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Kalina Silverman / @makebigtalk on Instagram

Samuel Weidenhofer

Patriotic Kenny Foundation

Ben Saunders - Flawless Cleaning

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Tess Bohne

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Flavor Flav

John Wolfe

Khloe

<div>Hi, my name is Linda and I am wanting to raise funds to help pay for Zac's much needed jaw surgery. All funds will go directly to medical expenses.
</div>
<div><br />
</div>
<div>At 24 years old, Zac Ede should be starting his life — planning trips with friends, building a career, and looking toward the future. Instead, he is trapped in a body that has been in a state of medical crisis since he was 11 months old. After 23 years of surgeries and resilience, Zac has reached a breaking point, and he needs our help to bridge the final gap to his recovery.
</div>
<div><br />
</div>
<div><strong>A Journey Defined by Resilience</strong>
</div>
<div>Zac’s battle began as a baby in 2002. At just 11 months old, he suddenly lost the ability to crawl or pull himself up. What was first feared to be meningitis turned out to be a 6cm spinal cord tumour (a pilocytic astrocytoma) stretching from his neck to his chest. Zac survived the gruelling surgery and two years of chemotherapy at the Children’s Hospital at Westmead, but the victory came with a heavy price: permanent spinal cord injury and a lifetime of complex health battles.
</div>
<div><br />
</div>
<div><strong>A Body Under Siege</strong>
</div>
<div>As Zac grew in adolescence so did the complications. His high school years were not spent playing sports, but dealing with pain spending time with specialists and in hospitals:
</div>
<div>● The Halo Traction: In 2018 Zac’s spine began to deteriorate rapidly. In 2019, during his Year 12 HSC, he spent weeks in pre-operative halo traction—a metal brace fixed to the skull—before undergoing a massive surgery to fuse the majority of his spine from T2 to L4.
</div>
<div>● The Hardware Failure: In 2024, Zac had to return to surgery after a titanium rod in his back fractured and screws became loose, requiring a complex revision and bone grafts.
</div>
<div>In true "Zac style," he never gave up. He is a fighter. He prepared for the HSC from a hospital bed. He worked for a short time as an assistant manager at KFC until his body physically crashed.
</div>
<div><br />
</div>
<div><strong>The Invisible Battle: Beyond the Scars</strong>
</div>
<div>Zac doesn't just fight the "big" surgeries; he fights a daily, invisible war within his own nervous system. Due to his spinal cord injury and the trauma his body has endured, Zac lives with:
</div>
<div>● Neurological Storms: Severe chronic fatigue, "brain fog," and debilitating migraines.
</div>
<div>● Autonomic Dysfunction: His body cannot regulate its own temperature, leading to drenching night sweats.
</div>
<div>● Physical Fragility: He battles Osteopenia (low bone density), which makes every spinal surgery and recovery period significantly more dangerous.
</div>
<div>● Chronic Systemic Pain: A permanent "twist" in his body makes it impossible to sit comfortably or even lay flat in bed.
</div>
<div><br />
</div>
<div><strong>The Final Hurdle: The Jaw Surgery</strong>
</div>
<div>Despite the successful spinal repairs, Zac cannot heal because his body is starving and exhausted. Zac has a severe jaw deformity that has reached a critical stage:
</div>
<div>1. He cannot sleep: He has obstructive sleep apnoea, but because of his jaw misalignment, CPAP machines cannot form a seal. He is severely sleep-deprived, and a body that cannot sleep cannot heal from spinal surgery.
</div>
<div>2. He cannot eat: His jaw and teeth do not line up. It is painful to chew, he suffers from an excessive gag reflex, and he is dangerously
</div>
<div>underweight.
</div>
<div>3. The Solution: Specialists have confirmed he needs Bimaxillary Orthognathic Surgery to reposition his jaw, allowing him to breathe and eat.
</div>
<div><br />
</div>
<div><strong>Zac Ede: A Detailed Medical History &amp; Timeline</strong>
</div>
<div>This document provides a comprehensive overview of the medical challenges Zac has faced from infancy to the present day. It serves as a testament to his strength and a clinical justification for the urgent surgery he now requires.
</div>
<div>2002 | The First Chapter: Survival
</div>
<div>At just 11 months old, Zac’s life changed overnight. He suddenly lost the ability to pull himself up or crawl, and his left side became weak. While doctors initially suspected meningitis, an MRI revealed a life-threatening 6cm pilocytic astrocytoma—a large spinal cord tumour spanning the cervicothoracic spine (C3 to T3). The tumour was so expansive that only a tiny rim of the spinal cord remained visible.
</div>
<div>Zac underwent major surgery to remove the tumour, followed by two years of chemotherapy at the Children’s Hospital at Westmead. Despite enduring repeated central line infections, Zac survived. However, the battle left him with a permanent spinal cord injury and a lifetime of complex neurological sequelae.
</div>
<div>2008–2009 | Upper Limb Challenges
</div>
