Jeff Huttinga ALS Stem Cell Hope

$46,921 of $65,000 goal

Raised by 210 people in 37 months
We began a journey about May 2014 with what we thought was a torn left tricep muscle from a work injury. Little did we know this injury was something much more. Jeff had dropped a truss that had brought his arm down pretty hard from trying to catch it. We think it did tear the muscle a little at the time but never healed completely. About Nov.2014 he started to notice not only that he could no longer grip much, but that he had atrophy in his left hand between his thumb and pointer finger. I made him an appt. to have a orthopedic doctor look at him and they told him in 10 min. that he was at the wrong place and needed to see a neurologist. We than began to think this could be brachial plexus. ( where the nerves are severed from the spine) We could not get in to see the Neurologist until Jan.2015. Dec.2014 we went back to MI for Christmas. In Michigan Jeffs dad Rick was not feeling well and we thought he could have gall bladder issues. When we got home Jan.2015 Jeff had his first neurology appt. In that first appt. we were told Jeff could have a motor neuron disease. In particular ALS. We were in shock. Never did we think this was it. There were still some tests to be done and after talking with friends that gave us some hope we all came to the conclusion that the doctor jumped the gun a little on mentioning ALS. 1 week after that Jeff came through our front door and told me his dad had been diagnosed with pancreatic cancer. Jeff was off to Michigan again to be with his dad. His dad had a successful whipple surgery and is still recovering today. He is getting stronger and will start a long hall of chemo and radiation. When Jeff came home from Michigan I had him off the plane to get an MRI. This revealed a bulging disc. We took this in with us along with his EMG results, which we somehow got done before he left for MI. The bulging disc was hope again, but the Neurologist said he did not think so. He was sending Jeff to the University of Colorado to be looked at by a specialist that sees more of this. As of last week Jeff was not told he could have ALS, we were told has has ALS. They want to do an EMG of their own and run a blood test. They are looking for an even more rare condition that could mimic ALS. Not sure if that is better or not. As of now Jeff has noticed changes in a lot of him. Where he once had twitching only in his left arm has now spread to the left shoulder blade, right arm, both calves, chest, and the latest his stomach. We have only noticed muscle loss in his left arm even though the twitching has spread. His left arm is about 1/4 the size of his right. Due to muscle loss and his right gaining strength for over use. He is fatigued all of the time. He feels drained every day. He loves working construction and does not want to take it easy despite the University doctor telling him he needs to find new work. It helps he has a boss who loves him very much. We are asking you all to lift Jeff in prayer and pray boldly for healing. Nothing can stop our almighty God. We both have our good days and bad. We cry a lot and laugh a lot. Trying to see what God wants us to in all of this. We are fortunate that we have such caring friends. I am humbled by their honesty and boldness of sharing their stories so we know we are not alone. I pray that it keeps up. My prayer is that as life keeps going for everyone that you would think of us and say a prayer. I told our children that their daddy's hurt arm will not get better. That he has a disease that will not let it heal, and this could hurt other parts of him in the future. Please do not talk about death to them. After all we know not what our almighty God has planned for us. I ask that you pray for strength, healing, and trust. Jeff is a strong loving father and husband. He has two beautiful children and an adoring wife. He continues to work and do all of the natural and unnatural things I ask of him in hopes that something might help slow this process or down right get rid of this. He is a fighter and will continue to be. If you have a story of some healing of this tell it. He has had broken bones, stitches, knock outs, and torn whatevers. He is my unbelievable, crazy, live life, caring, great dad, Christ lover/follower, fish out of sea, snowboarder, hunter, wanta be military, beautiful eyed husband. I love him for everything he is and is not. God has his hand on him and we need to be praying that He will heal this like he has the many other times he has needed healing.

That was our story as of a few months ago. We are now trying to raise money for Jeff to get treated with his own stem cells. Please help in funding his first injection in Florida which is $10k. The harvested cells that will grow will be  injected out of country. Every time they do anohter injection of his own cells it will be around $2k.  We a praying this will at least slow the process of this disease and rebuild back some of the lost muslces and nerves. There is no for sure cure that the U.S claims. If you want to read more on the research you can look on Mayo Clinic. The U.S. still considers this trial. Other countries have done this for over 10+years. Even more info. and updates can be found at www.carepages.com/Jeffreyhutt/patient . 
Thank you for you support and prayers. 



