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My mother, Janette Ackman was diagnosed with ALS, also known as Lou Gehrig’s disease. ONLY five months ago and TODAY she can barely walk. This very aggressive desease which typically affects all muscles under voluntary control, and the person ultimately loses their strength and ability to eat, speak, grasp things, move, blink and  breathe.  Janette loves to run. She ran 5ks and 10ks every weekend at the age of 60. Now she is barely able to walk.  She also can’t do half the mundane tasks we do everyday, brushing her teeth, combing her hair, walking to the fridge to grab a bottle of water.  She is fighting tooth and nail to try to still do things on her own because she has always been a strong, independent person. Each day is more difficult as her body is being attacked by this horrific disease. She is a fall risk and has fallen many times in five months leading to numerous visits to the emergency room and staples in her head.  Janette is on a feeding tube due to malnutrition which led to 33% loss of her Body mass index (BMI) so now, she relies on a feeding tube. Her “meals” consist of a  special liquid protein shakes. She is unable to enjoy the satisfying flavors of a shared meal with friends and family at a restaurant, or dancing during a birthday, wedding or family celebration. An array of organic supplements and CBD tinctures and oils to help with the pain. She needs a special chair to sleep in at night. We have nurses, physical therapists, massage therapists, speech therapists that come to the house.  These are services we pay for out of pocket as her insurance does not cover these outpatient services. We finally had a breakthrough just recently with a medication AMX0035 (sodium phenylbutyrate (PB) and tauroursodeoxycholic acid) which can help limit the cell death in ALS. All the trials show that this can help my mom up to 57% and start regaining some of her life and independence back. Unfortunately, the FDA has not approved this medication for ALS, which means no insurance company will cover it. This medication is a flicker of life  for Janette. All which insurance does not cover and on average costing around $5000 for every 45 days. 


My family is blessed to have Janette in our lives. She has always been generous and loving to strangers, friends and family Her faith in God has been a strong beacon in her life.. We love her and have faith that my mom will get better. 


We understand there is still no cure for this devastating disease but miracles happen everyday. From the bottom of our hearts we are eternally grateful for any donations, especially during these hard times for everyone right now.  Thank you so much for your donation! It  took a long time for my family and I to get here and share this with everyone, so anything and I mean ANYTHING helps.

Get Janette Walkin’ Again; HELP reverse ALS!

I am asking on behalf of my father 77-year old David Henson, who I am trying to return to UK in the winter of his life. David is a long term expatriate who has been in the Middle East working since 1976. In 2011 he lost his job and began and ardent searched for further employment, however due to his age he was not able to take on the job that he had been promised and soon fell into debt over his living expenses and mostly rent. I helped him as much as I could in this period until he eventually had to move in with me and my family. Sadly his health began to deteriorate through stress and lack of purpose. In this time and due to the very high cost of living in Qatar, his debts soon escalated close to 55,000 GBP for unpaid rent and utilities. Over the last few years I have managed to reduce this to around 13,000 GBP, this has not been easy while supporting a young family and meeting my own financial obligations. David suffered a stroke in 2014 which left him with very limited mobility and accumulating health problems including reduced movement, memory loss, slurred speech, dizziness and periods of confusion. At the end of 2016 I was made redundant when my company downsized. At this point I sent my wife, 3-year-old and baby home to UK to live with family, but was unable to leave Qatar due to the need to support my father who is entirely dependent on myself for care and financial support. Currently we have no income and are making do as best we can while living with a good friend. On the 2nd of February 2017 David suffered a severe cardiac event and stopped breathing for a time. He was rushed to the main hospital in Qatar and kept in the critical care ward for 3 days. He is now even more fragile but recovering slowly albeit with even less energy and stability than before. It is my dear wish to return my father to UK by settling his outstanding debts, legal fees and expenses so that he can be home with his family for his last years. All of his remaining expenses including bills and even flights to get him home comes to around 13,500 UK Pounds, this is what I am aiming for to get him back home before his time runs out. Much as this has now put me and my family in financial crisis and I desperately need to return to my wife and very young children I cannot until I know my father is safe. I am not asking for any of the funds for myself I only ask for help in solving my fathers debts so that I can fulfil his only wish ‘not to die in the Middle East and be buried there away from UK'.

Help repatriate 77 year old David

Carrie Turano

Carrie Turano

Carrie Turano

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Get Janette Walkin’ Again; HELP reverse ALS!

Help repatriate 77 year old David

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