<div>By age six, the nerve damage to Zac's left side became a primary focus. He underwent multiple tendon transfer surgeries on his left hand to try and restore function. Unfortunately, these procedures were unsuccessful. Years later, specialists at Royal North Shore Hospital confirmed that no further surgical options were available for his hand. Despite this devastating news, Zac maintained his trademark wit, holding out hope for "bionic hands" in the future. 
</div>
<div>2019 | Adolescence and Spinal Crisis
</div>
<div>As Zac grew, the stress on his compromised nervous system intensified. By age 17—his final year of high school—his spine began to deteriorate rapidly. The complexity of his case was so significant that local surgeons sought international counsel. Zac was presented at an international meeting in Sydney, where a global panel of top spinal
</div>
<div>surgeons collaborated to create a surgical plan. Before the procedure, Zac spent weeks in pre-operative halo traction to stabilize and protect his spinal cord. The subsequent surgery fused his spine from T2 to L4. Throughout this ordeal, Zac remained an absolute champion, completing his Year 12 HSC from his hospital bed.
</div>
<div>2020–2021 | The Systemic "Crash"
</div>
<div>Following a brief period of stability, Zac’s health took a sharp downturn. He began experiencing a cascade of systemic issues:
</div>
<div>● Neurological Symptoms: Severe chronic pain, extreme fatigue, migraines, and "brain fog."
</div>
<div>● Autonomic Dysfunction: Inability to regulate body temperature, drenching night sweats, and persistent nausea leading to weight loss.
</div>
<div>● Structural Agony: His back pain intensified, accompanied by audible "creaking and grinding" sounds within his body. A permanent spinal "twist" made it impossible for him to sit in any chair or lay flat, as his lower back and hip would hover above the mattress.
</div>
<div>This physical and mental "crash" in February 2021 forced Zac to resign from his management role at KFC and, eventually, his delivery work.
</div>
<div>2022–2023 | Hardware Failure and Airway Obstruction
</div>
<div>In June 2022, a CT scan confirmed hardware failure: a titanium rod had fractured at the L3/4 level of his lumbar spine. Simultaneously, Zac was diagnosed with Obstructive Sleep Apnoea.
</div>
<div>Despite working with sleep clinics and specialists, it was discovered that Zac’s jaw deformity made CPAP treatment impossible. By December 2023, Dr. Lydia Lim (Oral &amp; Maxillofacial
</div>
<div>Surgeon) confirmed a severe skeletal malocclusion and mandibular asymmetry. Zac’s jaw had become so misaligned that he could no longer chew properly, his teeth were chipping, and he suffered from an excessive gag reflex because his tongue could no longer reach the roof of his mouth.
</div>
<div>2024 | Spinal Revision
</div>
<div>In May 2024, Zac underwent another major revision surgery. Surgeons confirmed a non-union of the titanium rod and a loose L4 screw. They replaced the lumbar rods and screws, performed a discectomy, and installed a "banana cage" packed with bone graft. While this addressed the spinal hardware, it did not resolve the underlying issues of sleep and nutrition.
</div>
<div>The Present | The Path Forward
</div>
<div>Today, Zac is caught in a medical "Catch-22." He cannot heal from his spinal surgeries because he cannot sleep due to his airway obstruction, and he cannot gain the weight necessary for
</div>
<div>recovery because his jaw deformity makes eating a painful struggle.
</div>
<div>The Bimaxillary Orthognathic surgery is no longer elective; it is the essential foundation for Zac’s survival and his only hope for a life beyond chronic pain and isolation.
</div>
<div>Key Clinical Diagnoses
</div>
<div>● Post-Tumour Spinal Cord Injury (C3-T3)
</div>
<div>● Spinal Fusion (T2-L4) with History of Hardware Failure
</div>
<div>● Class III Skeletal Malocclusion &amp; Mandibular Asymmetry
</div>
<div>● Severe Obstructive Sleep Apnoea (CPAP Intolerant)
</div>
<div>● Dysautonomia (Temperature regulation/Night sweats)
</div>
<div>● Chronic Fatigue &amp; Osteopenia
</div>
<div><br />
</div>
<div><strong>Why We Need Your Help</strong>
</div>
<div>The public health waitlist for this complex surgery is years long — years Zac simply does not have. To have this surgery performed privately by his specialist team, the <strong>out-of-pocket cost is $40,000 AUD.</strong>
</div>
<div>On a disability pension, this amount is an impossible mountain. Zac feels a sense of utter despair, recently saying: "I haven't had a single year where I didn't have a major challenge to deal with. My body and mind always let me down." We want to prove to Zac that his body doesn't have to be his prison. Every dollar raised goes directly toward the surgery, specialist orthodontics, and hospital fees required to give Zac
</div>
<div>his life back. Please help us give this brave 24-year-old the chance to finally breathe, eat, and sleep without pain.
</div>
<div><br />
</div>
<div><strong>How to Help</strong>
</div>
<div>● Donate: No amount is too small. Every bit helps us reach that $40,000 goal.
</div>
<div>● Share: Please share Zac’s story on social media to help us reach those who may be able to assist.
</div>
<div><br />
</div>
<div><br />
</div>

