Jimmy  Darts

SB Mowing

Pattie Gonia

Little Miss Flint

Kalina Silverman / @makebigtalk on Instagram

Samuel Weidenhofer

Patriotic Kenny Foundation

Ben Saunders - Flawless Cleaning

The Dogist

Peter Bond

Amy Jandrisevits

Ask Uncle Jack

That Good News Girl

Tess Bohne

FowlMouthFarmer

Latonja and Taylor Richardson

Officer Richard Craig

Flavor Flav

John Wolfe

Khloe

<div>My name is Adelina and, as I start writing this post, my soul is filled with plenty of faith, hope and desire to pursue the impossible, together with you. Terrible news came to our knowledge on April 4th, namely the news that our 11 months old son, Victor, suffers from Spinal Muscular Atrophy Type 1 – 4 copies
</div>

<div>When Victor was only 5 months old, we decided to take him for a routine paediatric examination, as it seemed to us that Victor was not able to move his legs the same as other babies his age and that his hands were shaking quite a lot. After the examination, the paediatrician we saw suggested that I should not worry, because each baby has its own development rate and, as such, I do not need to also see a specialist doctor.
</div>

<div>Nevertheless, I decided to seek another opinion and I went straight to a paediatric neurologist , hoping that this doctor would be able to provide me with the best guidance.
</div>

<div>Given the difficulties arising from the COVID-19 situation, we only managed to see this specialist when Victor was 6 months and 5 days. As we went to this paediatric neurologist , our soul was filled with hope that our son Victor would be well and that we would return home feeling happy and released
</div>

<div>In the doctors clinic, they’ve checked some of Victor’s reflexes, if he could grasp toys with his hands, if he could turn his head etc. Yet, the answer we got was the same – there is no reason to worry, it might just be Hypotonia. We got a prescription for Tonotil N and fish oil and we were supposed to return for a checkup after 3 months of treatment. We researched different sources for this diagnostic and we found that several kinethotherapy sessions might help; so, we did Bobath therapy, but without any result.
</div>

<div>After the first month of Tonotil N, fish oil + Bobath, when Victor was 7 months old, we went for another paediatric checkup. Diagnostic: Hypotonia (although there was no evolution whatsoever). Treatment: Tonotil N + Calcium.
</div>

<div>When Victor was 8 months old, we contacted the neurologist (the one who checked Victor when he was 6 months old) to inform her on Victor’s evolution – his hands were shaking the same as before and the lower part of the body presented the same softness . We were nevertheless suggested to continue with Tonotil for the 3rd month and for the following month, when we were supposed to go for a checkup, we were recommended to do some blood tests to see whether his has a Vitamin D insufficiency .
</div>

<div>As Victor showed no signs of being able to sit up or crawl around - as standing up was out of the question - we decided to also seek another opinion from a different paediatric neurologist .
</div>

<div>And so we did! We went for a chechup, we did the tests and we saw an endocrinologist. Diagnostic: Hypotonia. Recommendation: Tonotil + Vojta therapy.
</div>

<div>Once home, we read about this therapy, we picked up the phone and contacted a physiotherapist who was willing to come to our home and help, so that Victor could be in the comfort of his home.
</div>

<div>After 2 months of intensive Vojta (4 days a week), we went back to neurology: there was no evolution whatsoever.
</div>

<div> 
</div>

<div>During the checkup, there were no reflexes anymore in the upper and lower limbs and, in addition, Victor was in regression compared to the previous checkup at 8 months old. Diagnostic: Suspect of SMA (Spinal Muscular Atrophy) . We did the genetic test in Iași,Romania and the results came 20 days later (it would normally take 5 days at most in Iași to get such results, however the ineffectiveness of the system has again spoke its word). Diagnostic: SMA Type 1.
</div>

<div> 
</div>

<div>A few days after we found out the diagnostic, when we got over the shock of such terrible news, we realised that life as we knew it prior to this diagnostic was over. In such circumstances, you understand that no matter how much you may try, you will never be really able to enjoy anything the way you used to do before. No matter how much we try to simulate a smile, our soul is just a giant hole that can only be filled with the hope that he, our beloved son, will be able to walk and live a normal life.
</div>

