Tyler's Medical Fund
We will be closing down this site soon. Thank you all for the support you have given our family. We appreciate all of the monetary donations, cards, calls, personal visits, and prayers!
Yesterday we got to go in for our hospital visit early. This was so Tyler could meet with a child psychologist before he had to get the dreaded shot that he fears so much. She did an amazing job of role playing with him and talking about his fears. There is so much anxiety involved when a family is affected by this disease, and we are grateful that our family is connected with another caring person who can help guide us through the emotional difficulties. Tyler got to play with a little doll that was a "patient" at the hospital. It was good for him to talk about all of the things that happen at the hospital, and it gave him a chance to ask us questions.
We look forward to our bone marrow drive next Wednesday. Our friends have done such a great job of organizing this event for us; we are hopeful that the turnout is amazing!
Thank you again to everyone for all of your support.
break from being poked and prodded because we don't have to go back to the hospital until Monday!
Next week is the second week of consolidation, and we will repeat many of the drugs we had this week. He will get another lumbar puncture with chemo on Monday, I'll continue oral chemo at home, and he will get daily shots Monday - Thursday.
As traumatic as it was for Tyler to have his port accessed and his shot administered (we had a MAJOR meltdown with kicking and screaming)he still managed to thank the nurse when we left. I am amazed by how he keeps his sweet demeanor with everyone.
This picture was taken as we waited for the results of his blood draw. If his counts were too low, we would have had to stay for transfusions. Fortunately, his counts were all fantastic and we are heading home. His ANC is so high that we can relax a little and let him enjoy some activities outside of the house! I am thankful for every little blessing we receive!
As miserable as this whole experience has been today, Tyler still managed to flash me an adorable smile :) I am constantly amazed by his strength. Thank you for everyone's continued prayers!