The Final Hurdle - Help Zac breathe, eat & finally heal 

<div><strong>Kai needs our help! </strong>
</div>
<div>Kai is the 8 year old soccer loving son of Brooke and Rick-who after presenting with chronic headaches was diagnosed with the unimaginable, a cancer to be determined as a diffuse leptomeningeal glioneuronal tumour (DLGNT) in August of 2024. DLGNT is a rare primary central nervous system tumour. Due to its spread throughout Kai's spinal cord and brain the tumour is inoperable, and as a result of this tumour growth Kai suffered consequences of hydrocephalus and has had a shunt put in place to reduce the pressure around his brain.
</div>
<div>It has been an incredibly tough journey so far with Kai now 10 months into a grueling chemotherapy regime to try and halt the tumours' growth, stop its spread, and prevent neurological damage.
</div>
<div>Despite this unimaginable adversity, Kai has continued to amaze his family, friends and all those who know and love him with his bravery, optimism and continued ability to find joy in the everyday things that matter most. He loves spending time with his mates, playing with his little brother Sonny and is an absolute soccer fanatic! Ronaldo better watch out!
</div>
<div>Kai has spent more time in hospital over the last 12 months than any child ever should , and unfortunately due to the nature of this unforgiving cancer, his journey doesn't end with completion of the long chemotherapy regime he is currently undergoing. Kai will require continued ongoing hospital visits and regular MRI's to consistently monitor his condition for relapse.
</div>
<div>As you can imagine, the extended and frequently unexpected hospital stays have made it difficult for Brooke and Rick to maintain their ordinary work schedules. As any parent would, they are trying to be as present for Kai as they can as they navigate their new normal and provide him with the best care and support services possible. Any donations would help to ease the financial burden of any of these expenses and assist Kai's family in improving his quality of life. 
</div>
<div><strong>Every dollar counts, and if you're not in a position to donate I ask you to please consider sharing Kai's story far and wide!</strong>
</div>
<div><strong>Our goal is to help fuel Kai with love, support, strength and most of all- hope for a brighter future :)</strong>
</div>

