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Samuel Weidenhofer

Patriotic Kenny Foundation

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Officer Richard Craig

Flavor Flav

John Wolfe

Khloe

<div>Brixtin or Brixi as many friends &amp; family like to call him, is a miracle baby and true gift from God. 

</div>

<div>Family and friends have taken on the project of seeking support on behalf of the Glubrecht Family for 

</div>

<div>Brixtin age 2. Michael and Sahara fell in love in 2013 and tried hard for many years to start their own 

</div>

<div>little family. After many years of trying and almost giving up completely, they were blessed and 

</div>

<div>welcomed their miracle in October of 2022. Sahara and Michael were finally the parents they had 

</div>

<div>dreamed to be. Since the day he was born Michael &amp; Sahara have showered Brixi with unconditional love 

</div>

<div>and everything he could ever possibly need.  Fortunately, Sahara has been able to stay home &amp; raise 

</div>

<div>Brixi. He truly has become her whole world. Her instinct and relentless advocating for her son has led 

</div>

<div>us to where we are today. 

</div>

<div>Brixtin was diagnosed at birth with bilateral sensorineural hearing loss. At 3 months old Brixi 

</div>

<div>received his first set of hearing aids. It was an emotional yet joyous day as Michael &amp; Sahara got to 

</div>

<div>experience Brixtin truly hearing their voices with clarity for the first time. Brixtin was enrolled into the 

</div>

<div>Early Intervention Program through Opportunity Foundation and started receiving therapies to assist him 

</div>

<div>and his parents as they navigated this new journey. Brixi was taught sign language to help communicate 

</div>

<div>his needs. Brixtin also started seeing his teacher Mrs. Nicole from the ND school for the deaf to help the 

</div>

<div>family navigate their new lives with an infant who is hard of hearing. Genetic testing had been brought 

</div>

<div>up and the family started looking into it. 

</div>

<div>Brixi has grown into a strong willed, smart, loving, and kind little boy. In late 2023 while living in 

</div>

<div>Louisiana Sahara grew concerned about a lump Brixtin had developed on his back, the pediatricians kept 

</div>

<div>pushing it off as normal and said there was nothing to worry about. Sahara knew better and when the 

</div>

<div>family moved back to North Dakota in the summer of 2024 she took him to his pediatrician that he had 

</div>

<div>been with since birth. They immediately got X Rays, which came back to show he had a curvature in his 

</div>

<div>low spine, so they got a referral to a pediatric orthopedic specialist where they learned Brixtin had 

</div>

<div>Neuromuscular Scoliosis.  Sahara and Michael had become concerned about a few other things they 

</div>

<div>were noticing and 2024 became a year of so many challenges and changes in their lives. Sahara had to 

</div>

<div>aggressively advocate at every turn for testing, when she felt the specialists were pushing her off as just 

</div>

<div>another first time, helicopter mom. Sahara knew something was wrong and would not take no for an 

</div>

<div>answer. Insurance battles began and all the family wanted was to help this truly amazing little boy. 

</div>

<div>Meanwhile, Brixi grew to love books, his trampoline ball pit, using video chat to see his family, 

</div>

<div>and developed a laugh that could take over any room. In late 2024 Sahara became extremely ill and 

</div>

<div>fought for her own life after going septic, she is still facing many medical battles for herself but has not 

</div>

<div>let that stop her once from advocating and fighting for her son. As if that wasn't enough for this little 

</div>

<div>family to face, in December Michael unfortunately lost his mother, they were so grateful to be able to 

</div>

<div>make it to Washington to see her before her passing and for Brixi to get to spend the last few days with 

</div>

<div>his grandmother. Then Christmas Eve Sahara unexpectedly lost her grandfather to whom she was very 

</div>

<div>close with her entire life. 

</div>

<div>In January 2025, Brixtin had become increasingly ill and through many ER visits in Williston and 

</div>

<div>visits to the pediatrician it seemed they could not find a “cause”. Multiple times it was written off as a 

</div>

<div>“bug”. Brixtin grew increasingly lethargic and was not the same little firecracker that he usually was. 

