, Jaden Miller attended his 3rd normal weekly dialysis appointment. All seemed normal except for the severe pain he had in his head. While at dialysis, he lost his balance causing him to take a couple of falls. This led to the calling of 911 and an ambulance arriving to check him out. Jaden was determined to finish his dialysis and refused transport to the hospital at that time.

When Lanette arrived to pick Jaden up at the Dialysis Center, she learned of the falls and immediately took him to the ER. At that time a CAT Scan was ordered and they awaited the results.

Many of you may ask, "Why does Jaden need Dialysis?" For several years now, Jaden has struggled with his health. Attending weekly sessions of dialysis since August of 2013 due to Renal Disease. When he began dialysis, his Kidney's were only functioning at about 5%. Jaden also struggles with Anti Phospholipid Disorder where antibodies effect the blood and attack the kidneys. This requires him to need dialysis 3 days a week, 4 1/2 hours each time.

As they received the results of the CAT Scan they learned that Jaden has a mass about 3 cm in diameter with swelling and bleeding on the frontal lobe of his brain. This mass has been blocking the fluid from flowing properly in his brain, hence causing the severe pain and the loss of balance. This has also caused the dialysis process to be difficult the last couple of weeks. The "headaches" become much worse when his blood is being cleaned.

Jaden is scheduled for surgery on Monday, January 4th to remove the mass. Until the surgeons are able to get it out and have it tested, they do not know exactly what they are dealing with.

So as you can see, this family has been through quite a lot over the last couple years. Although they both have wonderful employers who are very supportive, they will both be off work for varying amounts of time. Jaden will obviously be off for several weeks and Lanette will need to take time off according to the outcome of the surgery. Currently Lanette has no vacation days and her leave will be unpaid.

The Miller's have a beautiful son, Quaid, who is too young to fully understand what is happening with his daddy. His schedule has been disrupted and he is limited on the amount of time he is able to spend with mommy and daddy. We all know how difficult that must be on mommy and daddy as well.

Any funds raised through this campaign will be used to assist Jaden and Lanette with their expenses, whatever those may be. Living on a single income when you are accustomed to having 2 is a challenge, let alone knowing that single income will be reduced due to missed days. 

Jaden and Lanette are very humble people and would never ask for help. However, they would be the first to be there if someone needed something. This is one way we can all help them. Let's show them we love and support them. Let's lift up this family during their time of need and help them provide for their family.
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From Lanette:

Spent some time with Jaden today, in his new room. He has finally been moved to a different room. The last roommate that he had was just causing too much stress for Jaden, and literally keeping him awake all night long, among many other things. We hope this will be a good move for him.

Results from his MRI show that he is healing well. No radiation will be done, as it has just been too long since surgery. MRI's will now be every 6 months. The oncologist basically told him that his recovery is up to him from here on out. That if he wants to walk again, and come home, it's on him. So we will all continue to push him, and hope and pray that's enough. He just needs more therapy, so we hope that he will show enough ambition for them to reassess that option.
I wish I could be out there every single day, pushing him, and pulling him out of that bed, every moment possible, but I just can't do that. And HE has to be the one to give the most push possible. But if it takes us hammering it into his head, until we are blue in the face, it's what we will continue to do.

As for us here at home: We have wonderful times with family. This past weekend was wonderful, as my sister treated me to a Dixie Chicks concert, and we spent the weekend celebrating my Moms birthday. I am so blessed to have both sides of the families support, and they continue to lift me up as much as they can. Truth is, once they all leave, it's back to reality again. Back to bathing Quaid alone, doing bed routine alone, reading to him alone, and going to bed alone. I'm not saying all of this for any pity, because many go through what we are going through, but his progress just continues to stay right in the middle across the board. Just hanging there, I feel like. It broke my heart when we were in the car on the way there today, and Quaid just randomly says, "We don't have a Daddy at home anymore. But we have a Daddy at ManorCare." I said, "That's right buddy. We DO have a Daddy. He may be at ManorCare, but he's still your Daddy." He has known this all along, but has never said it out loud like that. It just led me to tears. I mean, bluntly, our son needs a Daddy, at home. "In" his life. Plain and simple. Please angle your prayers towards Quaid right now. That's where my concern lies at this point. I just want to make sure I am doing right by him.

The times with friends has come to a slow halt, as who wants to hang out with just the wife? No one wants to tag around a 3rd wheel and her son. Why would they? I mean, no one could talk football, and beer, like Jaden. His laugh is contagious, and he was a walking Internet. It was rather amazing, the knowledge he carried of the sports world, and his most recent passion, Iowa Craft Beers. His passion touched my heart. I just want to see his passion again. I have just learned that if it means spending all the money I have, I will work every day to continue to make many memories for Quaid. We will visit Daddy, as we can, and we will stay busy the rest of the time, making memories, the best we can. I don't know if I am doing any of this right, but I just don't think there is a "right" way. So we are just doing it "our" way. And I hope that way is the best it can be for Quaid.

Sorry for the long post everyone. Just putting my feelings out there. It's just where I am right now.