Help brave 8 year old Kai fight a rare brain & spinal tumor

<div>Hi my name is Kelly and I have the most amazing nephew. Riley was born with Achondroplasia. For those that don’t know this term, he is a little person. All his 15 years Riley has been told no! No you can’t do that because you are a little person. Riley defies the odds everyday. You tell him no you can’t, he will say watch me. Riley’s dream is to participate in a special weekend away called National Sports Weekend Gold Coast 2025. The purpose of this event is to qualify for the World Dwarf Games which is being hosted in Australia this years giving us a real chance for Riley to compete. Please help me get Riley there - anything you can spare would be greatly appreciated. Funds will be used for travel expenses to QLD, accommodation and entry to the games for Riley and his family. Please help me to fulfil Riley’s dreams and make his wishes come true. The kid has been through enough with constant hospital visits, nightly injections, several surgeries. You name it, he has been through it. But always with a smile on his face and the confidence of a king!
</div>

Help Riley Participate in his dream event

<div><strong>UPDATE: December 2023</strong>
</div>
<div><br />
</div>
<div>Ohana,
</div>
<div><br />
</div>
<div>You’ve been on this journey with us for almost a year. The triumphs and the heartbreaks have been monumental &amp; through it all, your support has been the wind under our wings, that’s carried us further than most would have dared to dream…
</div>
<div><br />
</div>
<div>“Grateful” doesn’t even come close to the immensity of all we feel for you… thank you, thank you, THANK YOU… and… our journey isn’t over yet.
</div>
<div><br />
</div>
<div>We are reaching out with one final and perhaps most difficult request for support…
</div>
<div><br />
</div>
<div>Last month, our magical Son and center of our universe, Mana Trinity Darville, took his last breath.
</div>
<div>We are shattered &amp; will spend the rest of our lives longing to have just one more moment in the sunshine of his light.
</div>
<div><br />
</div>
<div>As we put the pieces of our hearts back together in a new mosaic that is forever expanded, we’re faced with the practical realities of all that lays ahead…
</div>
<div><br />
</div>
<div>We are proud to say that EVERY SINGLE DOLLAR that you helped us raise, was spent directly on Mana’s medical treatments. Towards the end, as the urgency mounted to fever pitch and the sleepless nights became sleepless months, the medical bills piled-up far beyond what we raised. We completely depleted our life savings and ate into the equity in our house.
</div>
<div><br />
</div>
<div>We have no regrets and would do it all again a thousand times over, but our finances aren’t the only things we depleted; we’re emotionally, spiritually and physically utterly exhausted.
</div>
<div><br />
</div>
<div>The prospect of immediately having to find work or sell our house to cover costs is overwhelming to say the least.
</div>
<div><br />
</div>
<div>So, we’re humbly asking for your support again, so we can grieve with dignity &amp; heal the hurting hearts of Mana’s two little brothers that need our attention now more than ever.
</div>
<div><br />
</div>
<div>The thing about Mana’s gofundme that still brings us to tears, is the simple fact that the average donation was just $25 dollars. It wasn’t the high flyers or the celebrities, but the everyday people, the Moms and Dads who saw their own children in Mana’s eyes, that allowed us to try EVERYTHING. And in doing so, have given us the greatest gift of PEACE in our darkest hour.
</div>
<div><br />
</div>
<div>If you are in a position to donate again, whether large or small, our gratitude for your kindness extends beyond this lifetime…
</div>
<div><br />
</div>
<div>Two weeks ago, in Ojai California 150 of Mana’s closest friends and family came together to Celebrate his Life in a gathering that was profoundly transformative for all in attendance.