"Look to the Lord and his strength; seek his face always." Psalm 105:4
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Update for time and place; Colorado- All to be held at Foundations Church 2pm and reception we are stayting there.

Michigan- May 12, 2-5pm. Alive Ministries
263 Church St. Jenison MI
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How crazy it is that this could be the last post. My beautiful husband went to his final resting place Sat. April 14th around 5pm surrounded by family, friends, and our pastors all singing Amazing Grace, and How Great Thou Art. We already miss him so much it hurts. I thought with this fight and time to see how he was suffering and needed to go home would help with loosing him, yet I cant get this enormous hole out of my heart or stomach. I know he's better but it does not change the fact that he is no longer here with us. We said vows on Aug. 16 2002. Until death do you part. Is that just for him? I dont feel the seperate part yet. I still selfishly want him here. Wow do I miss him.

We would love for you to join us celebrating his life this Thur. April 19th @ 2pm. Foundations Church is hosting the service and Bent Tree our home Church is hosting the reception immediatly following . Anyone who would like to attend is welcome. Dress attire is Jeff church style ! Meaning Jeans and a nice shirt is welcome. He was never a tie guy but do what fits you. Thank you all so much for the continued support and prayers. For our Michigan family and friends who can not attend here, we will have a visitation celebration some time the beginning of May. That date and place is yet to come. When its figured out I will let you know.

Even though I walk through the darkest valley, I will fear no evil, for you are with me; your rod and your staff, they comfort me. Psalm 23:2-4 NIV
He makes me to lie down in green pastures; He leads me beside the still waters. 3 He restores my soul; He leads me in the paths of righteousness.

Love you Always Jeffrey Lee.
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For those wondering and that I have not been able to connect with, I'm just doing a quick update for Jeff. As of now he is still progressing but hanging on to a great spirit. He and the rest of his close family are ready for him to go to his eternal home or become a miracle walking. What God may have in store we don't know yet. Our prayer is for no more suffering. Either have this miracle of healing or go home. We do know God is still using him and its not our time to pick. Peace and comfort are also a part of out nightly prayer. Its harder for him to take steps and stand. His breathing is also becoming more labored. His mucus issue is a daily struggle. Just when we think we have it figured out something else comes up.
We have had so much help though its amazing. My mother in law is here visiting again while her husband has skin cancer removed. Jeff went in to hopsice care center at the beginning of the week to get symptoms under control so she extended her stay. He came home after a day. My mom is usually here if Jeffs mom is not. We have had a few friends step in as well. God is walking with us through this journey. I can't imagine doing this without Him. I miss our old life for sure but try every day to find the joy in it now. Our kids are my biggest worry. Am I doing enough or to much? I ask God for guidance in that always. They seem to be doing ok considering, but still have rough days . My daughter is so mature to state that she no longer wants her dad to make it to her Birthday of April 24, but for him to just be happy and comfortable again and go to Heaven. How do you not tear up with that? My kids amaze me. Cayden has opened up a little more but not the amount that I know whats going on in his head... For now we take one day at a time and pray for wisdom in our next steps. Thank you all for your continued support, love, and prayers. God is using you too.. Thank you!

Romans 8:6 The mind controlled by the Spirit is life and peace.
Psalm 34:18 The Lord is close to the brokenhearted and saves those who are crushed in spirit.
John 3:36 Whoever believes in the Son has eternal life.


