Lora's Heart and Neck Fund

$8,165 of $27,000 goal

Raised by 117 people in 41 months
My name is Lora Johnson. I was born with multiple rare birth defects that without proper treatment will prove fatal.

My heart isn't structured like most people's and as a result I'm now dealing with congestive heart failure that has come on with age. I've begun treatments and medications that I must have if I am to live. The daily fatigue is debilitating and I'm very limited physically. My heart failure also makes any other surgeries I need, such as on my neck, far more dangerous.

The inside of my neck did not form properly, causing chronic mass infections, loss of healthy tissue and difficulty swallowing. My treatment was badly mishandled by a surgeon when I was a child, though his three-year, nine-operation treatment of me seemed at first to have helped. But my condition returned with a vengeance and visits to other doctors revealed what poor care I'd received.

The severe neck infections I suffer are intensely painful and require surgery. They flare-up without warning, swelling massively and causing my neck to rupture. With each occurrence they grow worse and have begun to move into my upper chest, where they may go systemic. I've become resistant to antibiotics, even the powerful ones they give me intravenously.  After years of searching I've finally located a specialist who can help, but she does not accept Medicaid or the insurance I was assigned.

Any amount donated makes a difference. Many small donations will help me to reach my goal.

Thank you for your time, and for your kindness. Blessings always.

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Thank you all for your past kindness. Things have changed, and I must ask again for your help.

As mentioned before, I was born with multiple birth defects. My heart is not structured like most people's and I'm now dealing with heart failure that has come on with age and began a month ago. I have begun treatments I cannot afford that are expensive but crucial if I am to live. My heart failure also makes any other surgeries I need, such as those concerning my neck infections, far more dangerous.

Please do what you can, or feel led to. I am grateful you are out there.

Blessings and hugs,

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Hello, everyone...I spent all day yesterday and last night in the ER due to the extreme weakness and shortness of breath I've been experiencing. The doctors figured out after several tests that the chronic physical and emotional stresses of my neck and other issues, combined with the unusual structure of my heart, have brought on congestive heart failure. I am on a new regimen of medications (which I will need for life) and I'll need to be monitored by a cardiologist from now on. I am so grateful for modern medicine.

If you can help me to get the neck surgery I need, that will relieve the constant stress on my immune system that is doing so much damage.

Blessings and love,

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After weeks of constant pain and forced isolation, I'm past my latest flare-up. The antibiotics I tried were ineffective and the infection spread and intensified until finally it burst a pathway out of my lower neck, near my collarbone. I know it's awful to hear about, but it's far worse to experience.

Please...donate something. Anything. With your help, I can finally put this medical nightmare behind me and live my life, free of the time bomb I'm forced to carry inside me every day.

Thank you, all who have continued to pray for me and have helped put an end to my medical ordeal.
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As I write this, I'm suffering an intense flare-up. The massive abscess in my neck has reached tennis-ball size and I can feel the infection spreading sideways and up toward my ear as it seeks weaknesses in the tissues. The pain and pressure are terrible and the heat from it rises into my head, feeling like constant hot flashes. Needless to say, sleep for me is a rare thing as I struggle with this, and I'm exhausted.

Eventually the building pressure of the infection will burst my neck open and it will drain, and only then will I find any relief and begin to heal for this round. I can't leave the house because a) I don't want to be chased by villagers with torches and pitchforks, and b) I have no idea when it might finally burst (which is sickening when it happens) and I can't risk being out in public when it does.

My very rare condition can be treated surgically by a specialist in Dallas. Those who have donated in the past, you have my deepest love and gratitude. Those who haven't, or perhaps are in a position to do more, please consider donating so I can finally end this nightmare and move on with my life.

Blessings always, Lora
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$8,165 of $27,000 goal

Raised by 117 people in 41 months
Created December 1, 2015
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9 months ago
Dana Kincaid
16 months ago

LLAP, ma'am

16 months ago
17 months ago
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