</div>
<div><br />
</div>
<div>Mana’s presence and magic was palpable in every element of the day. And it was obvious to everyone there that he’d want that magic shared with the thousand globally who were touched by him. 
</div>
<div>Although it’s overwhelming to try pull this off at this time and scary to share something so deeply personal, we know it’s the next step. 
</div>
<div><br />
</div>
<div>Please join us for a 90 minute unforgettable livestream concert/celebration of Mana. 
</div>
<div><br />
</div>
<div>Date: Thursday, January 18th, 2024
</div>
<div>Time: 6 pm PST
</div>
<div>RSVP: <a href="https://www.manafest.fun" target="_blank" rel="noreferrer noopener">www.Manafest.Fun</a>
</div>
<div><br />
</div>
<div><strong>How you can help today-</strong>
</div>
<div><strong>Donate</strong>: Your financial support, regardless of the amount, means the world to us!
</div>
<div><strong>Share</strong>: Spread Mana’s Magic by sharing our GoFundMe page on your social media. Be sure to [email redacted] 
</div>
<div><strong>Join Us</strong>: Mana’s happiest place was always in community. He had a supernatural ability to bring people together. So, in true Mana spirit we’re inviting you to join us for his Celebration of Life on January 14th 2024, 6pm PST. RSVP at www.Manafest.Fun
</div>
<div><br />
</div>
<div>All our Love,
</div>
<div>Eka + Lila xx
</div>
<div><br />
</div>
<div><strong>UPDATE: October 2023</strong>
</div>
<div><br />
</div>
<div>Back in January 2023, Mana wasn’t expected to make it longer than 8 weeks….
</div>
<div><br />
</div>
<div>We put out the call &amp; YOU answered. We watched in awe &amp; gratitude as our community showed up to fully resource us in finding the best and most effective treatments anywhere in the world for Mana.
</div>
<div><br />
</div>
<div>Three grueling surgeries, 2 continents, countless therapies and Mana’s undeniable will…
</div>
<div>8 months later he is still with us. Still fighting.
</div>
<div><br />
</div>
<div>We’ve witnessed real-life miracles as Mana went from not being able to walk, to doing ninja rolls off the side of the bed, rock climbing, swimming &amp; not just getting out of the wheelchair but running unassisted!
</div>
<div><br />
</div>
<div>Looking at Mana only a few short weeks ago, we never imagined we’d be calling for your support again.
</div>
<div>Despite months of stability and miraculous progress, the tumor has clawed its way back and is growing faster than ever.
</div>
<div><br />
</div>
<div>The support of this community has enabled us to provide Mana with the the best medical care available and now we’re asking for you to carry us even further.
</div>
<div><br />
</div>
<div>In our unwavering commitment to find a solution for Manas full recovery we have increased our GO FUND ME goal to cover additional treatments from Europe and Japan.
</div>
<div><br />
</div>
<div>Beyond raising funds for Manas healing, a greater mission has become clear.
</div>
<div>Mana wishes for everyone to gather in prayer. This we endeavor to grant by giving an opportunity to our extended community to gather nightly on IG Live in a prayer of unconditional Love, compassion and forgiveness.
</div>
<div><br />
</div>
<div>@lets.go.mana instagram
</div>
<div>️ Daily
</div>
<div>⏰8am Bali | 11am Sydney | 5pm LA | 7pm Austin | 8pm NY
</div>
<div><br />
</div>
<div>Thank you, we love you.
</div>
<div>_______________________________________________________________________
</div>
<div><br />
</div>
<div><strong>MARCH 2023</strong>
</div>
<div><br />
</div>
<div>Our son Mana needs your help. Right now, he is in the fight of his life against multiple malignant brain tumors.
</div>
<div><br />
</div>
<div>Anyone who has met Mana will agree that keeping him here is something worth fighting for.
</div>
<div><br />
</div>