<div> 
</div>

<div>On 18th of April, we started the treatment with the first dose of SPINRAZA, but our greatest desire is for the ZOLGENSMA therapy.
</div>

<div>Because of these four copies, (SMA1-4copies) we are not accepted in Europe and, as such, we need to collect the huge amount of € 2.1 million. It is only with your help that we can collect this tremendous amount.
</div>

<div> 
</div>

<div>Any donation, contact, sharing, message, advice or guidance will mean a lot for us and for Victor, but, most importantly, all these efforts will bring him closer to a normal childhood and, in particular, to a normal life.
</div>

<div> 
</div>

<div>Kindly asking from the bottom of our heart, please help us in any way you can !
</div>

<div> 
</div>

<div>With love, faith &amp; much hope, Victor’s parents,
</div>

<div> 
</div>

<div>Adelina &amp; Valentin
</div>

<div>#togetherforvictor
</div>

<div> 
</div>

<div>Donations can also be made on any of those platforms :
</div>

<div> 
</div>

<div>Titular: ADELINA DINESCU
</div>

<div>IBAN: RO80RZBR0000060021411897
</div>

<div>Valuta: Lei
</div>

<div>Nume banca: Raiffeisen Bank
</div>

<div>Cod Swift banca: RZBRROBU
</div>

<div> 
</div>

<div>Titular: ADELINA DINESCU
</div>

<div>IBAN: RO46RZBR0000060023376759
</div>

<div>Valuta: EUR
</div>

<div>Nume banca: Raiffeisen Bank
</div>

<div>Cod Swift banca: RZBRROBU
</div>

<div> 
</div>

<div>Titular: IOAN DINESCU
</div>

<div>IBAN: RO82RZBR0000060017856132
</div>

<div>Valuta: Lei
</div>

<div>Nume banca: Raiffeisen Bank
</div>

<div>Cod Swift banca: RZBRROBU
</div>

<div> 
</div>

<div><button data-competitor="competitor-link" rel="nofollow noreferrer noopener"><button data-competitor="competitor-link" rel="nofollow noreferrer noopener">https://www.paypal.me/togetherforvictor</button></button><br /><br /><a href="https://www.facebook.com/groups/482930119003117/?ref=share" target="_blank" rel="noreferrer noopener">Join our journey on Facebook here</a> <br /><br /><br />Spinraza 2✔️<br />For 3 weeks now, you have been teaching us how to struggle, hope and be united, so we can be part of a miracle! <br />You have the most wonderful smile, my dearest! You are the best thing that has ever happened to us! Please never forget: your mom and dad are here for you, by your side... for ever.<br />We have nothing but infinite love for you and we will never give up. #togetherforVictor<br />Good morning and enjoy your coffee, dear people!<br />I left Bucharest today as the second dose of Spinraza is scheduled for tomorrow.<br />I just wanted to share a bit about my condition. I am well, striving to move as much as I can during the 3 daily therapy sessions, but also while playing with mom and dead.<br />I wear the orthoses when I sleep and I am currently adjusting to them. I sometimes cry at night, as they are quite heavy, but I’ll get used to it.<br />My parents bought this special chair for me, so I can stand straight and avoid kyphosis or scoliosis as much as possible. <br />Let me give you a strong hug! Thank you for being by my side, day after day! <br /><br />#togetherforVictor<br /><br /><br /><br />Have you ever wondered how the mothers of special children get to be picked?<br />I am trying to imagine how God and the angels, sitting on the top of the Earth, are deliberating:<br />God says: This mother gets a baby boy, the other mother gets a baby girl.<br />At one point, God is in front of one of the mothers, looks to the angel and smiles.<br />God says:  This mother gets a special baby.<br />The curious angel replies: Why does it have to be her, God? She looks so happy...<br />God says, smiling: That is exactly the point! Could you give a special child to a mother who is unable to laugh? That would be cruel.<br />The angel replies: But would she be patient enough? <br />God answers: I don’t need her to be very patient, as she would drown in an ocean of self-pity and despair. Once the shock and hurt feelings go away, she will manage. I took a good look at her today: she knows and trusts herself. <br />Yes, she is a woman to be blessed with a special child. She does not know it yet, but it is she who will be envied. She will believe no more in words and she will never think a step is just a mere step and nothing more. And when her child will take his first steps for the first time, she will be there to bear witness to a miracle; and she will know it. And she will never be alone. I will be there by her side, each minute of each day of her life. <br /><br />If 990,000 people donated €2, we might be able to have the life-saving treatment for Victor!<br />Please continue to be by Victor’s side and share his story. He needs us all! <br />Any amount brings us closer to the day when we can succeed, together! <br /><br />#togetherforVictor
</div>

