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Mark Tioxon Healing Fund

$33,138 of $50,000 goal

Raised by 389 people in 3 months
Created August 21, 2018
Fundraising Team
on behalf of Leah Tioxon
Our dear friend, Mark, is experiencing a hardship and could use our support.  Over the last year, Mark has been suffering a multitude of health issues and has seen numerous medical providers looking for a diagnosis.  A week ago he received an answer: dermatomyositis, a rare inflammatory disease that causes degenerative changes to the muscle and skin.  The disease typically affects people in their late 40s and more often occurs in women. Mark is 40. It causes him to experience pain and stiffness, and be extremely sensitive to light.  His lungs have also become damaged and his oxygen levels drop dangerously low after light activity.  There is no cure for the disease; however, there is treatment.  This is the beginning of the road to recovery, but it's going to take time with ongoing treatment and therapy.

Mark and his wife, Leah, are both self-employed.  Mark is a wedding photographer who captures couples in their happiest moments and is the primary financial provider for his young family. Leah is a holistic energy practitioner and incredible light worker.  They both have so much passion for what they create and offer to others. Unfortunately, because Mark's illness had him in and out of the hospital for months, Mark has not been able to work.  His current challenge of maintaining his oxygen levels postpones his return to work into a far, unknown future.  Leah is also missing days of work to help care for Mark and their 6-year-old son.  This has put a financial strain on their family and adds an unneeded distraction to Mark's road to recovery.  

Mark and Leah are so generous and give so much of themselves to others.  This is our way of being able to offer our support to them now.  The funds received will help with quickly mounting medical expenses, which as of today, could total up to $55,000, as well as day-to-day expenses.  Thank you for taking the time to read this and for all the love and generosity that is already being received.  Another way to help is by sharing this with your friends and family.  

Thank you!  
 
 

 
 
 
 
 
 
 

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
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I look at pictures from this time last year and think, “We had no idea what was coming.” No idea that this year, we would be heading into the holidays with a whole new vocabulary including words like pulse oximeter, mycophenolate, pneumomediastinum and dermatomyositis. No idea that next year, we would begin the day with infusions of human immunoglobulin and end the day decorating gingerbread houses, to the sound of Christmas music and the ever present oxygen machine.

This year has brought us lots of challenges and surprises.

It’s also made the most-used words in our vocabulary these two: Thank You.

Thank you for this life. This breath. These friends and family members who carry us when things are just too hard.

Thank you for bills paid and food cooked and joy spread. For hugs and massages and healing hands and prayers. For ALL THE LOVE in ALL THE WAYS y’all have brilliantly, beautifully enveloped us.

Thank you. Happy holidays!!! ❤️❤️
J’s gingerbread house!
IVig infusion today!
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We have *so* much to be thankful for this Thanksgiving, and YOU are huge part of our hearts today. Mark’s health continues to improve steadily, and we were even able to travel up to my parents’ house in the beautiful North GA mountains to spend a few days soaking up the crisp air, autumn leaves, and feasting with family.

Happy Thanksgiving to you and yours. We are so very grateful for your support.
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Mark is doing better and better! He’s officially in remission of this horrendous dermatomyositis flare-up. We met with his new pulmonologist yesterday, and really liked him. His former pulmonologist was quite experienced and in-demand, traveling a lot to speak at conferences. The new one, while less experienced (read: much younger) overall, has more experience with myositis patients and the unique and complicating factors in Mark’s case. The new doctor balances being upbeat with being very forthright. (The former pulmonologist was a bit depressing, honestly.) New doc looked at us and said, “We’ve thrown the kitchen sink at you. Your case is the most aggressive I’ve seen because of that MDA-5 antibody. You’re on a number of immunosuppressants so you basically have no immune system. If you feel off or in a funk at ALL, if you have even a slight fever, you must go to the hospital because that’s an emergency.”

Then he explained his plan for managing Mark’s treatment and slowly weaning him off of some of the immunosuppressants and continuing to decrease the steroids. He stressed that physical therapy is crucial to Mark’s recovery.

The good news: Mark is definitely getting better. The less-good news: his case is complicated and recovery will take a while, and we have to be so careful that he stays healthy while he recovers. I know Mark is eager to re-engage with the world as he feels better. But I’m also super aware of all the germs, haha. We are learning to balance optimism and caution.

Thank you again and again for all the support! It takes so much stress off of us and touches our hearts so deeply. We know we aren’t alone in this. And that makes all the difference.
At the pulmonologist!
At physical therapy!
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First I want to say thank you for all of the generosity, love, and support that so many of you have given to Mark, Leah, and Jonah!! The donations they have received have kept them afloat in resources and they (we) are so grateful! Thank you, thank you, thank you!!

After the 15 day stay in the hospital, Mark is doing so much better! They also now have the resources in place at home to help properly take care of Mark's needs and medical care. The prognosis looks good; however the doctors and PTs keep reminding them that this will be a long journey and that he won't likely be able to go back to work for at least a year.

Unfortunately, the medical bills are beginning to pile up and as we know health care costs are expensive. Mark will be receiving infusions which are close to $10,000 a month! Leah is working diligently with the insurance companies and doctors to negotiate these costs, but this can take time and not always with the best results.

So, we have decided to increase the goal to $50,000 and I know we can make this happen for them! Please share this fundraiser with your friends and family! Lets shower this beautiful family with even more generosity and love! ❤
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$33,138 of $50,000 goal

Raised by 389 people in 3 months
Created August 21, 2018
Fundraising Team
on behalf of Leah Tioxon
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