Tysen's Medical Trial
Donation protected
www.tysenhunter.org
The Trial
Over the last 8 weeks, Tysen’s vision has rapidly changed. He is now experiencing vision loss; having complete loss in his left eye and roughly 30% remaining in his right. This has been an incredibly difficult time for him and his family, however there is a ray of light…the Trial.
The process of the trial is to collect Tysen’s bone marrow derived of adult stem cells and deliver them to an area that is has sustained cellular damage, resulting in his vision loss. Though it may not bring back all of his sight, there is a 74% chance he will regain some and that is good enough for us!
The trial will take place in Coconut Creek, FL on September 27, 2016. The funds raised will pay for the trial itself as well as travel and other medical expenses. Tysen will go back for 3, 6 and 12-month follow ups. The same doctor has helped a blind woman regain her sight.
https://clinicaltrials.gov/ct2/show/NCT01920867?term=01920867&rank=1
Home and Family
Tysen is the son of Nicole Cook-Rieffenberger and Justin Ward. Tysen lives with his mother, step-father-to-be, Brad, and 3 brothers, Braxtyn, Camdyn and Cruz.
Diagnosis
Tysen was diagnosed with Friedreichs Ataxia (FA) at 6 years old. FA’s major neurological symptoms include muscle weakness and ataxia, a loss of balance and coordination. FA mostly affects the spinal cord and the peripheral nerves that connect the spinal cord to the body’s muscles and sensory organs. Effects on the heart range from mild abnormalities to life-threatening problems in the heart’s musculature. 10% of FA patients develop vision and hearing loss.
School
Tysen is a gold honor roll 12th grader who excels in Math, Science and English.
Interests
Tysen loves sports and is an avid Chicago Bears and Minnesota Twins fan! He also enjoys video games, trivia games and spending time with friends and family.
MDA Activities
Tysen’s favorite thing to do is attend MDA Summer Camp every year and see his favorite camp counselors, old friends and make new ones. Tysen attends Fill the Boot events and is an MDA Shambassador. He also participates in Lock-Up and IAFF events. He recently spoke at the MDA Black & Blue Ball.
The Trial
Over the last 8 weeks, Tysen’s vision has rapidly changed. He is now experiencing vision loss; having complete loss in his left eye and roughly 30% remaining in his right. This has been an incredibly difficult time for him and his family, however there is a ray of light…the Trial.
The process of the trial is to collect Tysen’s bone marrow derived of adult stem cells and deliver them to an area that is has sustained cellular damage, resulting in his vision loss. Though it may not bring back all of his sight, there is a 74% chance he will regain some and that is good enough for us!
The trial will take place in Coconut Creek, FL on September 27, 2016. The funds raised will pay for the trial itself as well as travel and other medical expenses. Tysen will go back for 3, 6 and 12-month follow ups. The same doctor has helped a blind woman regain her sight.
https://clinicaltrials.gov/ct2/show/NCT01920867?term=01920867&rank=1
Home and Family
Tysen is the son of Nicole Cook-Rieffenberger and Justin Ward. Tysen lives with his mother, step-father-to-be, Brad, and 3 brothers, Braxtyn, Camdyn and Cruz.
Diagnosis
Tysen was diagnosed with Friedreichs Ataxia (FA) at 6 years old. FA’s major neurological symptoms include muscle weakness and ataxia, a loss of balance and coordination. FA mostly affects the spinal cord and the peripheral nerves that connect the spinal cord to the body’s muscles and sensory organs. Effects on the heart range from mild abnormalities to life-threatening problems in the heart’s musculature. 10% of FA patients develop vision and hearing loss.
School
Tysen is a gold honor roll 12th grader who excels in Math, Science and English.
Interests
Tysen loves sports and is an avid Chicago Bears and Minnesota Twins fan! He also enjoys video games, trivia games and spending time with friends and family.
MDA Activities
Tysen’s favorite thing to do is attend MDA Summer Camp every year and see his favorite camp counselors, old friends and make new ones. Tysen attends Fill the Boot events and is an MDA Shambassador. He also participates in Lock-Up and IAFF events. He recently spoke at the MDA Black & Blue Ball.
Organiser and beneficiary
Jenna Ward
Organiser
Watertown, SD
Tysen Cook
Beneficiary
