Lora's Lifesaving Neck Surgery

$5,300 of $27k goal

Raised by 79 people in 16 months
Lora Johnson  ARLINGTON, TX
My name is Lora Johnson. I'm scared and I need your help.

I was born with a very rare birth defect that without proper treatment is fatal. The inside of my neck did not form properly, causing mass infections, loss of healthy tissue and difficulty swallowing. My treatment was badly mishandled by a surgeon when I was a child, though his three-year, nine-operation treatment of me seemed at first to have helped. But my condition returned with a vengeance and visits to other doctors revealed what poor care I'd received.

I still suffer chronic severe infections in my neck which are intensely painful and require surgery. They flare-up without warning, swelling massively and causing my neck to rupture. With each occurrence they grow worse and have begun to move into my upper chest, where they may go systemic. I've become resistant to antibiotics, even the powerful ones they give me intravenously.

I will die without proper treatment. I'm terrified that day will come soon.

After dozens of failed operations and hospitalizations, I've finally found a specialist who has a method for permanently dealing with my condition. However, without insurance I can't get the care from her I need.

Earlier this year, after 35 years of marriage, I went through a divorce I didn't want and I'm alone for the first time in my life. And with the divorce, I lost my health insurance, which for me is catastrophic.

Due to the sudden nature of these flare-ups my income is virtually non-existent. That disqualifies me from the Affordable Care system, and since Texas didn't approve the Medicaid expansion the Act called for, I'm denied even that.

Please help. Any amount makes a difference. Many small donations will help me to reach my goal.

Thank you for your time, and for your kindness. Blessings always.

Lora
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Update 6
Posted by Lora Johnson
10 months ago
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Thank you so, so much, all who have helped thus far. Please continue to spread the word...maybe this will be the year I can finally end my ordeal with this condition.

Blessings,

Lora
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Update 5
Posted by Lora Johnson
11 months ago
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My condition has flared up again and I am in intense pain. I cannot go on like this. Please...help me to have the surgery I so desperately need.

Blessings,

Lora
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Update 4
Posted by Lora Johnson
14 months ago
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Hugs to those who have given to help me. I am still well short of the needed funds and cannot yet schedule my surgery.

My condition is very rare and threatening. Sometimes a few months pass between flare-ups, sometimes weeks. Each time, the neck abscess creates tremendous pressure and spreads, forcing its way into new places and destroying healthy tissue. I cannot describe the pain. Antibiotics no longer do much good. The infection site has now surrounded the carotid artery on the left side, and I fear what damage that may do.

Please...anything you can do will make a difference.

Blessings,

Lora
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Update 3
Posted by Lora Johnson
14 months ago
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A heartfelt thank you to those who have helped me thus far. As of this writing, I am still well short of the needed funds and cannot yet schedule my surgery.

My condition is very rare and difficult. Sometimes months pass between flare-ups, sometimes weeks. My last two were in June (when I was hospitalized for ten days) and in November (which was acute and lasted three weeks). Each time, the abscess creates tremendous pressure and spreads within my neck, permeating the tissues, forcing its way into new places and destroying healthy tissue through necrosis. I cannot describe the pain. The site has now surrounded the carotid artery on the left side, and I fear what damage that may do.

Please...if you can help, now is the time. Anything you can do will make a difference. If many people gave a small amount, I would reach my goal and could schedule time with the surgical specialist. If you are in a position to give more and help that day come sooner, please consider doing so.

Blessings,

Lora
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Read a Previous Update

$5,300 of $27k goal

Raised by 79 people in 16 months
Created December 1, 2015
Lora Johnson  
JG
$50
Jeff Gaboury
8 days ago

My thoughts are with you.

$15
Anonymous
2 months ago
SH
$25
Scott Hedrick
3 months ago

You're sort-of family

$25
Brian Ludden
3 months ago
MH
$70
Mark Hennessy-Barrett
3 months ago
$10
Anonymous
3 months ago
$25
Anonymous
3 months ago
$100
Anonymous
4 months ago
$20
Anonymous
4 months ago
$100
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4 months ago
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