Courage for Charlee
Donation protected
For those who do not know, Jessica and Russ's sweet little Charlee was diagnosed with Mucopolysaccharidosis Type I (MPS I) earlier this week.
MPS 1 is a rare genetic disorder caused by a recessive gene. There is a continuous process in the body of replacing used materials and breaking them down for disposal. Children with the disease are missing an enzyme called alpha-L-idronidase which is essential in breaking down the mucopolysaccharides. The incompletely broken down mucopolysaccharides remain stored in the body causing progressive damage if untreated.
Time is critical. Charlee and her loving family will be spending the next several months at Duke University where she will be undergoing extensive treatment to slow down and prevent further damage from this disorder. She will have to undergo a bone marrow stem cell transplant. Sweet little Charlee is going through various tests and then will complete chemotherapy before receiving the transplant.
Jessica and Russ, devoted and loving parents, will do anything for this special little angel. Jessica has had to take a leave of absence through the end of 2015. They are going to need all the prayers and support we can give them.
We know that Charlee will be in excellent hands of skilled physicians and nurses at Duke. PLEASE keep Charlee Rae and the Gribble family in your thoughts and prayers.
In efforts to assist in the costly financial expenses that are soon to come, we have set up this account to help with any and all expenses that may arise throughout Sweet Charlee’s treatment.
MPS 1 is a rare genetic disorder caused by a recessive gene. There is a continuous process in the body of replacing used materials and breaking them down for disposal. Children with the disease are missing an enzyme called alpha-L-idronidase which is essential in breaking down the mucopolysaccharides. The incompletely broken down mucopolysaccharides remain stored in the body causing progressive damage if untreated.
Time is critical. Charlee and her loving family will be spending the next several months at Duke University where she will be undergoing extensive treatment to slow down and prevent further damage from this disorder. She will have to undergo a bone marrow stem cell transplant. Sweet little Charlee is going through various tests and then will complete chemotherapy before receiving the transplant.
Jessica and Russ, devoted and loving parents, will do anything for this special little angel. Jessica has had to take a leave of absence through the end of 2015. They are going to need all the prayers and support we can give them.
We know that Charlee will be in excellent hands of skilled physicians and nurses at Duke. PLEASE keep Charlee Rae and the Gribble family in your thoughts and prayers.
In efforts to assist in the costly financial expenses that are soon to come, we have set up this account to help with any and all expenses that may arise throughout Sweet Charlee’s treatment.
Organizer and beneficiary
Margaret Gribble
Organizer
Spartanburg, SC
Jessica Gribble
Beneficiary