<div>In July 2022 our lives were turned upside down. Mana collapsed on the beach with a massive seizure that left the right side of his body paralyzed. At the time, he was misdiagnosed with Focal Cortical Dysplasia, a brain abnormality that had supposedly been there since birth. We implemented everything possible to try stop the seizures, but for the next 6 months, Mana continued to suffer daily uncontrolled episodes.
</div>
<div><br />
</div>
<div>On the 18th of January 2023 we found ourselves back in the emergency room. To our absolute horror an MRI revealed two large masses in Mana’s brain; one the size of a peach and the other a walnut. Tumors, now growing across the surface of our son's brain.
</div>
<div><br />
</div>
<div>We were immediately rushed into emergency surgery and our little warrior survived over 13 hours in theatre. But even in the hands of our world-class surgeon, only 60% of one mass was able to be removed.
</div>
<div><br />
</div>
<div>The tumor tissue was sent to the best diagnostic laboratories in the world, with the hope of finally knowing what type of cancer we’re dealing with. But after cross-referencing the genetics and morphological features against the entire Australasian, European and select American databases, there are zero matches to what they are seeing. In true Mana style, this is one of a kind.
</div>
<div><br />
</div>
<div>In our most recent oncologist meeting, we were told that he has high-grade aggressive brain cancer. It is some form of glioneuronal tumor with genetic mutations usually only seen in glioblastomas. Then to our shock, they said, "without knowing what it is, we cannot responsibly offer you ANYTHING in terms of treatment. We are so sorry we can’t be more helpful…”
</div>
<div><br />
</div>
<div>So it’s now up to us to find a cure for our boy.
</div>
<div><br />
</div>
<div>We’ve left no stone unturned in our global search for solutions.
</div>
<div><br />
</div>
<div>We’ve found two clinics in the US that are having stunning success treating paediatrics and curing the “incurable.” We are in contact with families of kids with similar diagnoses as Mana who are now in full remission. Halleluja!!
</div>
<div><br />
</div>
<div>The cutting-edge treatments at both of these clinics cost between $17,000 - $35,000 USD per month. Each.
</div>
<div><br />
</div>
<div>Neither are covered by insurance.
</div>
<div><br />
</div>
<div>There is no number too high for Mana.
</div>
<div><br />
</div>
<div>We need to raise enough to cover the first 9 -12 months of treatment, plus medical devices, medications, international travel/accommodation and childcare for our other two boys.
</div>
<div><br />
</div>
<div>Once in remission, we’ll still have the monumental task of rehabilitating the extensive neurological damage as he learns to walk and move his right arm/hand again.
</div>
<div><br />
</div>
<div>All of this will take time and unwavering dedication. Until Mana is well, we both will be exclusively caring for Mana and administering the hourly treatments he requires.
</div>
<div><br />
</div>
<div>All funds will go directly to supporting us Heal Mana.
</div>
<div><br />
</div>
<div>Help us move mountains to keep this magical little boy with us.
</div>
<div><br />
</div>
<div>How?
</div>
<div>1. Donate what feels right
</div>
<div>2. Share this fundraiser with the hashtag #LetsGoMana
</div>
<div>3. Pray for/Visualize Mana as the vital 40+ year-old man he will someday be!
</div>
<div><br />
</div>
<div>With everything we’ve got,
</div>
<div>THANK YOU.
</div>
<div><br />
</div>
<div>*For updates and to follow our [email redacted]a.Ohana
</div>

Heal Mana → Support Mana's Family

Louise Ede

Medical

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isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

Louise Ede

Louise Ede

What they care about

Featured causes

The Final Hurdle - Help Zac breathe, eat & finally heal

Help brave 8 year old Kai fight a rare brain & spinal tumor

Help Riley Participate in his dream event

Heal Mana → Support Mana's Family

About me