Thank you all for your continued prayers, and support. ❤️❤️

#enjoyeverymoment
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This makes me so sad....I so wish there was more I could do for this family. They deserve so much more....

From Lanette 7.27.16

Sorry I haven't updated on Jaden in a while. Reason being, not much has changed. He is still only getting restorative care, and no PT with a licensed therapist, because he just has no ambition. I guess I just don't want to keep posting and have it seem like a pity party, because we are just trying to figure out how to adjust to this life we have been handed. As well as continuing to try and figure out why it was handed to us.

Truth is, I can't make the house payments. I am going to meet with the bank at the end of the week to figure out what my options are. I just need to make more money, so I am trying to figure out how to make that happen as well. If I try to find a cheaper house, then we make money on this one, and it would be too large of an asset for Medicaid purposes, so it's best for me to just stay put. Not to mention, it's a wonderful neighborhood, with amazing neighbors!
So, at this point, I guess if you are wanting prayer directions, for this moment, it's figuring out how to keep our house, and stay where we are, because right now, that is the best thing for me and Quaid.
We are just continuing to make the best of each day God has given us.
Thank you for your continued thoughts and prayers. ❤️❤️
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Jaden Miller Update:

I know it's been a while since I have done an update, but it's just been hard to come to the realization that this may just be our life now. I don't know that for a fact, nor does anyone. All we can do is keep hoping, keep wishing, and keep praying.
Medicare has stopped services for licensed physical therapy. I appealed it the first 2 times, but lost the 3rd time. He just doesn't have much desire. There's too much taken from that part of the brain where the personality was strongest. He will still joke with you and laugh with you on occasion, but he doesn't initiate much.
A new medication has helped him be a bit more alert, which is good, and of course that med was started right about the same time I lost the appeal, so that's just perfect luck, and terrible timing. Grrrr. But we just continue to take what we can get each day.
He can still do some things like use the sideboard and the pedal machine, while in his wheelchair, but no licensed therapist will work with him until he shows more desire, or if he were to go the opposite direction, and deteriorate.
So, that is about all I know right now. We are still waiting to hear about Medicaid approval, but all of our ducks are in a row, and we shall sit and wait.
Please keep the prayers coming. Once Medicaid is approved, we have some very big decisions to make on where his permanent home may be, and we need all the prayers and guidance we can get!
Thank you all so much! ❤️❤️
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Jaden Miller Update:

Tomorrow will be 6 months since this whole nightmare started. Today was a bit scary. When he is done with dialysis, he sits in his wheelchair to wait for JoyRide to take him back to ManorCare. They know he is not to be left unattended, as he has fallen out of the wheelchair MANY times. More than I can count at this point. Well, there was a new staff today and they did not read his chart, apparently. So, while waiting for his ride, he fell forward, and out of his chair. When I arrived at ManorCare, I was met by the nurse who said his BP was so low, it wasn't even registering on the machine, so they had an IV in, and hoping he was just dehydrated. So I waited for the fluids to go in, and they retook his BP and it had gone up. Still not great, but much better, and kept him from making a trip to the hospital. Needless to say, the new tech also took too much water off at dialysis, which is what caused this. A misunderstanding that could have been very serious, nonetheless. But they are adjusting his dry weight for dialysis, and starting him on a med to help his BP stabilize. He was very tired and slept pretty much my whole visit, but was doing better by the time I left. His parents will be with him tomorrow, so hopefully his day is better.
Sorry I haven't updated in a while. Please keep those prayers coming!!! We appreciate them more than you know!!! ❤️❤️

Additional comment from Lanettte as response to someone suggestions a report of neglect be filed:

Reports have to be made, similar to accident reports we make in childcare. I'm just so scatter brained with everything, and since I can't be with him all the time, I don't have access to all that information like I should if I was with him daily.
I also think that sometimes it's Jaden sort of doing this because he just gets so uncomfortable in that chair that he scoots himself out of it, which again, is why he needs to be supervised at all times while in it. Which they know! I just wish he would be capable enough to remind them of that, but he just isn't. When I am with him, I have to CONSTANTLY tell him to sit back in his chair because he is always leaning forward out of uncomfortableness. He absolutely hates the wheelchair! Just hates it.
Jaden and Quaid on Monday, May 30th....day before the incident with his BP took place.
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Read a Previous Update
Jaden Miller
14 months ago

Thanks for the donations.and prayers

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$8,155 of $10,000 goal

Raised by 138 people in 42 months
Created January 3, 2016
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NB
$25
Norma Bond
17 months ago
NB
$25
Norma Bond
31 months ago

Sending love and prayers

NB
$50
Norma Bond
33 months ago
$40
Anonymous
35 months ago
$100
Anonymous
35 months ago
VR
$50
Veeny Rose-jefferson
36 months ago
BC
$25
Bettye Connor
37 months ago
$200
Anonymous
37 months ago
1
1
$40
Anonymous
37 months ago
RM
$150
Rae Mosier
37 months ago

Praying for you and your family Lanette.

Jaden Miller
14 months ago

Thanks for the donations.and prayers

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