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<div>Buongiorno, mi chiamo Francesca e sono la mamma di Penelope, una bambina straordinaria che ogni giorno affronta una sfida enorme: la sindrome di Ehlers-Danlos, una rara malattia degenerativa del tessuto connettivo.
</div>
<div>Questa patologia coinvolge ogni parte del suo corpo. Per Penny significa vivere con:
</div>
<ul>
<li>ipotonia e iperlassità articolare
</li>
<li>continue sublussazioni delle articolazioni 
</li>
<li>dolori costanti dovuti alla fibromialgia 
</li>
<li>gastro paresi che rende difficile nutrirsi
</li>
<li>osteoporosi con fratture spontanee
</li>
<li>problemi di continenza
</li>
<li>Dilatazione aortica con pregressa miocardite lo scorso anno anno 
</li>
<li>artrite idiopatica giovanile con formazioni cistiche ai trocanteri 
</li>
</ul>
<div>Nelle ultime settimane la situazione è peggiorata rapidamente. Ho dovuto sostenere visite, risonanze e controlli solo privatamente, perché i tempi di attesa sarebbero stati troppo lunghi per la sua condizione. Ogni giorno cerco di garantirle tutto ciò di cui ha bisogno, ma le spese sono diventate troppo grandi per una sola mamma.
</div>
<div>So che non posso offrirvi agevolazioni fiscali e che esistono associazioni più strutturate… ma io sono solo una mamma che vuole dare a sua figlia la possibilità di camminare e vivere senza dolore il più a lungo possibile.
</div>
<div>Per questo vi chiedo, con tutto il cuore, di aiutarci.
</div>
<div>Anche un piccolo contributo può fare la differenza nel garantirle terapie, visite specialistiche e supporto medico continuo.
</div>
<div><br />
</div>
<div>Hello, my name is Francesca, and I am the mother of Penelope, an extraordinary little girl who faces an immense daily challenge: Ehlers-Danlos Syndrome, a rare degenerative connective tissue disorder.
</div>
<div><br />
</div>
<div>This condition affects her entire body. For Penny, it means living with:
</div>
<div><br />
</div>
<div>muscle weakness and extremely flexible joints
</div>
<div><br />
</div>
<div>constant joint dislocations
</div>
<div><br />
</div>
<div>chronic pain from fibromyalgia
</div>
<div><br />
</div>
<div>gastroparesis, which makes eating difficult
</div>
<div><br />
</div>
<div>osteoporosis with spontaneous fractures
</div>
<div><br />
</div>
<div>bladder control issues
</div>
<div><br />
</div>
<div>aortic dilation with a history of myocarditis last year
</div>
<div><br />
</div>
<div>juvenile idiopathic arthritis with cystic formations on the trochanters
</div>
<div><br />
</div>
<div>In recent weeks, her condition has worsened rapidly. I have had to cover all specialist visits, MRIs, and medical evaluations privately, because waiting times in public healthcare would have been too long.
</div>
<div><br />
</div>
<div>Every day, I try to give her everything she needs, but the medical costs have become overwhelming for a single mother.
</div>
<div><br />
</div>
<div>I know I cannot offer tax benefits and that there are larger organizations available… but I am just a mother who wants to give her daughter the chance to walk and live with as little pain as possible for as long as possible.
</div>
<div><br />
</div>
<div>For this reason, I am asking, from the bottom of my heart, for your help.
</div>
<div><br />
</div>
<div>Even a small donation can make a huge difference in providing her with therapies, specialist visits, and ongoing medical support.
</div>
<div><br />
</div>
<div>I am happy to provide all medical documentation to anyone who requests it for verification.
</div>
<div><br />
</div>
<div>Thank you so much for your kindness and support.
</div>
<div><br />
</div>
<div>With love,
</div>
<div>Francesca &amp; Penelope
</div>
<div><br />
</div>
<div><br />
</div>

Una tela per Penelope - “Give Penelope the Chance"

<div>Buongiorno a tutti sono la mamma di Penelope una dolcissima bambina di 6 anni. Penelope e' affetta da una sindrome molto rara denominata Ehlers-Danlos. Ho capito, quando aveva 10 mesi, che qualcosa non andava. Dopo numerose visite le è stata diagnosticata la sindrome da lassità e ipotonia muscolare e legamentosa. Non mi sono scoraggiata, ho intrapreso un secondo lavoro per permetterle di effettuare un importante percorso fisioterapico. Ho speso oltre 8000 euro. Sono una mamma lavoratrice, ho due bambini, un marito che mi aiuta ma purtroppo la pandemia ha messo in difficoltà moltissimi settori professionali tra cui i nostri. Ho bisogno del vostro aiuto per le fisioterapie, la logopedia, le numerose visite cardiologiche. Penelope è monitorata costantemente, la sua muscolatura è molto debole. Da qualche mese e' subentrata una forma di incontinenza e un problema di lateralizzazione. I fondi da voi donati saranno unicamente utilizzati per le visite mediche. Aiutatemi affinché Penelope possa camminare e parlare sempre meglio. Grazie ❤️ Hello everyone, I'm Penelope's mother, a very sweet 5 year old girl. Penelope has a very rare syndrome called Ehlers-Danlos. I realized, when she was 10 months old, that something was wrong. After numerous visits, she was diagnosed with muscle and ligament laxity and hypotonia syndrome. I was not discouraged, I took a second job to allow her to carry out an important physiotherapy course. I spent over 8000 euros. I am a working mother, I have two children, a husband who helps me but unfortunately the pandemic has put many professional sectors in difficulty, including ours. I need your help with physiotherapy, speech therapy, the numerous cardiological visits. Penelope is constantly monitored, her muscles are very weak. For some months now she has had a form of incontinence and a lateralization problem. The funds you donate will only be used for medical examinations. Help me so that Penelope can walk and talk better and better. Thanks ❤️
</div>

Una tela per Penelope Help for Penelope

Alice Ungaro

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Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

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Platform is iOS v11.2.0 and above

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PYMK has donors

Alice Ungaro

Alice Ungaro

What they care about

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Una tela per Penelope - “Give Penelope the Chance"

Una tela per Penelope Help for Penelope

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