Jeff Huttinga ALS Stem Cell Hope
That was our story as of a few months ago. We are now trying to raise money for Jeff to get treated with his own stem cells. Please help in funding his first injection in Florida which is $10k. The harvested cells that will grow will be injected out of country. Every time they do anohter injection of his own cells it will be around $2k. We a praying this will at least slow the process of this disease and rebuild back some of the lost muslces and nerves. There is no for sure cure that the U.S claims. If you want to read more on the research you can look on Mayo Clinic. The U.S. still considers this trial. Other countries have done this for over 10+years. Even more info. and updates can be found at www.carepages.com/Jeffreyhutt/patient .
Thank you for you support and prayers.
"Look to the Lord and his strength; seek his face always." Psalm 105:4
Michigan- May 12, 2-5pm. Alive Ministries
263 Church St. Jenison MI
We would love for you to join us celebrating his life this Thur. April 19th @ 2pm. Foundations Church is hosting the service and Bent Tree our home Church is hosting the reception immediatly following . Anyone who would like to attend is welcome. Dress attire is Jeff church style ! Meaning Jeans and a nice shirt is welcome. He was never a tie guy but do what fits you. Thank you all so much for the continued support and prayers. For our Michigan family and friends who can not attend here, we will have a visitation celebration some time the beginning of May. That date and place is yet to come. When its figured out I will let you know.
Even though I walk through the darkest valley, I will fear no evil, for you are with me; your rod and your staff, they comfort me. Psalm 23:2-4 NIV
He makes me to lie down in green pastures; He leads me beside the still waters. 3 He restores my soul; He leads me in the paths of righteousness.
Love you Always Jeffrey Lee.
We have had so much help though its amazing. My mother in law is here visiting again while her husband has skin cancer removed. Jeff went in to hopsice care center at the beginning of the week to get symptoms under control so she extended her stay. He came home after a day. My mom is usually here if Jeffs mom is not. We have had a few friends step in as well. God is walking with us through this journey. I can't imagine doing this without Him. I miss our old life for sure but try every day to find the joy in it now. Our kids are my biggest worry. Am I doing enough or to much? I ask God for guidance in that always. They seem to be doing ok considering, but still have rough days . My daughter is so mature to state that she no longer wants her dad to make it to her Birthday of April 24, but for him to just be happy and comfortable again and go to Heaven. How do you not tear up with that? My kids amaze me. Cayden has opened up a little more but not the amount that I know whats going on in his head... For now we take one day at a time and pray for wisdom in our next steps. Thank you all for your continued support, love, and prayers. God is using you too.. Thank you!
Romans 8:6 The mind controlled by the Spirit is life and peace.
Psalm 34:18 The Lord is close to the brokenhearted and saves those who are crushed in spirit.
John 3:36 Whoever believes in the Son has eternal life.
The meds make Jeff pretty emotional. We laugh sometimes at how easy he can cry. He does not like that emotional part so much.
On a small note I'd really like to say a few words from mama bear: First if your one that said these next things dont feel bad. You were not the only one and that is why I'm feeling the need to say something. I'm asking that you not tell my kids how to feel or what to do when it comes to their dad. Meaning- Please do not tell them to be strong or not be sad. They need to know its ok to be sad and they dont have to be strong all of the time. Cayden I believe has cried once in front of me in all of this time about his dad and that was at Jeffs emersion baptism. Another big one is please do not tell them to take care of their dad.. In thier eyes if something happened to Jeff, they're going to take it as they did not do a good enough job of taking care of him. They will carry that with them for a long time. So please instead encourage them. Tell them how proud you are of them already. Tell them they can call you if thats an option. Tell them things like" I hope you have a great week" or" I know things are hard but they will look up some day." Again this has been more than 1 person and thats why I thought I needed to say something. If not for being in this position myself I would not know either. Thank you for respecting this, and thank you for caring enough to follow and support us. As we journey these new waters I will keep you updated as much as possible. For now Jeff rests a lot and is easily out of breath. Talking is hard and lots of company make him uneasy. My kiddos have had to go elsewhere for playdates and keep it quieter at home. God has forever blessed us with help and fundraisers. Just when things look tough He sends another army angel.
"Come to Me, all you who labor and heavy laden, and I will give you rest." Mathew 11:28
There is surely a future hope for you, and your hope will not be cut off. Proverbs 23:18
We walk by faith not by sight. 2 Corinthians 5:7
Hello Sadi and Jeff, my family and I have been camping with you over the past couple of years. I've been studying for my nursing degree which has kept me from attending. I wanted to share with you a message of hope. My mother's uncle has been living with ALS for years. He wrote a book using a computer that recognized eye movements. I have never had an opportunity to meet him, but Uncle Bobby is a strong and stubborn Swede. His wife is his caretaker and is his angel. I will pray every day that God gives you the courage to stand against this disease and not let it control your decision to live. Jeff, all you need is a remote control motorcycle that is adult size. So, invent one. and you will be a rich man.
You have us behind you, and for you, no matter what. Thanks for being such great friends.