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Thank you all for your continued support with all we have gone through. Your following us in this journey has really meant a lot to us. Im posting now to let you know that the trilogy machine is a no go. It acted a lot like the bipap and filled his stomach with air. So much that a feeding port would have to be left open the whole time in order to let air out. Not to mention it really did not help in his breathing. His epiglottis just doesnt let other things work right . So for now no breathing machine and no feeding tube. Hospice has been in contact and have been very supportive. We try to keep him very comfortable and coherant as possible. Its a little longer care than what it used to be. They also come help a few mornings a week with daily routine stuff for about an hour. Haven't yet tried this but will meet with the nurse on Wed. The trilogy was a little loss to us not working but not much. It wasnt a cure or a fix. Our prayer was that Jeff not have to go through surgery if it wasnt going to do much anyway. Either we got our answer or there is something else. We still pray for God to do a miracle but understand we dont see the big picture He has for us . As hard as days are we trust in this bigger picture we have yet to see. Really what else do you have if you dont have that? Believe me we have had some rough days latley. Canceling travel outings that were gifts we never got to use and one which may sound crazy was loosing our bed. It was our first purchase together married when we moved out to Colorado almost 16 years ago. It was with us in 3 places. Kid prints and all. We needed to get him a hospital type bed to make it easier mobility for both of us. We've made changes to our room with the help from many guys that used to work with Jeff. They have been so amazing. Renovations have not ended but they continue to work after hours all the time.
The meds make Jeff pretty emotional. We laugh sometimes at how easy he can cry. He does not like that emotional part so much.
On a small note I'd really like to say a few words from mama bear: First if your one that said these next things dont feel bad. You were not the only one and that is why I'm feeling the need to say something. I'm asking that you not tell my kids how to feel or what to do when it comes to their dad. Meaning- Please do not tell them to be strong or not be sad. They need to know its ok to be sad and they dont have to be strong all of the time. Cayden I believe has cried once in front of me in all of this time about his dad and that was at Jeffs emersion baptism. Another big one is please do not tell them to take care of their dad.. In thier eyes if something happened to Jeff, they're going to take it as they did not do a good enough job of taking care of him. They will carry that with them for a long time. So please instead encourage them. Tell them how proud you are of them already. Tell them they can call you if thats an option. Tell them things like" I hope you have a great week" or" I know things are hard but they will look up some day." Again this has been more than 1 person and thats why I thought I needed to say something. If not for being in this position myself I would not know either. Thank you for respecting this, and thank you for caring enough to follow and support us. As we journey these new waters I will keep you updated as much as possible. For now Jeff rests a lot and is easily out of breath. Talking is hard and lots of company make him uneasy. My kiddos have had to go elsewhere for playdates and keep it quieter at home. God has forever blessed us with help and fundraisers. Just when things look tough He sends another army angel.

"Come to Me, all you who labor and heavy laden, and I will give you rest." Mathew 11:28
There is surely a future hope for you, and your hope will not be cut off. Proverbs 23:18
We walk by faith not by sight. 2 Corinthians 5:7
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Read a Previous Update
Amy Thompson-Goodwin
33 months ago

Hello Sadi and Jeff, my family and I have been camping with you over the past couple of years. I've been studying for my nursing degree which has kept me from attending. I wanted to share with you a message of hope. My mother's uncle has been living with ALS for years. He wrote a book using a computer that recognized eye movements. I have never had an opportunity to meet him, but Uncle Bobby is a strong and stubborn Swede. His wife is his caretaker and is his angel. I will pray every day that God gives you the courage to stand against this disease and not let it control your decision to live. Jeff, all you need is a remote control motorcycle that is adult size. So, invent one. and you will be a rich man.

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Gregg Chaddic
37 months ago

You have us behind you, and for you, no matter what. Thanks for being such great friends.

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$46,921 of $65,000 goal

Raised by 210 people in 37 months
Created May 12, 2015
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RM
$100
Randy Magee
1 month ago

Sadi, Our thoughts and prayers are with you and your children. May the Lord continue to pour out His abundant mercy and grace.

DD
$500
D & I Prehung Door Door
1 month ago

Sorry for your lose and thinking of you.

SH
$100
sabrina hoyt
2 months ago

Thinking of you, holding you close and sending prayers for you and your family

$1,000
Anonymous
2 months ago
$1,000
Anonymous
2 months ago
$1,000
Travis and Kristal Crites
2 months ago

Love, hugs and prayers... always.

AS
$25
Anica Schillman
2 months ago

Praying for you and your family in this difficult time.

$25
Anonymous
2 months ago
Amy Thompson-Goodwin
33 months ago

Hello Sadi and Jeff, my family and I have been camping with you over the past couple of years. I've been studying for my nursing degree which has kept me from attending. I wanted to share with you a message of hope. My mother's uncle has been living with ALS for years. He wrote a book using a computer that recognized eye movements. I have never had an opportunity to meet him, but Uncle Bobby is a strong and stubborn Swede. His wife is his caretaker and is his angel. I will pray every day that God gives you the courage to stand against this disease and not let it control your decision to live. Jeff, all you need is a remote control motorcycle that is adult size. So, invent one. and you will be a rich man.

+ Read More
Gregg Chaddic
37 months ago

You have us behind you, and for you, no matter what. Thanks for being such great friends.

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