</div>

<div>Sahara &amp; Michael made the decision to take Brixtin to Bismarck to the Sanford hospital that had a 

</div>

<div>children's unit. After checking into the ER Brixtin was immediately admitted for Rhinovirus, bilateral 

</div>

<div>bacterial pneumonia, ear infection, a sporadic heart rate, and being unable to maintain stable oxygen 

</div>

<div>levels. Brixi was so fortunate to have an amazing team on the children's floor. They stopped at nothing to 

</div>

<div>get answers for the family and help Brixi feel better. An abnormal Echocardiogram and EKG revealed that 

</div>

<div>Brixtins heart was not functioning properly among all the other issues he was facing. Brixtins doctor 

</div>

<div>spoke with Sahara and Michael about genetic testing, which they were already in the process of, she told 

</div>

<div>them she wanted to rush a few things and took blood and urine samples and sent them off. After a few 

</div>

<div>days on medication Brixtin was getting back to his “normal” self and the doctors felt he was stable 

</div>

<div>enough to go home. They were sent back home with referrals and a better understanding of what their 

</div>

<div>little one might be facing when the genetics results came back. Michael and Sahara learned days later 

</div>

<div>that Brixtin was diagnosed with Mucopolysaccharidosis type 1, a rare inherited genetic disorder that 

</div>

<div>affects the body’s ability to break down complex sugars which leads to progressive damage of the brain 

</div>

<div>and multiple organs and systems. They learned of the 3 types of MPS1 and unfortunately Brixi had the 

</div>

<div>most severe of the three called Hurler Syndrome. As you can imagine their world was forever changed in 

</div>

<div>the blink of an eye. Hurler syndrome is incurable at this time and the treatment options available are 

</div>

<div>severe and expensive. Receiving chemo to kill his immune system followed by a bone marrow transplant 

</div>

<div>is the primary way to extend Brixis life. 

</div>

<div>After a short fight with insurance, they were approved for referrals to the University of 

</div>

<div>Minnesota Children's Hospital where they have a department that specializes in MPS1 with all the 

</div>

<div>specialists Brixi will need. Brixtin has his first appointment on February 26, 2025, to meet his team that 

</div>

<div>will be taking care of him and start receiving enzyme replacement therapy until they have a bone 

</div>

<div>marrow donor for him. This first admission will go over everything the family needs to know and what to 

</div>

<div>expect in the coming months for their little family. It is an evolving situation on what his treatment team 

</div>

<div>and parents decide is the best for him moving forward. Unfortunately, during a lot of this Michael will 

</div>

<div>have to choose between being with his family at the hospital and working to provide for his family as he 

</div>

<div>has been the sole financial provider since Brixtin was born. Michael is fortunate to work for a company 

</div>

<div>that is understanding and has made it known that they will help in any way that they can. If Michael 

</div>

<div>chooses, he can take days off without pay. Since this is the family's only income, it would make a deep 

</div>

<div>impact. 

</div>

<div>We have no idea at this point what all the costs will be. They are in the process of getting 

</div>

<div>approval to stay in the Ronald Mcdonald house that is close to their hospital, unfortunately it is a first 

</div>

<div>come first serve situation. They will have housing, medical, gas, food, and other expenses during this 

</div>

<div>surreal time in their lives. As family and friends, we all want to do whatever we can to help the family as 

</div>

<div>much as possible so that they can solely focus on Brixtin and not have the worry of their financial 

</div>

<div>situation at the forefront of their minds. We ask that everyone send prayers and if you are able or want 

</div>

<div>to help ease the financial burden on the Glubrecht Family's lives, this is your opportunity. While we understand times are tough for everyone right now, this family needs us.

</div>

Stand with the Glubrecht's during Brixtin's medical journey.

saharae09@gmail.com 

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saharae09@gmail.com

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Stand with the Glubrecht's during Brixtin's medical journey.