Together for Victor

Este verano Vástago Epicentro está uniendo esfuerzos junto con Missione Possibile para realizar el primer viaje misionero en Agosto de 2016.<br />En esta ocasión son ocho las personas que estarán viajando procedentes de Monterrey, NL México con rumbo a Camboya, lugar donde permanecerán dos semanas para dar todo su esfuerzo, tiempo y talento para bendecir y ayudar a niños, madres solteras, viudas, huérfanos y personas en necesidad.<br />Missione Possibile es un ministerio que ayuda a contrarrestar el analfabetismo creando y manteniendo nuevos orfanatos y centros de salud para combatir la explotación infantil y proveyendo apoyo a víctimas de violencia, abuso y prostitución a través de programas de nutrición, educación y formación profesional, y Vástago Epicentro, en una manera de apoyar esta noble causa, ha seleccionado a un equipo de colaboradores para viajar y ser de bendición en esta gran labor.<br />Para poder llevar a cabo esta misión, nuestro equipo de misioneros requiere recabar $16,000.00 dlls en total para cubrir sus boletos de avión, alimentos y alojamiento.  Posiblemente tu deseo por ser parte de este gran momento lo puedas hacer realidad a través de tu apoyo en oración y compartiendo un poco de lo mucho que has recibido.  <br />¿Querrías ser parte de este viaje a través de tu apoyo financiero?<br />Si es así, te invitamos a enviar tu donativo a través de la cuenta:<br />- - - - - - - - - -<br />Tu donativo es deducible de impuestos y lo mejor de todo, será una semilla plantada en tierra fértil.  Gracias por creer y apoyar este primer viaje misionero de Vástago Epicentro rumbo a Camboya.  <br /><br />Mayor información la puedes obtener escribiendo a: [email redacted]<br /><br />Jaanai Romero<br />Directora de Misiones<br />Vástago Epicentro

Vástago Epicentro en Camboya 

Eileen Price

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

fund country is US and user language is English (amp15)

Gift cards donation status audience

proCampaignId

p2p legacy startfundraising page

PoDo Incentive audience

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

International Only

fundId

braze fundraiser group 

Sitewide Banner: CA + en_CA

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

New funds eligible - Video Sharing (PROD) (amp17)

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

US Related Communities

DAF Internal

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Posters INTL

iOS at or above 12.4.0

non-US recurring donors

Fundraiser Without Meta Link

email

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

 Custom users

userEmail

public_profiles_redesign_prod_test_audience

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

Excluded funds - Video Sharing (amp15)

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

checkout headers audience

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

ai_title_page

anyword

openai

control

manual_entry

template_id

userId

fundUrl

isCharityCo

appVersion

shouldBucketIntoExperiment

donationAmount

isDafPay

isEligible

partnerId

isMobile

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

NPO email opt-in candidates

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

Excluded funds - Video Sharing

Fundraiser Without Instagram Deep Link (amp15)

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Eileen Price

Eileen Price

What Eileen cares about

Eileen’s featured causes

Together for Victor

Vástago Epicentro en Camboya